Dissemination and Outreach Core

传播和外展核心

• 批准号: 10240564
• 负责人: FRED Robert Volkmar
• 金额: $ 9.5万
• 依托单位: YALE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2017
• 资助国家: 美国
• 起止时间: 2017-09-07 至 2023-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10240564
• 关键词: Address; Adult; Affect; Area; Awareness; Basic Science; Birth; Caring; Child; Clinical Research; Communication; Communities; Development; Ethnic group; Event; Family; Feedback; Fostering; Foundations; Functional Imaging; General Population; Goals; Individual; International; Knowledge; Medical; Mentorship; Online Systems; Parents; Participant; Play; Policies; Postdoctoral Fellow; Publications; Research; Research Personnel; Research Training; Resources; Role; Source; Students; Talents; Training Programs; Translating; Translations; Update; autism spectrum disorder; autistic children; base; cellular imaging; disadvantaged background; ethnic disadvantage; experience; graduate student; imaging approach; improved; individuals with autism spectrum disorder; interest; lectures; medical schools; molecular imaging; multidisciplinary; neurodevelopment; outreach; participant retention; pediatrician; programs; racial and ethnic; recruit; summer internship; symposium; uptake

Summary The objectives of the Yale School of Medicine’s proposed ACE Dissemination and Outreach Core include dissemination of research knowledge and information as well as provision of ongoing educational and awareness activities at local/regional and national/international levels to educators, medical care professionals, the scientific community, and families of children with Autism Spectrum Disorders (ASD). In addition, this Core will establish and promote bidirectional communication between investigators and individuals affected by ASD in the community. Critical to the core is the creation of mechanisms to include students, postdoctoral fellows, and early-stage investigators in the Projects proposed, and to involve junior and senior researchers who are new to the field of autism as well as investigators from underrepresented racial/ethnic groups and disadvantaged backgrounds. The Dissemination and Outreach Core will utilize numerous resources to reach target audiences through a range of activities, events, and continuing educational courses with the goal of providing research-based information to students, families, and researchers, especially those new to the field of ASD. We shall provide conferences tailored to three audiences: (1) pediatricians and early educators, (2) the local scientific community including students and young investigators, and (3) families of individuals with ASD. In addition, this Core will disseminate professional and lay publications, web-based materials, and ongoing research updates by ACE investigators for professionals, the scientific community, and the general public, at local, national, and international levels. Through this Core, we will also foster bidirectional communication between investigators and individuals affected by ASD in the community. Parent Consultants will play a central role in enhancing the partnership between investigators and research participants by serving as liaisons to other parents of children with ASD, discussing concerns, and providing feedback to ACE Investigators. Community Collaborators will assist us in publicizing our dissemination forums and ACE participation opportunities. Ongoing dialogue with both sets of Parent and Community partners will lay the foundation for improved recruitment and retention of participants for the ACE studies and future research, as well as increase uptake of dissemination activities in the community. This objective builds on our long tradition of interaction between families and investigators that serves to enhance long-term relationships and the quality of the research participation experience. Also continuing the CSC’s longstanding practice of fostering new talent, we propose specific mechanisms to include students, post-doctoral fellows, early-stage investigators, and researchers from outside the field of ASD and from underrepresented racial/ethnic groups and disadvantaged backgrounds. These goals will be addressed by creating new lectures, symposia, mentorship programs, and Grand Rounds, as well as tapping into Yale School of Medicine’s established training programs and new Diversity Initiatives.

概括 耶鲁大学医学院提议的王牌传播和外展核心的对象包括 传播研究知识和信息以及提供正在进行的教育和 向教育工作者，医疗专业人员，地方/地区和国家/国际级别的宣传活动， 科学界和自闭症谱系障碍儿童的家庭（ASD）。此外，这个核心 将建立和促进受ASD影响的研究人员与个人之间的双向交流 在社区。对核心至关重要的是创建包括学生，博士后研究员的机制， 以及提议的项目的早期调查人员，并参与初级和高级研究人员 自闭症领域以及来自代表性不足的种族/族裔群体的调查员以及 不利的背景。 传播和宣传核心将利用众多资源通过 一系列活动，活动和继续教育课程，目的是提供基于研究的 向学生，家庭和研究人员，尤其是ASD领域的学生提供信息。我们将提供 针对三个受众量身定制的会议：（1）儿科医生和早期教育者，（2）当地科学 包括学生和年轻调查员在内的社区，以及（3）ASD患者的家庭。此外，这 核心将传播专业和外行出版物，基于网络的材料以及正在进行的研究更新 由专业人士，科学界和公众的ACE调查员，地方，国家和 国际水平。通过这个核心，我们还将建立调查人员之间的双向交流 以及社区中ASD影响的个人。家长顾问将在增强中发挥核心作用 调查人员与研究参与者之间的伙伴关系，通过与其他孩子的父母担任联络 与ASD一起讨论问题，并向ACE调查人员提供反馈。社区合作者将 协助我们发布我们的传播论坛和ACE参与机会。正在进行的对话 两组父母和社区伴侣都将为改善招聘和保留奠定基础 ACE研究和未来研究的参与者，并增加了传播活动的吸收 社区。这个目标是基于我们在家庭与调查人员之间漫长的互动传统的基础上 可以增强长期关系和研究参与经验的质量。还 继续CSC培养新人才的长期练习，我们提出具体机制以包括 学生，博士后研究员，早期的调查人员以及来自ASD和 来自代表性不足的种族/族裔群体和处境不利的背景。这些目标将被解决 通过创建新的演讲，专题讨论会，精明计划和盛大的回合，并利用耶鲁大学 医学院建立的培训计划和新的多样性计划。