Addressing health disparities among understudied women in the deaf and hard of hearing population

解决失聪和听力障碍人群中未被充分研究的女性的健康差异

基本信息

批准号：
9909299
负责人：
Poorna Kushalnagar
金额：
$ 19.94万
依托单位：
GALLAUDET UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2015
资助国家：
美国
起止时间：
2015-09-01 至 2021-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9909299
关键词：
Address Administrative Supplement Adult American Sign Language Clinical Trials Data Collection Funding Health Knowledge Language Linguistics Measurement Measures Outcome Measure Outcomes Research Parents Patient Outcomes Assessments Patient-Focused Outcomes Patients Population Protocols documentation Psyche structure Reporting Research Sampling Surveys System Translations United States National Institutes of Health Woman Women&apos s Health deaf deafness hard of hearing health disparity innovation older women public health relevance social

Address Administrative Supplement Adult American Sign Language Clinical Trials Data Collection Funding Health Knowledge Language Linguistics Measurement Measures Outcome Measure Outcomes Research Parents Patient Outcomes Assessments Patient-Focused Outcomes Patients Population Protocols documentation Psyche structure Reporting Research Sampling Surveys System Translations United States National Institutes of Health Woman Women&apos s Health deaf deafness hard of hearing health disparity innovation older women public health relevance social

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项目摘要

The purpose of the administrative supplement (NOT-AG-18-039) is to expand existing research to focus on Deaf Women Health. Current widely used NIH-funded patient reported outcome measurement systems (PROMIS) include domains that assess global, physical, mental, and social health from the patient’s perspective. PROMIS is heavily dependent on English, which is a serious barrier to DHH patients who use American Sign Language (ASL) and demonstrate low English proficiency. We addressed this knowledge gap through innovative cross-cultural translation of patient reported survey in ASL and primary data collection from a large representative sample of adults with early deafness. In this administrative supplement for women health, we will follow the same protocol, as in the parent R01, to culturally adapt and linguistically validate women health-related measures. The sample will include 100 DHH mid-to-older women, providing adequate power for group analyses. This is further described in the research strategy section.

行政补充的目的（NOT-AG-18-039）是扩展现有的研究专注于聋哑妇女健康。当前使用NIH资助的患者报告了结果测量系统（Promis）包括评估全球，物理，从患者的角度来看，精神和社会健康。 Promis很大程度上取决于英语，这是使用美国手语（ASL）的DHH患者的严重障碍并证明英语水平较低。我们通过患者的创新跨文化翻译报告了ASL和主要数据中的调查从大量代表性的成年人样本中收集。在这个妇女健康的行政补充，我们将遵循与父母相同的协议 R01，在文化上适应和语言验证与妇女健康相关的措施。样本将包括100名DHH中期妇女，为小组分析提供足够的能力。这在研究策略部分中进一步描述。