Implementing a low-literacy, multimedia IT system to enhance patient-centered can

实施低文化水平的多媒体 IT 系统以增强以患者为中心的能力

基本信息

批准号：
7837481
负责人：
ELIZABETH A HAHN
金额：
$ 3.97万
依托单位：
NORTHSHORE UNIVERSITY HEALTHSYSTEM
依托单位国家：
美国
项目类别：
财政年份：
2007
资助国家：
美国
起止时间：
2007-09-30 至 2009-05-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/7837481
关键词：
Implementing low literacy multimedia system

项目摘要

Vulnerable populations experience a greater burden of disease, are less informed about diagnosis and treatment, and are less likely to be satisfied with communication with their healthcare providers. Patients with limited economic resources, low literacy skills or racial/ethnic minority status are particularly vulnerable to receiving sub-optimal care over time. These patients may experience poorer health outcomes due to disparities in care, special needs or barriers to care. Improving communication in healthcare settings may lead to better adherence to recommended treatment, higher quality of care, higher satisfaction with care and better health outcomes. The use of new health information technologies is a recommended strategy for improving access to health information and for enhancing the quality of communication in healthcare delivery. The overall objective of the proposed demonstration project is to test whether a low-literacy friendly, multimedia information and assessment system used in daily clinical practice enhances patient-centered care and improves patient outcomes. The intervention will combine two existing assessment and education systems to provide a multimedia information technology (IT) resource: CancerHelp-Talking Touchscreen (TT). This user-friendly IT resource will deliver comprehensive, state-of-the-science patient education information, allow patients to ?personalize? the information at each session, enable low literacy patients to self-administer patient-reported outcomes questionnaires, allow patients to create an individually tailored list of needs and concerns to share with their healthcare providers, and assist patients in preparing for the transition between active cancer treatment and follow-up care. A prospective randomized trial of 200 patients with breast or colorectal cancer will be conducted at three ambulatory cancer care centers in Chicago. Patients will be randomized to CancerHelp-TT or control/standard education and followed for a maximum of nine months (three to six months of treatment and three months of follow-up). The proposed study will: 1) test whether use of CancerHelp-TT improves satisfaction with healthcare communication, knowledge of cancer and treatment, self-efficacy, adherence to recommended treatment and health-related quality of life (HRQL) during cancer treatment; 2) evaluate the relationships between patient characteristics, resources, needs, health behaviors and health outcomes using the Behavioral Model for Vulnerable Populations; and 3) assess whether use of CancerHelp-TT improves adherence to recommended follow-up care and HRQL during the early post-treatment surveillance period. The CancerHelp-TT intervention is a fully exportable, self-contained IT system that can be implemented in any cancer care center with minimal additional resources. It can also be adapted for other health conditions. This novel multimedia IT system may be especially helpful in addressing disparities in cancer care for vulnerable populations.

弱势群体经历了更大的疾病负担，对诊断和治疗，对与医疗保健提供者的沟通不太满意。患者由于经济资源有限，识字技能或种族/族裔少数民族地位尤其容易受到伤害随着时间的流逝，接受次优的护理。这些患者可能由于护理上的差异，特殊需求或护理障碍。改善医疗保健环境中的沟通可能导致更好地遵守建议的治疗，更高的护理质量，更高的护理满意度以及更好的健康结果。使用新的健康信息技术是推荐的策略改善获得健康信息的访问并提高医疗保健的沟通质量送货。拟议的演示项目的总体目的是测试低文字友好型，每日临床实践中使用的多媒体信息和评估系统增强了以患者为中心的照顾并改善患者的预后。干预将结合两项现有评估，并提供多媒体信息技术（IT）资源的教育系统：CancerHelp-Talking 触摸屏（TT）。这种用户友好的IT资源将提供全面的，最先进的患者教育信息，允许患者个性化？每个会话中的信息，启用低识字能力患者自我管理患者报告的结果问卷调查，允许患者单独创建量身定制的需求清单和疑虑，以与他们的医疗保健提供者分享，并协助患者准备主动癌症治疗和随访护理之间的过渡。 200的前瞻性随机试验乳腺癌或结直肠癌的患者将在三个门诊癌症护理中心进行芝加哥。患者将被随机分配到癌症螺旋中或对照/标准教育中，然后进行最多九个月（三到六个月的治疗和三个月的随访）。提议研究将：1）测试使用CancerHelp-TT是否可以提高对医疗保健交流的满意度，了解癌症和治疗，自我效能感，遵守推荐治疗和与健康有关的知识癌症治疗期间的生活质量（HRQL）； 2）评估患者特征之间的关系，资源，需求，健康行为和健康成果，使用易受伤害的行为模型人口； 3）评估使用CancerHelp-TT是否可以提高建议随访的依从性在治疗后早期监视期间的护理和HRQL。 CancerHelp-TT干预是完全可以在任何癌症护理中心实施的完全可以出口，独立的IT系统其他资源。它也可以适应其他健康状况。这个新颖的多媒体IT系统可能有助于解决脆弱人群的癌症护理差异。