Community outreach

社区外展

• 批准号: 9906007
• 负责人: Ting Wang
• 金额: $ 59.38万
• 依托单位: WASHINGTON UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-18 至 2024-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9906007
• 关键词: Alleles; Area; Attention; Awareness; Biomedical Research; Communication; Communities; Community Outreach; Data; Data Analyses; Data Quality; Data Set; Data Storage and Retrieval; Databases; E-learning; Education; Education and Outreach; Educational Materials; Educational workshop; Ensure; Feedback; Focus Groups; Fostering; Genome; Genomics; Goals; Human; Human Genome; Human Genome Project; Imagery; Link; Medical; Methods; National Human Genome Research Institute; Patients; Performance; Phase; Population Genetics; Protocols documentation; Research; Research Personnel; Resources; Retrieval; Sampling; Structure; Surveys; System; Testing; Training; Training Activity; Travel; Update; Variant; Writing; base; data management; data resource; data submission; design; epigenome; experience; genome browser; handheld mobile device; human genomics; human reference genome; improved; indexing; informatics tool; innovation; interest; interoperability; member; mobile application; next generation; outreach; outreach program; pan-genome; programs; quality assurance; reference genome; repository; social media; statistics; symposium; tool; user-friendly; web portal; web site; webinar

PROJECT SUMMARY (PROJECT 2) The goal of the WashU-UCSC-EBI based Human Genome Reference Center (HGRC) is to maintain and update the new human genome reference produced by the Human Genome Reference Program (HGRP) and to provide it to the scientific community. The goal of the HGRP Outreach and Education Center (HGRP-OE) is to communication with the entire scientific and medical communities and disseminate data, resources, tools, protocols, and educational materials. To support the HGRC and the entire HGRP consortium, we will provide information to the community about the genome reference, obtain feedback from the community, and respond to community needs. Towards this goal, we propose innovative and robust strategies that define how the HGRP will engage with the broader user community. We will develop an HGRP web portal that serves as a user interface for the new human genome reference and a resource repository for the associated data and tools. This new resource will be tightly linked with many other genomic resources currently supporting biomedical research. We will develop comprehensive strategies to train and update users on the current state of the reference, including a comprehensive educational website, a suite of web-based training modules, seminars and webinars, workshops at conferences as well as regional, traveling workshops, an HGRP APP for mobile devices, and outreach via social media. Importantly, we will develop a transition plan from the current reference assemblies (GRCh37 and GRCh38) to the new human pan-genome reference, and rigorously engage investigators and the broader community to assist the transition. We present plans to proactively connect user feedback and respond to it. If successfully implemented, our proposed HGRP-OE will greatly increase community awareness of the new human genome reference and its usage, and thus maximize its use, value, and significance.

项目摘要（项目2） 基于WASHU-UCSC-EBI的人类基因组参考中心（HGRC）的目标是维护和更新 人类基因组参考计划（HGRP）产生的新人类基因组参考并提供 它向科学界。 HGRP外展和教育中心（HGRP-OE）的目标是 与整个科学和医疗社区进行沟通，并传播数据，资源，工具， 协议和教育材料。为了支持HGRC和整个HGRP财团，我们将提供 向社区提供有关基因组参考的信息，从社区那里获得反馈并做出回应 满足社区需求。为了实现这一目标，我们提出了创新和强大的策略，以定义HGRP 将与更广泛的用户社区互动。我们将开发一个HGRP Web门户，该门户作为用户 新的人类基因组参考的接口和相关数据和工具的资源存储库。这 新资源将与当前支持生物医学研究的许多其他基因组资源紧密相关。 我们将制定全面的策略，以培训和更新用户的当前参考状态， 包括一个全面的教育网站，一套基于网络的培训模块，研讨会和网络研讨会， 会议的研讨会以及地区性旅行研讨会，用于移动设备的HGRP应用程序以及 通过社交媒体推广。重要的是，我们将从当前的参考组件制定过渡计划 （grch37和grch38）提交新的人类泛基因组，并严格与研究人员和 更广泛的社区来协助过渡。我们提出了主动连接用户反馈并做出回应的计划 对此。如果成功实施，我们提议的HGRP-OE将大大提高社区对 新的人类基因组参考及其用法，从而最大程度地提高其使用，价值和意义。