2023 Pediatric Dermatology Research Alliance (PeDRA) Annual Conference

2023年小儿皮肤病学研究联盟（PeDRA）年会

• 批准号: 10827095
• 负责人: Lisa Arkin
• 金额: $ 7.22万
• 依托单位: PEDIATRIC DERMATOLOGY RESEARCH ALLIANCE, INC
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-09-18 至 2024-09-21
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10827095
• 关键词: Acceleration; Address; Advocate; Area; Attention; Automobile Driving; Caregivers; Caring; Child; Child Welfare; Childhood; Clinical; Collaborations; Data; Dermatologic; Dermatology; Discipline; Disease; Disease Management; Education; Educational workshop; Exposure to; FDA approved; Family; Foundations; Future; Goals; Growth; Health; Industry; Institution; Journals; Longevity; Mentors; Mission; Natural History; Oral; Outcome; Patients; Persons; Physicians; Productivity; Publications; Research; Research Personnel; Research Priority; Research Project Grants; Role; Science; Scientist; Standardization; Strategic Planning; Subgroup; Therapeutic; Time; Training; Treatment Protocols; United States National Institutes of Health; Update; Vision; Well in self; Work; career; comorbidity; empowerment; equity, diversity, and inclusion; evidence based guidelines; healing; improved; infancy; innovation; interest; knowledge base; lectures; medical specialties; meetings; mobile application; posters; prevent; research and development; skills; skin disorder; social; success; symposium; therapeutic development; training opportunity

PROJECT SUMMARY Pediatric dermatology is a relatively young specialty that has lacked robust data about the natural history and long-term outcomes of skin disorders that begin in infancy and childhood. In addition, evidence-based guidelines of care, standardized treatment protocols, and FDA-approved therapies for the majority of pediatric dermatologic disorders are sparse. The Pediatric Dermatology Research Alliance (PeDRA) was founded in 2012 to address these crucial yet unmet needs. PeDRA's primary mission is to create, inspire, and sustain research to prevent, treat, and cure childhood skin disease. The long-term goal of PeDRA is to leverage such research to improve the health outcomes of children with skin disorders. Annual conferences have been integral to the success of PeDRA, providing a forum for educating investigators, identifying and prioritizing research needs and opportunities, and developing and initiating innovative projects. A combination of didactic lectures and panels, expert-led small group discussions, poster sessions, and unique training opportunities are the foundation of every PeDRA Annual Conference. This proposal is for the 11th PeDRA Annual Conference, set to take place in November of 2023 with the following aims: 1) Provide education and engagement opportunities with a focus on patient-centricity, innovation, and cross-cutting collaboration to advance science, while integrating equity, diversity, and inclusion across pediatric dermatology research; 2) Advance existing research projects and develop new research priorities and initiatives in disease-areas and high-priority topics spanning the field of pediatric dermatology; and 3) Provide a forum for the dissemination of final and ongoing research results from a broad group of investigators to a diverse audience that includes patient stakeholders, industry representatives, and researchers from multiple fields including potential NIH collaborators. The expected outcomes of this conferrencer are a more developed set of research skills for current and future physician-scientists, enhanced productivity, strengthened multi-stakeholder networks, and the conduct of high- quality research. These activities will accelerate the pace of pediatric dermatology research, allowing clinicians to better understand, prevent and treat skin disease in children, and giving patients and families options to manage diseases and make informed treatment decisions in the future.

项目概要 小儿皮肤病学是一个相对年轻的专业，缺乏有关自然史和相关研究的可靠数据。 从婴儿期和儿童期开始的皮肤病的长期后果。此外，基于证据的 针对大多数儿科患者的护理指南、标准化治疗方案以及 FDA 批准的疗法 皮肤病很少见。小儿皮肤病学研究联盟 (PeDRA) 成立于 2012 年解决这些关键但未满足的需求。 PeDRA 的首要使命是创造、激励和维持 研究预防、治疗和治愈儿童皮肤病。 PeDRA 的长期目标是利用这些 旨在改善患有皮肤病的儿童的健康结果的研究。年会已 PeDRA 的成功不可或缺，为教育调查人员、识别和确定优先顺序提供了一个论坛 研究需求和机会，以及开发和启动创新项目。教学相结合 讲座和小组讨论、专家主导的小组讨论、海报会议以及独特的培训机会 每届 PeDRA 年会的基础。该提案适用于第 11 届 PeDRA 年会， 定于 2023 年 11 月举行，目标如下：1) 提供教育和参与 注重以患者为中心、创新和跨领域合作来推动科学发展的机会， 同时整合儿科皮肤病学研究的公平性、多样性和包容性； 2) 推进现有的 研究项目并制定疾病领域和高优先主题的新研究重点和举措 跨越儿科皮肤科领域； 3) 提供一个论坛来传播最终的和正在进行的 研究结果由广泛的研究人员群体提供给包括患者利益相关者在内的不同受众， 行业代表以及来自多个领域的研究人员，包括潜在的 NIH 合作者。这 这位会议者的预期成果是为当前和未来提供一套更成熟的研究技能 医师科学家、提高生产力、加强多方利益相关者网络以及开展高水平研究 质量研究。这些活动将加快儿科皮肤病学研究的步伐，使临床医生能够 更好地了解、预防和治疗儿童皮肤病，并为患者和家庭提供选择 管理疾病并在未来做出明智的治疗决策。