Mental Health in Autistic Adults: An RDoC Approach

成人自闭症患者的心理健康：RDoC 方法

• 批准号: 10698088
• 负责人: Kelly Battle Beck
• 金额: $ 31.94万
• 依托单位: UNIVERSITY OF PITTSBURGH AT PITTSBURGH
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-09-06 至 2027-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10698088
• 关键词: Advocate; Ally; Attention; Awareness; Chronic; Clinic; Clinical; Color; Communication; Communities; Continuing Education; Dedications; Diagnosis; Environment; Event; Family; Fellowship Program; Female; Festival; Financial Support; Generations; Inequity; Intellectual functioning disability; International; Manuscripts; Mental Health; Methods; Minority-Serving Institution; Photography; Primary Care; Procedures; Production; Provider; Psychiatric Hospitals; Publishing Peer Reviews; Research; Research Domain Criteria; Research Personnel; Research Priority; Resources; Role; Rural; Sampling; Scholarship; Science; Scientist; Secondary Schools; Series; Services; Speed; Students; Training; Training Activity; Translational Research; Twitter; Universities; Visit; Vocational rehabilitation; Voice; Work; Writing; adult with autism spectrum disorder; autism spectrum disorder; autistic; career; career development; community center; community engagement; community partnership; cost; disadvantaged background; ethnic identity; experience; graduate student; health disparity; health inequalities; individuals with autism spectrum disorder; innovation; interest; intersectionality; marginalization; member; minority investigator; novel; primary care provider; racial identity; racial population; recruit; research in practice; research to practice; sex; social; social media; success; suicidal risk; symposium; undergraduate student; web site

ABSTRACT– Dissemination and Partnership Core The Dissemination and Partnership Core uses novel participatory methods to engage the autistic community while simultaneously developing the careers of researchers from diverse backgrounds and lived experiences. In these efforts, the primary aims of the Dissemination and Partnership Core are to: (1) Establish and convene the Autistic Partners Group to enhance all Center community engagement, dissemination, and training activities. We will use participatory methods to establish the Autistic Partners Group, a team of diverse autistic community members that will partner with investigators for all community engagement, dissemination, and training efforts. Convening of the Autistic Partners Group will be co-facilitated by a researcher and autistic community leader ten times annually; (2) Create an inclusive and supportive research environment that attends to intersectionality and prioritizes engaging diverse autistic adults and their allies. Using messaging co- developed in our Autistic Partners Group (Specific Aim 1), we will engage with community partners to prioritize participation by autistic adults from groups that have been marginalized (e.g. racial and ethnic identities, female sex, LGBTQIA+ community, intellectual disability, and rural and under-resourced communities). Using established partnerships, we will engage in community activities, such as ‘pop-up’ events and registering a booth at the local Pride festival, to increase visibility and enhance recruitment efforts in intersectional communities; (3) Partner with autistic adults to co-develop materials for disseminating research to autistic and neurodiverse communities. We will partner with local autistic adults to co-develop dissemination materials (e.g. infographics; photographic representation; videography; social stories; the Center website) to distribute in the community; (4) Speed the translation of research to practice by disseminating findings to community-based providers serving autistic adults. Each year, we will host a continuing education seminar series on mental health and suicide risk of autistic adults across 4 different practitioner settings (i.e. psychiatric hospitals, primary care providers, post-secondary education and vocational rehabilitation, and community mental health clinics); (5) Enhance the scientific community by disseminating our research of impact broadly; and (6) Enhance diversity in the autism scientific community by developing careers of students and early career investigators. We will facilitate monthly Center-wide career development seminars and writing clubs for all Center trainees, with an emphasis on supporting new investigators from diverse and disadvantaged backgrounds. The Dissemination and Partnership core will work together with the Clinical Core to prioritize research participation by autistic adults from groups that have been marginalized. This will simultaneously expand and strengthen our community partnerships while enhancing recruitment of diverse autistic adults. This participatory approach will address existing structural inequities in autism research, by centering the voices of the autistic community and increasing diversity in sampling pools and among scientific researchers.

摘要 - 传播和伙伴关系核心 传播和伙伴关系核心使用新颖的参与方法来吸引自闭症社区 同时，从潜水员背景和生活经验中发展研究人员的职业。 在这些努力中，传播和伙伴关系核心的主要目的是：（1）建立和便利 自闭症合作伙伴小组，以增强所有中心社区的参与，传播和培训 活动。我们将使用参与方法建立自闭症伴侣小组，这是一个自闭症的团队 社区成员将与调查人员合作进行所有社区参与，传播以及 培训工作。自闭症伴侣小组的召集将由研究人员共同提出，并加速 社区领袖每年十次； （2）创建一个包容性和支持性的研究环境 交叉性并优先考虑吸引多样性的成年人及其盟友。使用消息共同 在我们的自闭症合作伙伴小组中开发（特定目标1），我们将与社区合作伙伴互动以优先考虑 来自被边缘化的团体的积极成年人参与（例如，种族和种族身份， 女性，LGBTQIA+社区，智力残疾以及资源不足的社区）。使用 建立的合作伙伴关系，我们将从事社区活动，例如“弹出”活动并注册 展位在当地的骄傲节上，以提高可见度并提高交叉点的招聘工作 社区； （3）与加速成年人合作，共同开发材料，以传播研究以加速和 神经多样社区。我们将与当地加速成年人合作，共同开发传播材料（例如 信息图表；摄影代表；摄影；社交故事；中心网站） 社区; （4）通过将发现传播给基于社区的发现来加快研究为实践的转化 提供加速成年人的提供者。每年，我们都会举办一个关于心理的继续教育精神系列 在4种不同的从业人员环境中的健康和自杀风险（即精神病医院， 初级保健提供者，专上教育和职业康复以及社区心理健康 诊所）; （5）通过广泛传播我们对影响的研究来增强科学界； （6） 通过发展学生和早期职业的职业来增强自闭症科学界的多样性 调查人员。我们将为所有人都喜欢每月的中心职业发展中心和写作俱乐部 中心学员，重点是支持来自多元化和灾难的新调查员 背景。传播和伙伴关系核心将与临床核心合作以优先考虑 加速成年人的研究参与了被边缘化的群体。这将简单 扩展和加强我们的社区伙伴关系，同时增强潜水员自闭症成年人的招募。这 参与方法将通过居中来解决自闭症研究中现有的结构不平等现象 自闭症社区和采样池和科学研究人员的多样性增加。