Pediatric Dermatology Research Alliance Annual Conference

小儿皮肤病学研究联盟年会

基本信息

批准号：
8723740
负责人：
KEITH A CHOATE
金额：
$ 6万
依托单位：
MEDICAL COLLEGE OF WISCONSIN
依托单位国家：
美国
项目类别：
财政年份：
2013
资助国家：
美国
起止时间：
2013-09-01 至 2016-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8723740
关键词：
Address Advocacy Applications Grants Area Basic Science Blood Vessels Case Study Child Child Care Childhood Clinical Clinical Research Clinical Research Protocols Clinical Sciences Clinical Trials Commit Consensus Development Data Analyses Dermatologic Dermatologist Dermatology Disease Educational process of instructing Epidermolysis Bullosa Expert Opinion FDA approved Fostering Genetic Goals Group Meetings Guidelines Health Hemangioma Individual Inflammatory Inherited Institutional Review Boards Life Measures Methods Mission Multicenter Studies Outcome Outcome Measure Participant Patients Pharmaceutical Preparations Pilot Projects Population Recruitment Activity Research Research Design Research Infrastructure Research Methodology Research Personnel Scientist Support Groups Systemic Therapy Talents Therapeutic Therapeutic Intervention Time Training Translational Research Translations Treatment Protocols Vision Writing advocacy organizations clinical care design improved keratinization knowledge base lectures meetings posters prevent public health relevance research study response skin disorder symposium working group

项目摘要

DESCRIPTION (provided by applicant): Pediatric dermatologists care for children with a broad range of rare and common disorders, such as severe inflammatory skin diseases that require systemic therapy, disfiguring vascular birthmarks, and genetic skin disorders that can be life-endangering. There is a paucity of FDA-approved therapies for these severe conditions and a great need for standardized treatment protocols and methods to measure response to therapy. The Pediatric Dermatology Research Alliance (PeDRA) was established to address this therapeutic shortfall. PeDRA's vision is to create and sustain collaborative research networks that conduct well-designed, high-quality multicenter studies to better understand, prevent, treat and cure dermatologic diseases in children. The PeDRA Annual Conference is central to achieving these goals and will include didactic lectures, interactive discussions led by experts in research methodology, poster sessions, and disease-focused small-group meetings. The specific aims are: 1) To provide new and established PeDRA investigators with an essential knowledge base and infrastructure to conduct high-quality multicenter research in pediatric skin disorders; 2) To create a bridge between basic scientists and clinicians to enhance opportunities for translational research initiatives; and 3) To identify and prioritize the clinical needs and therapeutic opportunities in four disease- specific areas: inflammatory skin diseases, hemangiomas, epidermolysis bullosa, and disorders of keratinization. An additional goal is to expand the research mission beyond the established working groups to other disorders with need.

描述（由申请人提供）：儿科皮肤科医生负责治疗患有各种罕见和常见疾病的儿童，例如需要全身治疗的严重炎症性皮肤病、毁容的血管胎记以及可能危及生命的遗传性皮肤病。 FDA 批准的针对这些严重疾病的治疗方法很少，并且非常需要标准化的治疗方案和测量治疗反应的方法。儿科皮肤病学研究联盟 (PeDRA) 的成立就是为了解决这一治疗短缺问题。 PeDRA 的愿景是创建和维持合作研究网络，开展精心设计的高质量多中心研究，以更好地了解、预防、治疗和治愈儿童皮肤病。 PeDRA 年会是实现这些目标的核心，将包括由专家主持的教学讲座和互动讨论研究方法、海报会议和以疾病为重点的小组会议。具体目标是： 1) 为新的和已建立的 PeDRA 研究人员提供必要的知识库和基础设施，以开展高质量的儿科皮肤病多中心研究； 2）在基础科学家和临床医生之间架起一座桥梁，以增加转化研究计划的机会； 3) 确定并优先考虑四种疾病特定领域的临床需求和治疗机会：炎症性皮肤病、血管瘤、大疱性表皮松解症和角化障碍。另一个目标是将研究任务扩展到既定工作组之外的其他有需要的疾病。

项目成果

期刊论文数量（1）

专著数量（0）

科研奖励数量（0）

会议论文数量（0）

专利数量（0）

Proceedings of the Inaugural Pediatric Dermatology Research Alliance (PeDRA) conference.

首届儿童皮肤病学研究联盟 (PeDRA) 会议论文集。

DOI：
发表时间：
2014-11
期刊：
影响因子：
0
作者：
Siegel, Dawn H;Choate, Keith A;Drolet, Beth A;Frieden, Ilona J;Rittenberg, Sheila;Teng, Joyce M;Tom, Wynnis L;Williams, Mary L;Eichenfield, Lawrence F;Paller, Amy S
通讯作者：
Paller, Amy S