Personal Health Libraries for Formerly Incarcerated Individuals

曾被监禁人员的个人健康图书馆

• 批准号: 10086564
• 负责人: Karen H Wang
• 金额: $ 37.28万
• 依托单位: YALE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-09-10 至 2024-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10086564
• 关键词: Access to Information; Address; Back; Cessation of life; Chronic; Clinic; Clinical; Communities; Connecticut; Constitutional; Controlled Environment; Criminal Justice; Data; Development; Disease Management; Electronic Health Record; Employment; Environment; Food Access; Foundations; Funding; Future; General Population; Goals; Health; Health Personnel; Health Technology; Health system; Healthcare; Hospitalization; Housing; Imprisonment; Individual; Infrastructure; Insurance; Interview; Jail; Lead; Learning; Libraries; Medical; Medication Management; Minority Groups; Modeling; Nurses; Outcome; Paper; Patients; Personal Health Records; Persons; Pharmaceutical Preparations; Population; Primary Health Care; Prisons; Process; Provider; Public Health Informatics; Randomized; Recording of previous events; Research; Resources; Risk; Self Efficacy; Social Work; Source; Structure; System; Technology; Testing; United States National Institutes of Health; Vulnerable Populations; Work; barrier to care; computerized data processing; correctional system; design; ethnic minority population; health care availability; health care service; health information technology; healthcare community; high risk; high risk population; hospitalization rates; improved; informant; informatics tool; low socioeconomic status; medication compliance; mobile application; multidisciplinary; multiple data sources; patient portal; preference; primary care services; racial and ethnic; racial minority; randomized trial; recruit; service organization; service providers; social; social vulnerability; standard of care

PROJECT SUMMARY Individuals released from correctional facilities have high rates of hospitalization and death, especially in the weeks following release. Disproportionately poor and of racial and ethnic minority groups, they are already a high-risk group for poor health outcomes. The transition back to the community is marked with additional difficulties navigating the healthcare, community correctional, and social service systems and structural barriers to obtaining healthcare, housing, and employment. Individuals released from correctional facilities must engage with many providers, which presents challenges organizing and acting on information received from various organizations. Personal health information technologies are untapped resources which could improve the transition from corrections to the community and mitigate health risks. There is an urgent need to develop personal health information technologies in partnership with formerly incarcerated individuals and test their efficacy in improving health outcomes. Using these technologies, formerly incarcerated individuals could organize, understand and act on various sources of information, leading to improved self-efficacy and improved health outcomes. Yet, there has not been a personal health information technology designed to meet the needs and preferences of this population, which is critical for its acceptance and use. The long-term goal is to improve the health of formerly incarcerated people, facilitated by their use of personal health information technologies. The overall objective of this proposal is to develop and test strategies, in partnership with formerly incarcerated people, to increase acceptance and use of a personal health library (PerHL) mobile app. Preliminary data indicate that using a participatory health informatics approach to engage people with histories of incarceration can lead to acceptance and use of a health technology. The central hypothesis of our study is that developing and refining PerHL in partnership with formerly incarcerated people will increase its acceptance and use. To test this hypothesis, we propose three aims: (1) Assess the facilitators and barriers of the development and use of personal health information technology for formerly incarcerated individuals, (2) Develop and refine PerHL for formerly incarcerated individuals, and (3) Conduct a pilot randomized trial to test the acceptance and use of PerHL among formerly incarcerated individuals. We will leverage the expertise and infrastructure of Transitions Clinic Network, a national network of primary care clinics for formerly incarcerated people, and a multidisciplinary team of informaticists, clinical providers, formerly incarcerated individuals, and criminal justice leaders, creating a best-case scenario for developing PerHL. This study represents a new and substantial departure from the status quo by incorporating a participatory health informatics approach and state of the art informatics tools into the development and refinement of a personal health information technology for people recently released from correctional facilities.

项目概要 从惩教机构释放的人住院率和死亡率很高，特别是在 发布后几周。他们的贫困程度不成比例，并且属于少数种族和族裔群体，他们已经是 健康结果不佳的高危人群。返回社区的过渡带有额外的标记 医疗保健、社区惩教和社会服务系统和结构性困难 获得医疗保健、住房和就业的障碍。从惩教所释放的人员 必须与许多提供商合作，这给组织和根据收到的信息采取行动带来了挑战 来自各个组织。个人健康信息技术是尚未开发的资源，可以 改善从惩教到社区的过渡并降低健康风险。迫切需要 与曾被监禁的个人合作开发个人健康信息技术并进行测试 它们在改善健康结果方面的功效。使用这些技术，以前被监禁的人可以 组织、理解各种信息来源并采取行动，从而提高自我效能和 改善健康状况。然而，还没有一种个人健康信息技术能够满足 该人群的需求和偏好，这对其接受和使用至关重要。长期目标是 通过使用个人健康信息来改善前被监禁者的健康 技术。该提案的总体目标是与以下机构合作制定和测试策略： 以前被监禁的人，以提高个人健康图书馆 (PerHL) 移动应用程序的接受度和使用率。 初步数据表明，使用参与式健康信息学方法让有历史的人参与进来 监禁可以导致接受和使用卫生技术。我们研究的中心假设是 与曾经被监禁的人合作开发和完善 PerHL 将提高其 接受和使用。为了检验这一假设，我们提出了三个目标：（1）评估促进因素和障碍 为曾经被监禁的个人开发和使用个人健康信息技术，(2) 为曾经被监禁的个人开发和完善 PerHL，以及 (3) 进行试点随机试验来测试 曾被监禁的个人接受和使用 PerHL。我们将利用专业知识和 Transitions Clinic Network 的基础设施，这是一个为前被监禁者提供初级保健诊所的全国网络 人，以及由信息学家、临床提供者、前被监禁者和人员组成的多学科团队 刑事司法领导者，为发展 PerHL 创造最佳方案。这项研究代表了一种新的、 通过纳入参与式健康信息学方法和状态，大大偏离了现状 将艺术信息学工具融入个人健康信息技术的开发和完善中 最近从惩教所释放的人。