Conventional vs Mindfulness Intervention in Parents of Children With Disabilities

残疾儿童家长的传统干预与正念干预

• 批准号: 7815361
• 负责人: ELISABETH MAY DYKENS
• 金额: $ 49.88万
• 依托单位: VANDERBILT UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2009
• 资助国家: 美国
• 起止时间: 2009-09-30 至 2011-09-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7815361
• 关键词: Accounting; Address; Advocacy; Aftercare; Age; Aging; Anxiety; Area; Biological Markers; Child; Child Behavior; Complementary and alternative medicine; Conflict (Psychology); Data; Developmental Disabilities; Diagnosis; Disabled Children; Down Syndrome; Economics; Educational process of instructing; Effectiveness; Ethnic Origin; Etiology; Family; Fathers; Frequencies; Future; Gender; Happiness; Health; Hydrocortisone; Intervention; Learning; Life; Light; Linear Models; Maternal Age; Mediator of activation protein; Medical; Mental Health; Mental disorders; Mentors; Minority; Modeling; Mothers; Outcome; Pain; Parents; Participant; Pattern; Personal Satisfaction; Poverty; Prevalence; Provider; Public Health; Randomized; Research; Stress; Techniques; Testing; Time; Training; Unemployment; autism spectrum disorder; base; comparative effectiveness; compare effectiveness; depression; depressive symptoms; disability; economic outcome; effectiveness research; experience; group intervention; improved; indexing; intervention effect; maternal stress; meetings; mindfulness; mindfulness-based stress reduction; offspring; peer; post intervention; psychologic; public health relevance; response; satisfaction; treatment effect; treatment response

DESCRIPTION (provided by applicant): This application addresses the Broad Challenge area of Comparative Effectiveness Research (05), 05-AT-102* Comparative Effectiveness Studies of Complementary and Alternative Medicine. This application is entitled: Conventional vs Mindfulness Intervention in Parents of Children with Disabilities. A full 1 in 5 children in the US has a developmental disability, and the prevalence rate for autism spectrum disorders (ASD) is especially high (1 in 150 children). As many as 20% of US families are raising children with developmental disabilities, and these parents experience more stress than parents of typically- developing children, as well as more depression, anxiety, and health and mental health problems. Negative outcomes are complicated by increased economic hardships faced by families of children with disabilities. Although parental stress is elevated in many types of disabilities, parents of children with ASD are especially prone to negative psychological and economic outcomes. This application compares the effectiveness of a conventional Parent Group intervention to a modified Mindfulness- Based Stress Reduction (MBSR) program in parents of children with ASD and other disabilities. Parent groups are widely-used to provide information, support, and advocacy. MBSR is efficacious for people with medical, psychiatric or other concerns, and teaches stress reduction through mindfulness training and practice. In contrast to conventional parent groups, our studies suggest that mindfulness-based interventions may be particularly effective in reducing stress and improving the health and mental health of parents of children with disabilities. We will randomly assign 400 parents of children with ASD or other disabilities to 6 weeks of a Parent Group versus a modified MBSR program group, and collect data on parental health, positive and negative psychological states, and biomarker indices of stress. Data from pre, mid, and 4 post intervention time points will be used in hierarchical linear modeling, and analyses will also assess if intervention effects differ across mothers, fathers, minority parents, or child diagnoses. Unemployed parents of children with disabilities will be hired as research assistants and trained to conduct either the Parent Group or modified MBSR program interventions. Peer-mentors are effective providers of advocacy and support. Hiring unemployed parents of children with disabilities meets the immediate ARRA mandate and demonstrates the feasibility of hiring parents in future large-scale public health efforts aimed at reducing stress and improving healthy outcomes in the 20% of US families who are raising children with disabilities. PUBLIC HEALTH RELEVANCE: A full 1 in 5 children has a developmental disability, and parents of children with disabilities have significantly high rates of stress, and health and mental health problems than parents of typically- developing children. This study tests the effectiveness of two different interventions, both aimed at reducing stress in parents of children with autism spectrum disorders or other disabilities (a Parent Group model versus a modified Mindfulness-Based Stress Reduction program). This study will shed new light on how to best reduce stress and increase health and well-being in up to 20% of US families who are raising children with developmental disabilities.

描述（由申请人提供）：本申请解决了比较有效性研究 (05)、05-AT-102* 补充和替代医学比较有效性研究的广泛挑战领域。该申请的标题是：残疾儿童家长的传统干预与正念干预。在美国，五分之一的儿童患有发育障碍，自闭症谱系障碍 (ASD) 的患病率特别高（每 150 名儿童中就有 1 人）。多达20%的美国家庭正在抚养患有发育障碍的孩子，这些父母比正常发育儿童的父母承受更大的压力，以及更多的抑郁、焦虑以及健康和心理健康问题。残疾儿童家庭面临的经济困难加剧，使负面结果变得更加复杂。尽管许多类型的残疾都会增加父母的压力，但患有自闭症谱系障碍儿童的父母特别容易遭受负面的心理和经济后果。该应用程序比较了传统家长小组干预与修改后的正念减压 (MBSR) 计划对患有自闭症谱系障碍 (ASD) 和其他残疾儿童的家长的有效性。家长团体被广泛用来提供信息、支持和宣传。 MBSR 对于有医疗、精神或其他问题的人来说非常有效，并通过正念训练和练习来减轻压力。与传统的家长群体相比，我们的研究表明，基于正念的干预措施可能对减轻残疾儿童家长的压力并改善他们的健康和心理健康特别有效。我们将随机将 400 名自闭症谱系障碍 (ASD) 或其他残疾儿童的家长分配到家长组和修改后的 MBSR 计划组，为期 6 周，并收集有关家长健康、积极和消极心理状态以及压力生物标志物指数的数据。干预前、中期和干预后 4 个时间点的数据将用于分层线性模型，分析还将评估母亲、父亲、少数族裔父母或儿童诊断之间的干预效果是否不同。残疾儿童的失业父母将被聘为研究助理，并接受培训以进行家长小组或修改后的 MBSR 计划干预措施。同伴导师是有效的宣传和支持提供者。雇用残疾儿童的失业父母符合 ARRA 的直接任务，并证明了在未来大规模公共卫生工作中雇用父母的可行性，该工作旨在减轻 20% 抚养残疾儿童的美国家庭的压力并改善健康状况。 公共卫生相关性：五分之一的儿童患有发育障碍，与正常发育儿童的父母相比，残疾儿童的父母面临压力、健康和心理健康问题的比例明显更高。这项研究测试了两种不同干预措施的有效性，这两种干预措施均旨在减轻自闭症谱系障碍或其他残疾儿童父母的压力（家长小组模型与修改后的基于正念的减压计划）。这项研究将为多达 20% 养育发育障碍儿童的美国家庭提供新的线索，帮助他们更好地减轻压力并增进健康和福祉。