Recruitment Accelerator for Diversity in Aging Research, Cognitive Loss and Dementia (RADAR-CLD)

老龄化研究、认知丧失和痴呆症多样性招募加速器 (RADAR-CLD)

• 批准号: 10322418
• 负责人: Mary Sano
• 金额: $ 57.48万
• 依托单位: ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-02-15 至 2023-11-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10322418
• 关键词: Active Listening; Address; Advocate; Aging; Alzheimer' s Disease; Area; Budgets; Caregivers; Characteristics; Clinical Research; Clinical Trials; Clinical and Translational Science Awards; Communication; Communities; Community Integration; Competence; Decision Making; Dementia; Development; Diagnosis; Documentation; Education and Outreach; Educational Curriculum; Effectiveness; Elderly; Enrollment; Ensure; Environment; Evaluation; Family; Feedback; Fostering; Funding; Geriatrics; Goals; Health Policy; Impaired cognition; Individual; Industry; Infrastructure; Job Description; Location; Manuals; Methods; Modeling; Monitor; Needs Assessment; New York City; Outcome; Participant; Patients; Plant Roots; Population; Positioning Attribute; Prevention; Process; Public Advocacies; Public Health; Research; Research Design; Research Personnel; Research Proposals; Resources; Risk; Role; Schedule; Science; Site; Source; System; Time; Training; Training Programs; Trust; United States National Institutes of Health; Work; Workforce Development; base; cohort; collaboratory; community based participatory research; community involvement; cost; effectiveness evaluation; effectiveness research; experience; improved; innovation; meetings; member; novel; outreach; recruit; research and development; research study; shared decision making; skills; success; tool; workforce needs

PROJECT SUMMARY/ABSTRACT The fastest growing segments of older adults include those from groups that have traditionally been underrepresented in research studies. Those conducting research in aging need understanding of how to engage with communities as partners to develop research proposals and recruitment strategies that motivate and sustain participants from these groups. Many approaches to recruitment focus on identifying large pools of potential participants and “trial ready cohorts” of pre-screened individuals. These approaches do not yet have established success in aging populations and the platforms used to reach these large numbers may have limited value in aging and diverse cohorts, which depend on trusted sources to make decisions. Our project will develop, evaluate, and document a replicable process for creating the capacity and infrastructure for community-involvement necessary for ensuring enrollment goals of aging studies can be achieved and establishing the approaches by which to do so. Building on the established model for cultivating and leveraging collaboratory teams across scientific and non-scientific divides to address issues of equity in specific research areas, this project will develop, evaluate and disseminate a Recruitment Accelerator for Diversity in Aging Research, Cognitive Loss and Dementia (RADAR-CLD) at Mount Sinai and SUNY Upstate. Both the NYC and Syracuse sites have strong community partners and establishing the project in New York City and Syracuse allows an evaluation of the effectiveness of the Community Research Liaison (CRL) and Accelerator model in two distinct communities. The Accelerators will focus on the topic of recruiting and retaining diverse, older adults with or at risk for cognitive loss with application to NIH-funded studies. The project includes workforce development to create a novel professional, the CRL, not previously recognized in clinical trial staffing, who will be uniquely trained to maximize research participation by connecting the community and research partners through the Accelerator activities. The CRL will assemble collaborative teams including community seniors, patients, advocates, caregivers, families, clinicians, funders, public health and advocacy professionals, research teams and industry to be prepared with skills for effective group dynamics by the CRL and may create established networks for recruitment education and outreach. Accelerator meetings around specific NIH-studies will be organized and Accelerator-recommended, stakeholder-led projects will be supported by RADAR-CLD funds, with outcomes on recruitment, retention and participation diversity documented. Manuals of materials and methods for developing and sustaining the CRL professional and Accelerator infrastructure will be disseminated for implementation at other sites. Documentation of process and establishment of models of cost and time will allow appropriate allocation of budgets toward sustainability of the proposed CRL capacity, Accelerator infrastructure and innovative engagement activities for promoting diverse participation in aging research.

