Personal Health Libraries for Formerly Incarcerated Individuals

曾被监禁人员的个人健康图书馆

• 批准号: 10478925
• 负责人: Karen H Wang
• 金额: $ 35.44万
• 依托单位: YALE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-09-10 至 2024-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10478925
• 关键词: Access to Information; Address; Back; Cessation of life; Chronic; Clinic; Clinical; Communities; Connecticut; Constitutional; Controlled Environment; Criminal Justice; Data; Development; Disease Management; Electronic Health Record; Employment; Environment; Food Access; Foundations; Funding; Future; General Population; Goals; Health; Health Personnel; Health Technology; Health system; Healthcare; Hospitalization; Housing; Imprisonment; Individual; Infrastructure; Insurance; Interview; Jail; Lead; Learning; Libraries; Medical; Medication Management; Modeling; Nurses; Outcome; Paper; Patients; Personal Health Records; Persons; Pharmaceutical Preparations; Population; Primary Health Care; Prisons; Process; Provider; Public Health Informatics; Randomized; Recording of previous events; Research; Resources; Risk; Self Efficacy; Social Work; Source; System; Technology; Testing; United States National Institutes of Health; Vulnerable Populations; Work; barrier to care; computerized data processing; correctional system; design; ethnic minority population; health care availability; health care service; health information technology; healthcare community; high risk; high risk population; hospitalization rates; improved; informant; informatics tool; low socioeconomic status; medication compliance; mobile application; multidisciplinary; multiple data sources; patient portal; preference; primary care services; racial and ethnic; racial minority; randomized trial; recruit; service organization; service providers; social; social vulnerability; standard of care

PROJECT SUMMARY Individuals released from correctional facilities have high rates of hospitalization and death, especially in the weeks following release. Disproportionately poor and of racial and ethnic minority groups, they are already a high-risk group for poor health outcomes. The transition back to the community is marked with additional difficulties navigating the healthcare, community correctional, and social service systems and structural barriers to obtaining healthcare, housing, and employment. Individuals released from correctional facilities must engage with many providers, which presents challenges organizing and acting on information received from various organizations. Personal health information technologies are untapped resources which could improve the transition from corrections to the community and mitigate health risks. There is an urgent need to develop personal health information technologies in partnership with formerly incarcerated individuals and test their efficacy in improving health outcomes. Using these technologies, formerly incarcerated individuals could organize, understand and act on various sources of information, leading to improved self-efficacy and improved health outcomes. Yet, there has not been a personal health information technology designed to meet the needs and preferences of this population, which is critical for its acceptance and use. The long-term goal is to improve the health of formerly incarcerated people, facilitated by their use of personal health information technologies. The overall objective of this proposal is to develop and test strategies, in partnership with formerly incarcerated people, to increase acceptance and use of a personal health library (PerHL) mobile app. Preliminary data indicate that using a participatory health informatics approach to engage people with histories of incarceration can lead to acceptance and use of a health technology. The central hypothesis of our study is that developing and refining PerHL in partnership with formerly incarcerated people will increase its acceptance and use. To test this hypothesis, we propose three aims: (1) Assess the facilitators and barriers of the development and use of personal health information technology for formerly incarcerated individuals, (2) Develop and refine PerHL for formerly incarcerated individuals, and (3) Conduct a pilot randomized trial to test the acceptance and use of PerHL among formerly incarcerated individuals. We will leverage the expertise and infrastructure of Transitions Clinic Network, a national network of primary care clinics for formerly incarcerated people, and a multidisciplinary team of informaticists, clinical providers, formerly incarcerated individuals, and criminal justice leaders, creating a best-case scenario for developing PerHL. This study represents a new and substantial departure from the status quo by incorporating a participatory health informatics approach and state of the art informatics tools into the development and refinement of a personal health information technology for people recently released from correctional facilities.

项目摘要 从惩教设施中释放的个人的住院和死亡率很高，尤其是在 发布后几周。他们已经是一个不成比例的贫穷，种族和少数民族的群体已经是一个 高危健康结果的高风险小组。回到社区的过渡带有其他 在医疗保健，社区惩教和社会服务系统以及结构性方面驾驶困难 获得医疗保健，住房和就业的障碍。从惩教所释放的个人 must engage with many providers, which presents challenges organizing and acting on information received 来自各种组织。个人健康信息技术是未开发的资源 改善从矫正到社区的过渡，并减轻健康风险。迫切需要 与以前被监禁的个人合作开发个人健康信息技术并进行测试 它们在改善健康结果方面的功效。使用这些技术，以前被监禁的个体可以 组织，理解和采取各种信息来源，从而提高自我效能感和 改善了健康结果。但是，没有旨在满足的个人健康信息技术 该人群的需求和偏好对于接受和使用至关重要。长期目标是 为了改善以前被监禁的人的健康，通过使用个人健康信息来促进 技术。该提案的总体目的是与 以前被监禁的人增加了个人健康图书馆（PERHL）移动应用程序的接受和使用。 初步数据表明，使用参与式健康信息学方法使人们拥有历史 监禁可以导致接受和使用卫生技术。我们研究的中心假设是 that developing and refining PerHL in partnership with formerly incarcerated people will increase its 接受和使用。为了检验这一假设，我们提出了三个目标：（1）评估 为以前被监禁的个人开发和使用个人健康信息技术，（2） 为以前被监禁的个体开发和完善PERHL，（3）进行试验随机试验进行测试 以前被监禁的个体接受和使用Perhl。我们将利用专业知识和 过渡诊所网络的基础设施，这是一个以前被监禁的初级保健诊所的网络 人，以及由信息家，临床提供者，以前被监禁的个人以及 刑事司法领导人，为发展Perhl创造了最佳情况。这项研究代表了一个新的 通过纳入参与式健康信息学方法和状态，与现状大大不同 为开发和完善个人健康信息技术的艺术信息学工具 人们最近从惩教所释放。