Admin-Core

管理核心

• 批准号: 9810434
• 负责人: Scott D Halpern
• 金额: $ 46.24万
• 依托单位: UNIVERSITY OF PENNSYLVANIA
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-15 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9810434
• 关键词: Advance Care Planning; Advisory Committees; American; Area; Assisted Living Facilities; Behavior; Behavior Therapy; Behavioral Research; Caregivers; Characteristics; Clinical Research; Collaborations; Committee Members; Communication; Community Health Systems; Data; Data Analytics; Data Linkages; Data Science; Data Set; Dementia; Development; Doctor of Philosophy; Education; Effectiveness; Electronic Health Record; Ensure; Environment; Ethics; Faculty; Fostering; Goals; Grant; Health; Health system; Healthcare; Human Subject Research; Incentives; Infrastructure; Institutes; Interdisciplinary Study; Intervention; Knowledge; Machine Learning; Measurement; Medicare/Medicaid; Memory; Natural Language Processing; Nursing Homes; Outcome Measure; Palliative Care; Pathway Analysis; Patients; Persons; Pilot Projects; Positioning Attribute; Principal Investigator; Private Sector; Problem Solving; Research; Research Personnel; Resource Sharing; Resources; Services; Testing; Translating; Work; advanced disease; behavior test; behavioral economics; biomedical informatics; care systems; career; computing resources; dementia care; design; experience; health care service organization; improved; member; mobile computing; palliative; pragmatic trial; symposium; symptom management

The Management and Administrative Core of this proposed Roybal Center will be led by Overall Principal Investigator Scott Halpern, MD, PhD, with assistance from the other members of the Center's Steering Committee. The central goal of this Core is to provide the infrastructure and expertise necessary to support the design, testing, and dissemination of behavioral interventions that improve palliative care for persons with dementia (PWD) and their caregivers in long-term services and support (LTSS) facilities across the U.S. Several characteristics of the Center and its investigators position us uniquely well to achieve this goal. First, we have partnered with dozens of external, non-academic healthcare organizations during the past decade, and have thus learned how to align our work with institutional priorities, problem-solve in unfamiliar environments, and assist organizations that are not accustomed to conducting research in ensuring appropriate safeguards and human subjects research protections. This experience will enable us to capitalize on our tremendous opportunity to produce generalizable evidence of the effectiveness of scalable interventions by conducting our pilot projects within LTSS facilities owned by Genesis HealthCare, the nation's largest LTSS company. Second, we have considerable experience developing and testing behavioral interventions to improve advance care planning, symptom management, and other palliative care services for PWD in LTSS facilities including nursing homes and assisted-living facilities. Third, several Center investigators are among the world leaders in the design, conduct, and ethics of large, pragmatic trials, particularly trials testing behavioral interventions. Fourth, our investigators include leaders of several other NIA-supported Centers, facilitating collaborations, shared resources, and other efficiencies in conducting impactful research. Finally, this new Roybal Center will directly leverage the existing resources of two robust, multidisciplinary research centers at Penn: the Palliative and Advanced Illness Research (PAIR) Center, and the Penn Memory Center. We will also benefit from formal linkages with Penn's hubs for behavioral economics (the Center for Health Incentives and Behavioral Economics) and biomedical informatics (the Institute for Biomedical Informatics). To achieve its overall goal, this Core has seven specific aims, including to: plan, implement, and coordinate all Center activities such as the annual Symposium; engage and manage the Center's Advisory Committee; develop new strategic collaborations with other LTSS companies; grow our national network of Affiliated Investigators working to improve residential palliative care for PWD; foster collaborations with other NIA-supported Centers; oversee data linkages that will enhance the efficient measurement of the effects of our interventions; and disseminate the Center's findings through a coordinated communications strategy.

该拟议皇家中心的管理和行政核心将由总体负责人领导 研究员 Scott Halpern，医学博士、哲学博士，在中心指导其他成员的协助下 委员会。该核心的中心目标是提供必要的基础设施和专业知识来支持 设计、测试和传播行为干预措施，以改善对患者的姑息治疗 美国各地的长期服务和支持 (LTSS) 机构中的痴呆症患者 (PWD) 及其护理人员 该中心及其研究人员的几个特点使我们能够以独特的方式实现这一目标。 首先，我们过去与数十家外部非学术医疗保健组织合作 十年来，我们学会了如何使我们的工作与机构优先事项保持一致，如何在不熟悉的环境中解决问题 环境，并协助不习惯进行研究的组织确保 适当的保障措施和人类受试者研究保护。这些经验将使我们能够利用 我们有巨大的机会提供可扩展干预措施有效性的普遍证据 通过在美国最大的 LTSS Genesis HealthCare 拥有的 LTSS 设施内开展试点项目 公司。其次，我们在开发和测试行为干预措施方面拥有丰富的经验 改善 LTSS 中残疾人的预先护理计划、症状管理和其他姑息治疗服务 设施包括疗养院和辅助生活设施。第三，多名中心调查员 大型务实试验（尤其是试验测试）的设计、实施和道德规范方面的世界领先者 行为干预。第四，我们的调查人员包括其他几个 NIA 支持的中心的领导者， 促进合作、共享资源和提高开展有影响力的研究的其他效率。 最后，这个新的皇家中心将直接利用两个强大的、多学科的现有资源 宾夕法尼亚大学的研究中心：姑息治疗和晚期疾病研究 (PAIR) 中心和宾夕法尼亚大学记忆中心 中心。我们还将受益于与宾夕法尼亚大学行为经济学中心（行为经济学中心）的正式联系。 健康激励和行为经济学）和生物医学信息学（生物医学研究所 信息学）。为了实现其总体目标，该核心有七个具体目标，包括：计划、实施和 协调所有中心活动，例如年度研讨会；参与和管理中心的咨询 委员会;与其他 LTSS 公司开展新的战略合作；发展我们的全国网络 附属研究人员致力于改善残疾人的住院姑息治疗；促进与其他方面的合作 NIA 支持的中心；监督数据链接，这将增强对我们的影响的有效衡量 干预措施；通过协调一致的传播策略传播中心的调查结果。