Administrative Data Transfer Masking, Access, and Ethics Core

管理数据传输屏蔽、访问和道德核心

基本信息

批准号：
10774554
负责人：
STEVEN C MARCUS
金额：
$ 89.81万
依托单位：
UNIVERSITY OF MICHIGAN AT ANN ARBOR
依托单位国家：
美国
项目类别：
财政年份：
2023
资助国家：
美国
起止时间：
2023-09-30 至 2028-08-31
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10774554
关键词：
Aging Alzheimer&apos s disease related dementia Area Assisted Living Facilities Automobile Driving Caring Censuses Certification Cessation of life Characteristics Clinical Collaborations Communities Data Data Collection Data Linkages Data Security Data Set Data Sources Dementia Discipline of Nursing Electronic Health Record Ensure Environment Ethics Family Goals Guidelines Health Personnel Health Resources Health Services Accessibility Health Status Healthcare Home Hospitals Individual Institution Investments Leadership Licensing Link Long-Term Care Measures Medicaid Medicare Medicare/Medicaid Nurses Nursing Homes Outcome Patient-Focused Outcomes Patients Persons Physicians Policies Policy Maker Population Privacy Process Process Assessment Provider Public Health Quality of Care Research Research Personnel Resources Respondent Role Source Spouses Surveys Training Variant Work care delivery care outcomes care providers clinical care community based service community setting data access data exchange data infrastructure data privacy data resource dementia care demographics health care service utilization improved insight insurance claims patient home care practice setting preservation privacy protection

项目摘要

ABSTRACT: Administrative Data Transfer, Masking, Access, and Ethics Core The National Dementia Workforce Study (NDWS) will be launched by a national team of experts in clinical care of persons living with dementia, survey research, and health workforce research. The goal of the NDWS data infrastructure is to allow researchers and policymakers to ask and answer scientific questions to help build the workforce of clinicians and other professional care providers required by the growing population of persons living with dementia in the U.S. The Administrative Data Transfer, Masking, Access, and Ethics Core will oversee linking of the NDWS survey data with other sources of administrative and secondary data in combinations that can maximize scientific insights while still preserving respondent and facility privacy. Specifically, the Administrative Data Transfer, Masking, Access, and Ethics Core will: 1) Use Medicare, Medicaid, and assessment data to derive process and quality outcomes to characterize care delivery to PLWD for the clinicians, facilities, and agencies in each survey of the NDWS; 2) Prepare administrative and other secondary information sources in data sets that can be linked with NDWS respondent survey data to gain further insights into factors that influence the workforce as well as PLWD care outcomes; 3) Establish guidelines for restricted data access to safeguard respondent privacy.

摘要：行政数据传输，掩盖，访问和道德核心国家痴呆症劳动力研究（NDWS）将由国家临床护理专家团队启动患有痴呆症，调查研究和健康劳动力研究的人。 NDWS数据的目标基础设施是允许研究人员和政策制定者提出和回答科学问题，以帮助建立临床医生和其他专业护理提供者的劳动力人数不断增长在美国与痴呆症生活在一起的行政数据传输，掩盖，访问和道德核心将监督NDWS调查数据与其他管理和辅助数据的链接可以最大程度地提高科学见解的同时仍然保留受访者和设施隐私的组合。具体而言，行政数据传输，掩盖，访问和道德核心将：1）使用Medicare，医疗补助和评估数据以得出流程和质量结果，以表征向PLWD提供护理对于NDWS调查中的临床医生，设施和机构； 2）准备行政和其他数据集中的二级信息源，可以与NDWS受访者调查数据链接进一步了解影响劳动力以及PLWD护理结果的因素； 3）建立限制数据访问权限的确保受访者隐私的指南。