Utah Center of Excellence in ELSI Research: UCEER

犹他州 ELSI 研究卓越中心：UCEER

基本信息

批准号：
9274369
负责人：
JEFFREY R. BOTKIN
金额：
$ 97.24万
依托单位：
UNIVERSITY OF UTAH
依托单位国家：
美国
项目类别：
财政年份：
2016
资助国家：
美国
起止时间：
2016-05-16 至 2020-04-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9274369
关键词：
Address Advisory Committees Applications Grants Career Mobility Child Childhood Communication Communication Tools Complex Computers Decision Making Development Diagnostic Disabled Children Discipline Discipline of Nursing Discipline of obstetrics Education Educational Activities Elements Engineering Environment Ethics Faculty Family Family health status Family member Fostering Funding Future Genetic Genetic Counseling Genetic Screening Genetic screening method Goals Health Communication Healthcare Hereditary Disease Human Genetics Humanities Individual Infant Informed Consent Laboratories Laboratory Research Laws Leadership Legal Liability Life Low Prevalence Medicine Mentors Mentorship Multimedia Nature Neonatal Screening Nurses Nursing Philosophy Parents Participant Patients Pediatrics Pilot Projects Population Pregnant Women Professional Education Public Health Nursing Publications Research Research Activity Research Personnel Research Project Grants Research Proposals Resources Schedule Science Services Structure Techniques Technology Testing United States United States National Institutes of Health Universities Utah Woman Work biobank carrier testing college cost cost effectiveness education cost experience faculty support fine art genetic information genetic predictors genome-wide health disparity health literacy high risk innovation legal implication meetings new technology next generation population based prenatal prenatal testing programs public health relevance response screening social implication undergraduate student

项目摘要

DESCRIPTION (provided by applicant): This application is to fund the University of Utah Center of Excellence in ELSI Research (UCEER). The University of Utah has a strong tradition in human genetics and ELSI research and this proposal will build on our successful development and management of a P20 funded CEER. The proposed UCEER will focus primarily, although not exclusively, on issues relevant to population screening for genetic conditions in the healthcare of women, children, and young families. Our primary emphasis will be on enhancing education and informed decision-making by patients and research participants with innovative approaches including multi-media and interactive computer platforms. Our overall goal is to create a "laboratory" for research and education with a diverse set of scholars and ideas in a creative, supportive academic environment. The CEER will support faculty across 6 colleges at the University of Utah including Medicine, Law, Nursing, Humanities, Engineering, and Fine Arts. Through our Research Core, we propose funding for 6 "Tier I" research projects that are of sufficient size and rigor to warrant publication but also will serve as pilot projects or future NIH grant applications. Through our Education and Career Advancement Core, we will support a variety of ELSI educational activities from across the spectrum from undergraduates to junior faculty and provide a strong mentorship program to foster the next generation of ELSI scholars. The UCEER Administrative Core will support an effective structure for the support, oversight, and integration of the research and educational activities across the University. Our proposed administrative structure includes strong, experienced leadership, communication tools, effective space, functional meeting schedules, and an advisory committee that will engage our CEER leadership, faculty, and trainees.

描述（由应用程序提供）：本申请是为犹他大学ELSI Research（UCEER）提供资金。犹他大学在人类遗传学和ELSI研究方面具有很强的传统，这项提案将以我们对P20资助的CEER的成功发展和管理为基础。拟议的UCEER将主要集中于与妇女，儿童和年轻家庭医疗保健中遗传状况有关的人口筛查有关的问题。我们的主要重点是通过包括多媒体和交互式计算机平台在内的创新方法来增强患者和研究参与者的知情决策。我们的总体目标是在创造性，支持性的学术环境中创建一个“实验室”，用于研究和教育的“实验室”。 CEER将支持犹他大学6所学院的教师，包括医学，法律，护理，人文，工程和美术。通过我们的研究核心，我们为6个“ I Tier I”研究项目提出资金，这些研究项目规模足够严格，可以保证出版，但也将用作试点项目或未来的NIH赠款申请。通过我们的教育和职业发展核心，我们将支持各种各样的ELSI教育活动，从本科生到初级教师，并提供强大的心态计划，以促进下一代ELSI学者。 UCEER行政核心将支持整个大学的研究和教育活动的支持，监督和整合的有效结构。我们提出的行政结构包括强大，经验丰富的领导力，沟通工具，有效的空间，功能性会议时间表以及一个咨询委员会，该委员会将吸引我们的领导，教职员工和学员。