Communication and Economic Outcomes for Cancer Survivors

癌症幸存者的沟通和经济成果

• 批准号: 8501827
• 负责人: LAURA A. SIMINOFF
• 金额: $ 55.91万
• 依托单位: VIRGINIA COMMONWEALTH UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2013
• 资助国家: 美国
• 起止时间: 2013-04-01 至 2014-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8501827
• 关键词: Absenteeism; Activities of Daily Living; Adult; Affect; Age; Cancer Patient; Cancer Survivor; Caregiver Burden; Caregivers; Caring; Cessation of life; Child; Communication; Conflict (Psychology); Data; Day Care; Decision Making; Development; Diagnosis; Disease; Economics; Employment; Environment; Evidence based intervention; Exhibits; Family; Family Caregiver; Family Characteristics; Family member; Friends; Future; Goals; Healthcare; Hematologic Neoplasms; Hematopoietic Neoplasms; Home environment; Hospitals; Hour; Inpatients; Joints; Lead; Life; Low income; Malignant Neoplasms; Marketing; Outcome; Outpatients; Patients; Personal Satisfaction; Productivity; Quality of life; Regrets; Risk; Services; Siblings; Socioeconomic Factors; Spouses; Testing; Therapeutic; TimeLine; Treatment Protocols; Work; cancer care; cancer therapy; caregiving; cohesion; cost; economic outcome; experience; functional status; health care economics; health care service utilization; improved; innovation; meetings; premature; productivity loss; psychologic; psychosocial; public health relevance; satisfaction; social; tool

DESCRIPTION (provided by applicant): The goal of this study will be to assess whether cancer communication between patients and their family caregivers is an important and independent factor in specific cancer care outcomes, including economic outcomes, especially labor market participation, quality of life and decisional outcomes. This study focuses on patients with hematological malignancies in adults which are important to study for a number of reasons. These cancers have been steadily increasing in the U.S. with an estimated 137,266 new cases in 2010. In addition, hematological cancer patients' social and psychological challenges and outcomes have not been adequately studied. Hematological cancers are particularly challenging because of their chronicity. How patients survive with this disease, including their ability to maintain their social and family commitments is critical. Few studies, however, have examined how hematologic cancers affect patients' and their caregivers' labor market participation. Strikingly, in comparison to the productivity cost of other cancers, hematological cancers are among the most costly cancers in terms of productivity loss due to premature death. This study will follow 250 pairs of employed hematologic cancer patients and their family caregivers over a two-year period to assess how they communicate about treatment and care decisions, which lead to specific psychosocial, economic, and healthcare outcomes. This study has the following aims: Aim 1. Test longitudinally how cancer communication between caregivers and patients are associated with short and long-term economic, psychosocial, and healthcare outcomes. Aim 2. Examine patient and family characteristics that are associated with decreased levels of cancer communication. !

描述（由申请人提供）：本研究的目标是评估患者与其家庭护理人员之间的癌症沟通是否是特定癌症护理结果的重要且独立的因素，包括经济结果，特别是劳动力市场参与度、生活质量和决策结果。这项研究的重点是成人血液恶性肿瘤患者，由于多种原因，这些患者的研究很重要。这些癌症在美国一直在稳步增加，2010 年估计有 137,266 例新病例。此外，血液癌症患者的社会和心理挑战及结果尚未得到充分研究。血液癌症因其慢性性而特别具有挑战性。患者如何在这种疾病中生存，包括他们维持社会和家庭承诺的能力至关重要。然而，很少有研究探讨血液癌症如何影响患者及其护理人员的劳动力市场参与度。引人注目的是，与其他癌症的生产力成本相比，就过早死亡导致的生产力损失而言，血液癌症是代价最高的癌症之一。这项研究将在两年内跟踪 250 对血液癌症患者及其家庭护理人员，以评估他们如何沟通治疗和护理决策，从而产生特定的社会心理、经济和医疗保健结果。本研究有以下目标： 目标 1. 纵向测试护理人员和患者之间的癌症沟通如何与短期和长期经济、社会心理和医疗保健结果相关。目标 2. 检查与癌症沟通水平降低相关的患者和家庭特征。 ！