项目概要/摘要 增长最快的老年人群体包括那些传统上处于弱势群体的群体。 从事老龄化研究的人需要了解如何进行研究。 作为合作伙伴与社区合作，制定研究提案和招募策略，以激励 并维持这些群体的参与者。许多招募方法都侧重于确定大量的参与者。 这些方法还没有对潜在参与者和预先筛选的个体进行“试验准备队列”。 在人口老龄化方面取得的成功以及用于接触这些大量人口的平台可能已经 老龄化和多样化人群的价值有限，我们的项目将依赖于可靠的来源来做出决策。 开发、评估和记录可复制的流程，以创建能力和基础设施 确保实现老龄化研究的招生目标所必需的社区参与，以及 以已建立的培养和利用模式为基础，建立实现这一目标的方法。 跨越科学和非科学分歧的协作团队，解决特定研究中的公平问题 该项目将开发、评估和传播老龄化多元化招聘加速器 西奈山大学和纽约州立大学北部分校的认知丧失和痴呆症研究 (RADAR-CLD)。 和锡拉丘兹站点拥有强大的社区合作伙伴，并在纽约市建立了该项目 雪城允许评估社区研究联络 (CRL) 和加速器的有效性 加速器将在两个不同的社区中重点关注招聘和留住多元化的主题。 患有认知丧失或有认知丧失风险的老年人适用于 NIH 资助的研究。 劳动力发展以创建一种新颖的专业人员，即 CRL，以前在临床试验中未得到认可 人员配置，他们将接受独特的培训，通过连接社区和社区来最大限度地提高研究参与度 CRL 将通过加速器活动组建合作团队，包括： 社区老年人、患者、倡导者、护理人员、家庭、人群、资助者、公共卫生和倡导者 专业人士、研究团队和行业通过 CRL 做好有效团队动力的技能准备 并可以围绕招聘教育和推广会议建立既定网络。 将组织具体的 NIH 研究，并将加速器推荐的、利益相关者主导的项目 由 RADAR-CLD 基金支持，在招聘、保留和参与多样性方面取得成果 记录用于开发和维持 CRL 专业人员的材料和方法手册。 加速器基础设施将被传播以在其他站点实施。 建立成本和时间模型将能够适当分配预算，以实现可持续发展 拟议的 CRL 能力、加速器基础设施和创新参与活动，以促进 多元化参与老龄化研究。

项目成果

Psychogeriatrics in a world with COVID-19.

COVID-19 世界中的老年心理医学。

• 发表时间: 2020
• 影响因子: 7
• 作者: Sano, Mary;Lapid, Maria I;Ikeda, Manabu;Mateos, Raimundo;Wang, Huali;Reichman, William E
• 通讯作者: Reichman, William E

Evaluating memory testing to distinguish dementia severity among White, Black, and Spanish-speaking individuals in the Uniform Data Set (UDS).

评估记忆测试，以区分统一数据集 (UDS) 中白人、黑人和西班牙语个体的痴呆症严重程度。

• 发表时间: 2023-08
• 作者: Loizos, Maria;Zhu, Carolyn W;Akrivos, Jimmy;Sewell, Margaret;Li, Clara;Neugroschl, Judith;Melnick, Jonah;Ljekocevic, Martin;Martin, Jane;Grossman, Hillel;Aloysi, Amy;Schimming, Corbett;Sano, Mary
• 通讯作者: Sano, Mary

Multisectoral Collaborations to Increase Recruitment and Retention of Diverse Older Adults in Biomedical Research.

多部门合作，增加生物医学研究中不同老年人的招募和保留。

• 发表时间: 2024-03-01
• 作者: Wong, Roger;Grullon, Jason R;McNamara, Sarah E;Smith, Nancy H;Dillenbeck, Colleen A;Royal, Kathy;Brangman, Sharon A
• 通讯作者: Brangman, Sharon A

Achieving diversity in study populations: The importance of community engagement.

实现研究人群的多样性：社区参与的重要性。

• 发表时间: 2022-11
• 影响因子: 6.3
• 作者: Brangman, Sharon A.