Testing the Pediatric Cardiac Quality of Life Inventory

测试儿科心脏生活质量量表

基本信息

  • 批准号:
    7541437
  • 负责人:
  • 金额:
    $ 16.03万
  • 依托单位:
  • 依托单位国家:
    美国
  • 项目类别:
  • 财政年份:
    2005
  • 资助国家:
    美国
  • 起止时间:
    2005-02-10 至 2010-12-31
  • 项目状态:
    已结题

项目摘要

DESCRIPTION (provided by applicant): This proposal will support the development of Dr. Bradley S. Marino into an independent physician scientist in patient-oriented research. The candidate's early work as a clinical investigator has focused on outcomes in pediatric cardiovascular disease. With the support of Dr. Anne Kazak and other mentors, Dr. Marino has created a program of formal coursework and individual tutorials to be completed over a 5-year period. The coursework in epidemiology, health measurement, child development, and family dynamics will improve his skills in outcomes research and his understanding of child psychology and patient-family interactions. Cardiac disease is the most common congenital defect found in children. Mortality rates for pediatric heart disease have fallen over the last two decades. Morbidity related to the specific cardiac abnormality and the medical and surgical treatment received by the child have physical and psychological effects on the child and family that may have an adverse effect on their quality of life (QOL). Dr. Marino has recently completed the development of the Pediatric Cardiac Quality of Life Inventory (PCQLI), and he proposes to extend this research and test the scores of the PCQLI in a multi-center, multi-national study in the United States (U.S.) and the United Kingdom (U.K.) in children (age 8-12 years old) and adolescents (age 13-18 years old) with heart disease. This study has four specific aims: Aim 1" To demonstrate the reliability of the scores generated by the PCQLI. Aim 2: To demonstrate the validity of the scores generated by the PCQLI. Aim 3: To demonstrate responsiveness to chanqe of the scores generated by the PCQLI. Aim 4: To demonstrate that the present form of the PCQLI is generalizable to the other U.S. and U.K sites. When shown to be reliable, valid, responsive to change, and generalizable, the PCQLI will be a valuable new tool for both clinicians and researchers to assess QOL in pediatric heart disease, and will allow for QOL comparisons between the pediatric cardiac populations in the U.S. and the U.K. The proposed didactic and research experiences described will ensure that Dr. Marino becomes an independent physician scientist in the field of pediatric cardiovascular outcomes research.
描述(由申请人提供):该提案将支持 Bradley S. Marino 博士发展成为以患者为导向的研究领域的独立医师科学家。该候选人作为临床研究者的早期工作重点是儿科心血管疾病的结果。在 Anne Kazak 博士和其他导师的支持下,Marino 博士创建了一个包含正式课程和个人教程的计划,将在 5 年内完成。流行病学、健康测量、儿童发展和家庭动态方面的课程将提高他在结果研究方面的技能以及对儿童心理学和患者与家庭互动的理解。 心脏病是儿童中最常见的先天性缺陷。过去二十年来,小儿心脏病的死亡率有所下降。与特定心脏异常相关的发病率以及儿童接受的药物和手术治疗会对儿童和家庭产生身心影响,可能对其生活质量 (QOL) 产生不利影响。 Marino 博士最近完成了儿科心脏生活质量量表 (PCQLI) 的开发,他提议扩展这项研究,并在美国 (U.S. )和英国(U.K.)针对患有心脏病的儿童(8-12 岁)和青少年(13-18 岁)。本研究有四个具体目标: 目标 1:证明 PCQLI 生成的分数的可靠性。目标 2:证明 PCQLI 生成的分数的有效性。目标 3:证明对 PCQLI 生成的分数变化的响应能力目标 4:证明 PCQLI 的当前形式可以推广到美国和英国的其他网站。 当 PCQLI 被证明是可靠、有效、对变化敏感且可推广时,它将成为临床医生和研究人员评估儿科心脏病 QOL 的宝贵新工具,并将允许对美国儿科心脏病人群之间的 QOL 进行比较。和英国所描述的拟议教学和研究经验将确保马里诺博士成为儿科心血管结果研究领域的独立医师科学家。

项目成果

期刊论文数量(6)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
Behavioral and Emotional Outcomes in Children with Congenital Heart Disease: Effects of Disease Severity, Family Life Stress, Disease-Related Chronic Stress, and Psychosocial Adaptation.
先天性心脏病儿童的行为和情绪结果:疾病严重程度、家庭生活压力、疾病相关的慢性压力和心理社会适应的影响。
  • DOI:
    10.1016/j.jpeds.2023.113450
  • 发表时间:
    2023
  • 期刊:
  • 影响因子:
    0
  • 作者:
    Cassedy,Amy;Wray,Jo;Qadir,AsadA;Ernst,MichelleM;Brown,Katherine;Franklin,Rodney;Wernovsky,Gil;Marino,BradleyS
  • 通讯作者:
    Marino,BradleyS
External validity of the pediatric cardiac quality of life inventory.
  • DOI:
    10.1007/s11136-010-9731-4
  • 发表时间:
    2011-03
  • 期刊:
  • 影响因子:
    3.5
  • 作者:
    Marino, Bradley S.;Drotar, Dennis;Cassedy, Amy;Davis, Richard;Tomlinson, Ryan S.;Mellion, Katelyn;Mussatto, Kathleen;Mahony, Lynn;Newburger, Jane W.;Tong, Elizabeth;Cohen, Mitchell I.;Helfaer, Mark A.;Kazak, Anne E.;Wray, Jo;Wernovsky, Gil;Shea, Judy A.;Ittenbach, Richard
  • 通讯作者:
    Ittenbach, Richard
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Bradley Scott Marino其他文献

Bradley Scott Marino的其他文献

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{{ truncateString('Bradley Scott Marino', 18)}}的其他基金

Testing the Pediatric Cardiac Quality of Life Inventory
测试儿科心脏生活质量量表
  • 批准号:
    7016369
  • 财政年份:
    2005
  • 资助金额:
    $ 16.03万
  • 项目类别:
Testing the Pediatric Cardiac Quality of Life Inventory
测试儿科心脏生活质量量表
  • 批准号:
    7338321
  • 财政年份:
    2005
  • 资助金额:
    $ 16.03万
  • 项目类别:
Testing the Pediatric Cardiac Quality of Life Inventory
测试儿科心脏生活质量量表
  • 批准号:
    6856047
  • 财政年份:
    2005
  • 资助金额:
    $ 16.03万
  • 项目类别:

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