Using technology-enhanced approaches to advance cancer health equity among diverse deaf, deafblind, and hard of hearing populations.

使用技术增强的方法来促进不同聋哑人、聋盲人和听力障碍人群的癌症健康公平。

• 批准号: 10414441
• 负责人: Poorna Kushalnagar
• 金额: $ 150.2万
• 依托单位: GALLAUDET UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-23 至 2023-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10414441
• 关键词: Address; Adherence; Advanced Malignant Neoplasm; Age; American Sign Language; Appointment; Cancer Patient; Caring; Clinical; Clinical Services; Communication; Communities; Community Health; Community Health Aides; Cultural Anthropology; Custom; Education and Outreach; Educational Curriculum; Engineering; Enhancement Technology; Environment; Face; Family; Funding; Health; Health Care Reform; Healthcare; Healthcare Systems; Hearing; Human; Individual; Instruction; Internet; Intervention; Knowledge; Label; Learning; Libraries; Linguistics; Literature; Malignant Neoplasms; Medicine; Oncology; Outcome; Patients; Performance; Persons; Physicians; Play; Population; Positioning Attribute; Prevention; Provider; Public Health; Public Health Informatics; Questionnaires; Recording of previous events; Report (document); Reporting; Research; Resources; Risk Factors; Role; S-nitro-N-acetylpenicillamine; Screening Result; Screening for cancer; Screening procedure; System; Technology; Text; Training; Translating; Underserved Population; United States; United States National Institutes of Health; Vision; Work; base; cancer care; cancer diagnosis; cancer health disparity; cancer prevention; computer science; cost; deaf; disability; education resources; experience; hard of hearing; health disparity; health equity; health inequalities; health literacy; hearing impairment; improved; improved outcome; innovation; insight; literacy; medically underserved; mobile application; new technology; patient assistance; patient oriented; public education; public health relevance; risk perception; screening; screening guidelines; screening services; skills; social factors; social health determinants; support tools; technology development; tool; tutoring; virtual; vocalization; web app

About 500,000 use American Sign Language (ASL). Among DDBHH people who use ASL, there are documented reports of difficulties in understanding cancer health information in print, accessing clinical services for screenings, and understanding and following treatment-related directives if the screening results warrant a cancer diagnosis. These difficulties contribute to the health inequity that we observed in the DDBHH populations. Community health workers have proven their value with hearing patients, so it is reasonable to expect that ASL- proficient community health workers (CHW) will have the same potential to identify and resolve DDBHH people’s barriers to receiving optimal care for cancer prevention and screening. We envision an ASL-proficient CHW, functioning as a cancer health navigator, who is able to promote cancer screening adherence and reduce health disparity among DDBHH people. This research will build on the team’s current NIH-funded research and recently developed technology platform, specifically SNAP (the System for Navigational Assistance for Patients), a technology to support cancer patient navigators, and REPEAT (Realizing Enhanced Practice through Adaptive Tutoring), a tool to build virtual guided practice environments for developing skills in clinical communication domains. Use of SNAP and REPEAT will provide an advanced starting point that allows us to focus on the specific training and community application needs of the DDBHH community, rather than new technology development. Our ability to address these specific needs and to appropriately deliver and evaluate the interventions is supported by a highly interdisciplinary team, spanning expertise in DDBHH health disparity, disability studies, public health, health informatics, cultural anthropology, human factors engineering, and computer science

大约500,000使用美国手语（ASL）。在使用ASL的DDBHH的人中，有 有记录的报告很难理解印刷中的癌症健康信息，访问临床服务 用于筛查，理解并遵循与治疗相关的指令，如果筛选结果值得 癌症诊断。这些困难导致了我们在DDBHH人群中观察到的健康不平等。 社区卫生工作者已经证明了他们在听力患者中的价值，因此可以合理地期望 熟练的社区卫生工作者（CHW）将具有识别和解决DDBHH的相同潜力 人们接受最佳护理癌症预防和筛查的障碍。我们设想一个急促的 CHW，作为癌症健康导航器，能够促进癌症筛查并降低 DDBHH人的健康差异。这项研究将以团队目前由NIH资助的研究为基础 最近开发的技术平台，特别是SNAP（为患者提供导航援助系统）， 一种支持癌症患者导航器的技术，并重复（通过自适应实现增强的练习 辅导），一种建立虚拟指导练习环境的工具，以发展临床交流的技能 域。使用快照和重复将提供一个高级起点，使我们能够专注于 DDBHH社区的特定培训和社区应用需求，而不是新技术 发展。我们满足这些特定需求并适当交付和评估的能力 干预措施得到了一个高度跨学科的团队的支持，涵盖了DDBHH健康差异方面的专业知识， 残疾研究，公共卫生，健康信息，文化人类学，人为因素工程和 计算机科学