Patient Awareness and Consumer Education Research Cente*

患者意识和消费者教育研究中心*

基本信息

批准号：
7799255
负责人：
Maria E Suarez-Almazor
金额：
$ 78.95万
依托单位：
UNIVERSITY OF TX MD ANDERSON CAN CTR
依托单位国家：
美国
项目类别：
财政年份：
2006
资助国家：
美国
起止时间：
2006-04-14 至 2012-03-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/7799255
关键词：
Patient Awareness Consumer Education Research

项目摘要

Consumers' knowledge, values, and preferences are being recognized as drivers of health care utilization. With the therapeutic advances in the last decades, there are usually multiple options for a given clinical problem with different risk-benefit ratios; yet, patients spend less and less time with their physicians, and often get information from alternate sources, such as the media or direct-to-consumer advertising. We propose the creation of a comprehensive interdisciplinary Patient Awareness and Consumer Education Research Center with an overarching vision of supporting and empowering consumers of healthcare through informed decision-making. The mission of the RC will be to develop a program of excellence to improve consumers' awareness of the benefits and risks of therapeutics through research, education, and dissemination, targeting consumers and their providers. Our strategic plan for the next five years has the following specific aims: Aim 1 To establish the infrastructure for an interdisciplinary RC of excellence to conduct and support research and educational initiatives related to health communication for patients and consumers. Aim 2 To develop a comprehensive research program to evaluate methods, application and outcomes of health communication strategies. This aim will be achieved by: (i) Developing the methodological infrastructure to support investigator-initiated efforts in these areas (e.g. assistancewith grant proposals, collaborative efforts, contribution of resources); (ii) Conducting four demonstration projects Aim 3 To establish a Consumer Health Advisory Information Network (CHAIN) to deploy a system for rapid response to emerging therapeutic issues. Aim 4 To disseminate and implement the information developed by the RC. These operationalaims will be achieved through the creation of three cores within the RC: (i) Research and Training Core; (ii) Methods Core; and (iii) Education and Dissemination Core (including CHAIN). We have identified four major themes which will guide our strategic research, education and dissemination plan: (i) Health communication and consumer education; (ii)Clinician-patient interactions; (iii) Health decision-making; and (iv) Patient adherence to therapeutic recommendations.

消费者的知识，价值和偏好被认为是医疗保健利用的驱动因素。在过去几十年中的治疗进展中，给定的临床通常有多种选择不同风险效益比的问题；然而，患者与医生的时间越来越少，并且通常会从媒体或直接面向消费者广告等替代来源获取信息。我们提出创建全面的跨学科患者意识和消费者教育研究中心具有总体愿景，可以通过支持和赋予医疗保健消费者的能力明智的决策。 RC的任务将是制定一项卓越计划以改进消费者通过研究，教育和传播，针对消费者及其提供者。我们接下来五年的战略计划具有遵循特定目的：目标1建立卓越跨学科RC进行和支持的基础设施与患者和消费者的健康沟通有关的研究和教育计划。目标2制定一项全面的研究计划，以评估方法，应用和结果健康沟通策略。该目标将通过：（i）开发方法论支持研究人员在这些领域启动的努力的基础设施（例如，授予赠款建议，协作努力，资源的贡献）；（ii）进行四个示范项目目标3建立消费者健康咨询信息网络（链），以快速部署系统对新兴治疗问题的反应。目标4以传播和实施RC开发的信息。这些操作将通过在RC中创建三个核心来实现：（i）研究和训练核心；（ii）方法核心；（iii）教育和传播核心（包括链）。我们已经确定了四个主要主题，这些主题将指导我们的战略研究，教育和传播计划：（i）健康沟通和消费者教育；（ii）临床医生患者相互作用；（iii）健康决策; （iv）患者遵守治疗建议。

项目成果

期刊论文数量（8）

专著数量（0）

科研奖励数量（0）

会议论文数量（0）

专利数量（0）

High burden of rheumatic disease in Mexico: a comprehensive community-based epidemiological study.

墨西哥风湿病的高负担：一项基于社区的综合流行病学研究。

DOI：
10.3899/jrheum.101211
发表时间：
2011
期刊：
The Journal of rheumatology
影响因子：
0
作者：
Suarez-Almazor,MariaE
通讯作者：
Suarez-Almazor,MariaE

Effect of a clinic-wide social marketing campaign to improve adherence to antiretroviral therapy for HIV infection.

DOI：
10.1007/s10461-012-0295-x
发表时间：
2013-01
期刊：
AIDS AND BEHAVIOR
影响因子：
4.4
作者：
Giordano, Thomas P.;Rodriguez, Sonia;Zhang, Hong;Kallen, Michael A.;Jibaja-Weiss, Maria;Buscher, April L.;Arya, Monisha;Suarez-Almazor, Maria E.;Ross, Michael
通讯作者：
Ross, Michael

Problems in transition and quality of care: perspectives of breast cancer survivors.

DOI：
10.1007/s00520-010-1031-6
发表时间：
2011-12
期刊：
SUPPORTIVE CARE IN CANCER
影响因子：
3.1
作者：
Roundtree, Aimee Kendall;Giordano, Sharon H.;Price, Andrea;Suarez-Almazor, Maria E.
通讯作者：
Suarez-Almazor, Maria E.

Multiple hepatic artery aneurysms in a patient with systemic lupus erythematosus.

系统性红斑狼疮患者的多发性肝动脉瘤。