Admin-Core

管理核心

• 批准号: 10657603
• 负责人: Scott D Halpern
• 金额: $ 38.35万
• 依托单位: UNIVERSITY OF PENNSYLVANIA
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-15 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10657603
• 关键词: Advance Care Planning; Advisory Committees; American; Area; Assisted Living Facilities; Behavior; Behavior Therapy; Behavioral Research; Caregivers; Characteristics; Clinical Research; Collaborations; Committee Members; Communication; Community Health Systems; Data; Data Linkages; Data Science; Data Set; Dementia; Development; Doctor of Philosophy; Education; Effectiveness; Electronic Health Record; Ensure; Environment; Ethics; Faculty; Fostering; Goals; Grant; Health; Health system; Healthcare; Human Subject Research; Incentives; Infrastructure; Institution; Interdisciplinary Study; Intervention; Knowledge; Learning; Machine Learning; Measurement; Medicare/Medicaid; Memory; Natural Language Processing; Nursing Homes; Outcome Measure; Palliative Care; Pathway Analysis; Patients; Persons; Pilot Projects; Positioning Attribute; Principal Investigator; Private Sector; Problem Solving; Research; Research Personnel; Resource Sharing; Resources; Services; Testing; Translating; Work; advanced disease; behavior test; behavioral economics; biomedical informatics; care systems; career; computing resources; dementia care; design; experience; health care service organization; improved; member; mobile computing; palliative; pragmatic trial; symposium; symptom management

The Management and Administrative Core of this proposed Roybal Center will be led by Overall Principal Investigator Scott Halpern, MD, PhD, with assistance from the other members of the Center's Steering Committee. The central goal of this Core is to provide the infrastructure and expertise necessary to support the design, testing, and dissemination of behavioral interventions that improve palliative care for persons with dementia (PWD) and their caregivers in long-term services and support (LTSS) facilities across the U.S. Several characteristics of the Center and its investigators position us uniquely well to achieve this goal. First, we have partnered with dozens of external, non-academic healthcare organizations during the past decade, and have thus learned how to align our work with institutional priorities, problem-solve in unfamiliar environments, and assist organizations that are not accustomed to conducting research in ensuring appropriate safeguards and human subjects research protections. This experience will enable us to capitalize on our tremendous opportunity to produce generalizable evidence of the effectiveness of scalable interventions by conducting our pilot projects within LTSS facilities owned by Genesis HealthCare, the nation's largest LTSS company. Second, we have considerable experience developing and testing behavioral interventions to improve advance care planning, symptom management, and other palliative care services for PWD in LTSS facilities including nursing homes and assisted-living facilities. Third, several Center investigators are among the world leaders in the design, conduct, and ethics of large, pragmatic trials, particularly trials testing behavioral interventions. Fourth, our investigators include leaders of several other NIA-supported Centers, facilitating collaborations, shared resources, and other efficiencies in conducting impactful research. Finally, this new Roybal Center will directly leverage the existing resources of two robust, multidisciplinary research centers at Penn: the Palliative and Advanced Illness Research (PAIR) Center, and the Penn Memory Center. We will also benefit from formal linkages with Penn's hubs for behavioral economics (the Center for Health Incentives and Behavioral Economics) and biomedical informatics (the Institute for Biomedical Informatics). To achieve its overall goal, this Core has seven specific aims, including to: plan, implement, and coordinate all Center activities such as the annual Symposium; engage and manage the Center's Advisory Committee; develop new strategic collaborations with other LTSS companies; grow our national network of Affiliated Investigators working to improve residential palliative care for PWD; foster collaborations with other NIA-supported Centers; oversee data linkages that will enhance the efficient measurement of the effects of our interventions; and disseminate the Center's findings through a coordinated communications strategy.

该拟议的皇家中心的管理和行政核心将由总体校长领导 调查员斯科特·哈珀（Scott Halpern），医学博士，博士 委员会。该核心的核心目标是提供支持的基础架构和专业知识 设计，测试和传播行为干预措施，以改善患者的姑息治疗 痴呆症（PWD）及其在美国长期服务和支持（LTSS）设施的护理人员 该中心及其研究人员的几个特征在实现这一目标方面非常独特。 首先，我们过去曾与数十个外部，非学术医疗组织合作 十年，因此学会了如何使我们的工作与机构优先事项保持一致，不熟悉的问题解决 环境，并协助不习惯进行研究的组织 适当的保障措施和人类受试者研究保护。这种经验将使我们能够大写 在我们的巨大机会中，提供可扩展干预措施有效性的可概括证据 通过在Genesis Healthcare拥有的LTSS设施中进行试点项目，该国最大的LTSS 公司。其次，我们具有开发和测试行为干预措施的丰富经验 改善LTSS中PWD的预先护理计划，症状管理和其他姑息治疗服务 包括疗养院和辅助生活设施在内的设施。第三，几个中心调查人员之一 大型，务实试验的设计，行为和道德的世界领导者，尤其是试验测试 行为干预。第四，我们的调查人员包括其他NIA支持中心的领导人， 促进合作，共享资源以及其他进行有影响力的研究的效率。 最后，这个新的皇家中心将直接利用两个强大的多学科的现有资源 宾夕法尼亚州的研究中心：姑息和晚期疾病研究（配对）中心和宾夕法尼亚州的记忆 中心。我们还将受益于与宾夕法尼亚的枢纽的行为经济学（该中心 健康激励措施和行为经济学）和生物医学信息学（生物医学研究所 信息学）。为了实现其整体目标，该核心具有七个特定目标，包括：计划，实施和 协调所有中心活动，例如年度研讨会；参与和管理中心的咨询 委员会;与其他LTSS公司开发新的战略合作；发展我们的国家网络 隶属的研究人员致力于改善PWD的住宅姑息治疗；促进与其他 NIA支持的中心；监督数据链接，以增强我们的效果的有效度量 干预措施；并通过协调的通信策略来传播中心的发现。