Outreach, Recruitment and Engagement Core

外展、招聘和参与核心

• 批准号: 10264665
• 负责人: DAVID K JOHNSON
• 金额: $ 30.1万
• 依托单位: UNIVERSITY OF CALIFORNIA AT DAVIS
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-08-15 至 2026-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10264665
• 关键词: Advocacy; Affect; African American; Age; Alzheimer' s Disease; Alzheimer' s disease related dementia; Awareness; Back; Biological Markers; California; Caring; Catalogs; Clinical; Clinical Research; Cognitive; Collaborations; Color; Communities; Community Actions; Complex; Consent; Cultural Backgrounds; Dementia; Detection; Diagnosis; Disease; Economics; Education; Educational Background; Elderly; Environment; Event; Facebook; Family; Foundations; Gender; Goals; Health education; Heterogeneity; Hispanics; Impaired cognition; Incentives; Individual; Knowledge; Life Experience; Loneliness; Marketing; Minority Recruitment; Nature; Newsletter; Not Hispanic or Latino; Older Population; Participant; Persons; Phenotype; Plant Roots; Population Heterogeneity; Prevalence; Prevention strategy; Process; Proxy; Public Health; Race; Recording of previous events; Research; Research Personnel; Research Project Grants; Resources; Risk; Services; Severity of illness; Time; Underrepresented Populations; Variant; Vision; base; cohort; community based participatory research; community based research; coping; demographics; design; digital; digital media; disability; disease classification; disease phenotype; efficacious treatment; experience; indexing; innovation; interest; minority communities; novel; outreach; patient engagement; programs; racial and ethnic; recruit; research study; social; social determinants; social media; socioeconomics; tailored messaging; tool; treatment strategy; trend; urban setting

PROJECT SUMMARY – Outreach Recruitment and Engagement Core (OREC) Increased prevalence of dementia in African American and Hispanic communities compounds the disproportionate economic and social burden that ADRD has in these historically under-represented groups, thereby creating a public health crisis should these trends continue unabated. To innovate cures and treatments, we need to understand the broadest characterization of AD phenotypes to enable discovery for new biomarkers that index disease nosology and stage. UC Davis is a national leader for minority recruitment and retention due to its commitment to the principles of Community-Based Participatory Research (CBPR). Over its nearly 30-year history, the UC Davis ADRC has developed robust outreach and recruitment processes that reliably identifies, efficiently screens, and clearly consents older adult participants from a wide range of SES, educational and cultural backgrounds. We propose to enhance our continuing in-person efforts with a complimentary digital e-toolbox. These e-tools use novel digital media marketing that allows us to match unique participant demographics/interests (e.g., African American older adult without cognitive impairment living alone in an urban setting) with specific content (e.g., a video vignette about coping with loneliness and signs for when to see a doctor), thus enhancing participant engagement and creating a personally meaningful recruitment experience. We refer to the combined toolbox of both in-person and e-resources as the Memorable Outreach, Recruitment, Retention and Engagement (MORRE) toolbox. Using the enhanced MORRE toolbox we aim to: (1) Outreach to diverse older adult communities of Black, Hispanic and White older adults across Northern California; (2). Pique interest and call-to-action communities of color to participate in a clinical research program focusing on Alzheimer’s disease and related dementias; (3) Retain our participants in this clinical cohort by tailor making (a) appreciation events (in-person and digital) to focus on how their personal contributions of time and effort make the difference in care and treatment discovery; (b) easy-to-use health education media environment personalized to each participant’s age, education and level/stage of disability in-person using familiar digital platforms (e.g., Facebook, YouTube, e-newsletters, recommended content based on likes and viewing histories); and (4) Engage community leaders through our community advisory board (CAB) in an ongoing dialogue about research project design, community principles and priorities, potential facilitators and barriers that may impact recruitment, and strategize community-based research project implementation. The significance of this OREC is its foundational support and advocacy for a center-wide vision of CBPR though extensive collaboration with NIA, other ADRC cores and local community partners. The scientific impact of the OREC will be its creation of sophisticated technical resources that enhance recruitment, assessment and retention of Blacks and Hispanics into clinical research studies.

项目摘要 - 外展招聘和参与核心（OREC） 非裔美国人和西班牙裔社区痴呆症的患病率增加了 在这些历史上代表不足的群体中 因此，如果这些趋势持续不断，造成公共卫生危机。创新治疗和 治疗方法，我们需要了解AD表型的最广泛特征，以实现发现 新的生物标志物，这些生物标志物索引疾病的疾病学和阶段。加州大学戴维斯分校是少数民族招募的国家领导人 并保留了对基于社区参与性研究原则（CBPR）的承诺。 在其将近30年的历史中，加州大学戴维斯分校ADRC开发了强大的外展和招聘流程 这可靠地识别，有效地筛选，并明确地说明了来自各种各样的老年参与者 SES，教育和文化背景。我们建议通过 免费数字电子盒。这些电子工具使用新颖的数字媒体营销，使我们能够匹配 独特的参与者人口统计/兴趣（例如，非裔美国人老年人没有认知障碍 独自生活在城市环境中），有特定内容（例如，关于应对孤独和应对的视频小插图 标志何时去看医生），从而增强参与者的参与并创建个人 有意义的招聘经验。我们将面对面和电子资源的组合工具箱称为 令人难忘的外展，招聘，保留和参与（Morre）工具箱。使用增强型 Morre工具箱我们的目标是：（1）向黑人，西班牙裔和白色的潜水员老年人社区推广 北加州的老年人； （2）。激烈的兴趣和呼吁行动有色社区参与 在临床研究计划中，重点是阿尔茨海默氏病和相关痴呆症； （3）保留我们的 通过裁缝制作（a）赞赏事件（面对面和数字）的参与者专注于 他们的时间和努力的个人贡献如何使护理和治疗发现的差异； （b） 易于使用的健康教育媒体环境对每个参与者的年龄，教育和 使用熟悉的数字平台（例如Facebook，YouTube，e-Newsletters， 根据喜欢和查看历史的建议内容）； （4）通过我们的 社区顾问委员会（CAB）在有关研究项目设计的持续对话中 以及可能影响招聘的潜在促进者和障碍以及基于战略社区的潜在促进者和障碍 研究项目实施。这款OREC的重要性是其基本的支持和倡导 CBPR的中心愿景与NIA，其他ADRC核心和当地社区的广泛合作 合作伙伴。兽人的科学影响将是其创造复杂的技术资源的创造 将黑人和西班牙裔招募，评估和保留促进临床研究。