Mapping the Dynamics of Caregiver Burden in Alzheimer's Disease

绘制阿尔茨海默病护理人员负担的动态图

• 批准号: 10443754
• 负责人: Alissa Bernstein Sideman
• 金额: $ 13.04万
• 依托单位: UNIVERSITY OF CALIFORNIA, SAN FRANCISCO
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-06-15 至 2025-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10443754
• 关键词: Address; Aging; Alzheimer' s Disease; Anthropology; Applications Grants; Applied Research; Area; Behavior Therapy; Behavioral Mechanisms; California; Cardiovascular Diseases; Caregiver Burden; Caregiver support; Caregiver well-being; Caregivers; Caring; Communities; Counseling; Data; Data Analyses; Data Sources; Dementia; Disease; Doctor of Philosophy; Domestic Partners; Education; Elderly; Emotional; Engineering; Environment; Environmental Risk Factor; Ethnography; Family Caregiver; Family member; Fostering; Friends; Future; Geographic Information Systems; Geography; Goals; Health; Health Policy; Hearing; Home; Individual; Institution; Interdisciplinary Study; Intervention; Interview; K-Series Research Career Programs; Knowledge; Loneliness; Maps; Medical; Mental Depression; Mentors; Mentorship; Methods; Movement; Outcome; Personal Satisfaction; Persons; Physical activity; Pilot Projects; Policies; Provider; Public Health; Quality of life; Research; Research Methodology; Research Personnel; Research Project Grants; Research Training; Resources; Risk; Sampling; San Francisco; Science; Scientist; Services; Social Network; Social Sciences; Social isolation; Social support; Spouse Caregiver; Spouses; Surveys; Techniques; Technology; Time; Training; Typology; United States; Universities; Visual; Wages; base; behavior change; care giving burden; career; caregiving; clinical practice; community setting; dementia risk; emotional experience; environmental intervention; experience; follow-up; high risk; improved; innovation; mortality; multidisciplinary; novel strategies; resilience; skill acquisition; skills; social; social contact; social culture; social factors; social interventions; therapy design; tool

SUMMARY AND ABSTRACT In this Mentored Research Scientist Career Development Award (K01) Mapping the Dynamics of Caregiver Burden in Alzheimer's Disease, medical anthropologist and health policy researcher Dr. Alissa Bernstein, PhD, MPH, based at the University of California, San Francisco, requests research and salary support to provide protected time and dedicated mentored training in her transition to becoming an independent investigator. Dr. Bernstein's goal is to build the skills and knowledge required to become an independent investigator who can use mixed methods to understand and address challenges that occur at the intersection of clinical practice, the community, and policy in dementia. The research project proposed in this application focuses on the challenge of caregiver wellbeing as a first step towards her long-term career objective. Through the project, Dr. Bernstein aims to integrate knowledge about the social and environmental conditions of caregivers of individuals with Alzheimer's disease into understandings of caregiver burden, resilience, and resource use. To become an independent researcher, Dr. Bernstein will be supported by an outstanding mentorship team of clinicians and social scientist researchers at UCSF, a world-class research and training institution with a strong commitment to multidisciplinary research and clinical practice focused on dementia, aging, and caregiving. Dr. Bernstein will utilize these resources to develop knowledge and skills in the following areas through coursework, seminars, mentored tutorials, and practical experience: (1) Geographic Information Systems (GIS) technology; (2) Advanced mixed-methods research and data analysis; (3) The science of caregiving in dementia; (4) Professional advancement skills required for independence. Using these skills, the proposed research assesses the social and emotional experiences and spatial movement of caregivers of people with Alzheimer's disease (AD) in the home and community. Over 15 million family members or friends provide care for individuals with AD or other dementias in the U.S. Many caregivers experience caregiver burden, and are at a high risk for social isolation and loneliness, all of which can have negative impacts on health and wellbeing. Yet, only a quarter of caregivers access support resources. We do not fully understand how to intervene in caregivers' experiences in the home and community to reduce burden. The proposed research will be conducted amongst spousal caregivers of people with AD through the following research aims: (1) Map and analyze the objective spatial activity of family caregivers living with people with Alzheimer's disease; (2) Examine and characterize family caregivers' subjective social networks and emotional experiences; and (3) Create and analyze integrated visual representations of objective spatial data and subjective social experiences to identify potential interventions. This research will provide guidance in designing interventions integrating qualitative and spatial analyses to improve caregiver wellbeing.

总结和摘要 在这个指导研究科学家职业发展奖（K01）中绘制护理人员的动态 阿尔茨海默病的负担，医学人类学家和卫生政策研究员 Alissa Bernstein 博士， 位于旧金山加利福尼亚大学的 MPH 请求研究和薪资支持，以提供 在她向独立调查员过渡的过程中，她获得了受保护的时间和专门的指导培训。博士。 伯恩斯坦的目标是培养成为一名独立调查员所需的技能和知识，使他能够 使用混合方法来理解和解决临床实践、 痴呆症的社区和政策。本申请中提出的研究项目侧重于挑战 照顾者的福祉作为实现长期职业目标的第一步。通过该项目，伯恩斯坦博士 旨在将有关个人照顾者的社会和环境条件的知识与 将阿尔茨海默病纳入对护理人员负担、复原力和资源利用的理解。 为了成为一名独立研究员，伯恩斯坦博士将得到优秀的导师团队的支持 加州大学旧金山分校 (UCSF) 的临床医生和社会科学家研究人员是世界一流的研究和培训机构，拥有强大的 致力于多学科研究和临床实践，重点关注痴呆症、衰老和护理。博士。 伯恩斯坦将利用这些资源通过以下方式发展以下领域的知识和技能： 课程作业、研讨会、指导教程和实践经验：(1) 地理信息系统 (GIS) 技术; (2) 先进的混合方法研究和数据分析； (3) 护理科学 失智; (4) 独立所需的专业进步技能。 利用这些技能，拟议的研究评估了社会和情感体验以及空间 阿尔茨海默病 (AD) 患者的护理人员在家庭和社区中的流动。超过1500万 在美国，家庭成员或朋友为 AD 或其他痴呆症患者提供护理 许多护理人员 经历照顾者的负担，并且面临社会孤立和孤独的高风险，所有这些都可能导致 对健康和福祉的负面影响。然而，只有四分之一的护理人员可以获得支持资源。我们做 不完全了解如何干预护理人员在家庭和社区的经历以减轻负担。 拟议的研究将通过以下方式在 AD 患者的配偶照顾者中进行 研究目的：（1）绘制并分析与患有此类疾病的人一起生活的家庭照顾者的客观空间活动 阿尔茨海默病； (2) 考察并表征家庭照顾者的主观社交网络和情绪 经验； (3) 创建和分析客观空间数据的综合视觉表示 主观社会经验以确定潜在的干预措施。这项研究将提供指导 设计整合定性和空间分析的干预措施，以改善护理人员的福祉。