Using CBPR to design & Pilot a Physical Activity Program for Youth with ASD

使用CBPR进行设计

• 批准号: 7426671
• 负责人: RICHARD K FLEMING
• 金额: $ 19.24万
• 依托单位: UNIV OF MASSACHUSETTS MED SCH WORCESTER
• 依托单位国家: 美国
• 财政年份: 2008
• 资助国家: 美国
• 起止时间: 2008-07-10 至 2010-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7426671
• 关键词: Address; Adolescence; Adolescent; Affect; Age; Age-Years; American; Americas; Applied Research; Area; Asperger Syndrome; Attention; Autistic Disorder; Behavior; Behavioral; Bicycling; Boston; Caring; Centers for Disease Control and Prevention (U.S.); Child; Child Care; Childhood; Class; Cognitive; Collaborations; Commit; Communities; Comorbidity; Data; Depth; Development; Developmental Disabilities; Disabled Children; Disabled Persons; Effectiveness; Epidemic; Evaluation; Evidence based program; Exhibits; Faculty; Family; Family Practice; Focus Groups; Hand; Health; Health Benefit; Health Promotion; Health Services Research; Healthcare; Hour; Human; Individual; Interview; Investigation; Life; Marshal; Maternal and Child Health; Methodology; Motivation; Motor; National Health and Nutrition Examination Survey; Nature; Not Otherwise Specified; Numbers; Obesity; Outcome; Pan Genus; Parents; Persons; Pervasive Development Disorder; Physical activity; Population; Population Programs; Process; Psyche structure; Public Health; Public Policy; Publishing; Qualifying; Quality of life; Range; Rate; Reporting; Research; Research Personnel; Risk; Sampling; Schools; Services; Sports; Standards of Weights and Measures; Stimulus; Supervision; Surgeon; Surveys; Television; Testing; Time; United States; United States Dept. of Health and Human Services; Universities; Work; Youth; age related; aged; autism spectrum disorder; base; community based participatory research; day; design; desire; disability; health disparity; improved; knowledge base; medical schools; member; nervous system disorder; outreach; peer; prevent; professor; programs; research to practice; sedentary; skateboarding; skills; social; social skills

DESCRIPTION (provided by applicant): Children in the U.S. exhibit low levels of physical activity, and their time spent in sedentary behavior is on the rise. Inactivity represents a major health issue because it is a significant contributor to a national obesity epidemic that is now affecting children. Children with autism spectrum disorder (ASD) are as inactive as their typically-developing peers. ASD affects a child's ability to communicate, form social relationships, and respond appropriately to environmental stimuli, all of which present barriers to their participation in physical activity, particularly in the community. The main objective of this project is to use the Community-Based Participatory Research (CBPR) approach to develop and test a program to promote engagement in physical activity and its related health and social benefits in children and adolescents with ASD. A university-community CBPR partnership will be formed. Members will work collaboratively to identify research questions and design and test a physical activity program for this population. This project will deepen the scientific knowledge base about using CBPR to promote physical activity and health outcomes in ASD. Specific aims are to: 1) formalize a collaborative university-community partnership that is equal, respectful, and mutually beneficial to its members; 2) utilize the CBPR approach to develop a community-based physical activity program for children with ASD aged 6-18; 3) test the feasibility of implementing the program in the community and collecting valid and reliable data; and 4) evaluate the viability and effectiveness of the CBPR approach as a means of involving a community of children and adolescents with ASD, and their parents, in developing and piloting a community- based program. Specific aims 1 and 2 will be accomplished in Year 1; aims 3 and 4 in Year 2. Focus groups, surveys, key informant interviews and observation will comprise a formative evaluation in Year 1. Development of the physical activity program by the end of Year 1 will rely on the full collaboration of university and community partners. Program priorities will be defined, with the paramount objective being engagement of children (and families) in a range of health-promoting physical activities in a social community context. The program will be piloted in Year 2 as a small scale, exploratory investigation with a sample of 20 children and adolescents. Rigorous internal and external evaluation of the CBPR process (Aim 4) will be conducted by a CBPR expert as well as an external evaluator. PUBLIC HEALTH RELEVANCE The US Dept of Health and Human Services has emphasized the importance of physical activity for promoting health. One group of children, those with Autism Spectrum Disorders (ASD), represents a unique population who's social, cognitive, and motor limitations may be associated with low physical activity. Developing health promotion programs for children with ASD requires an in depth understanding of their needs, especially if opportunities for physical activity are to be accessible and sustainable. Community-Based Participatory Research (CBPR) is ideally suited to such an endeavor, particularly in the ways it can facilitate involvement of families of children with ASD.

描述（由申请人提供）：美国的儿童表现出低水平的体育锻炼，他们在久坐行为上花费的时间正在上升。不活动代表了一个主要的健康问题，因为它是目前正在影响儿童的国家肥胖流行病的重要贡献者。自闭症谱系障碍（ASD）的儿童与典型的同龄人一样不活跃。 ASD会影响孩子交流，建立社会关系并适当反应环境刺激的能力，所有这些都对他们参与体育锻炼的障碍，尤其是在社区中。该项目的主要目的是使用基于社区的参与研究（CBPR）方法来开发和测试一项计划，以促进与ASD儿童和青少年的体育活动及其相关的健康和社会益处的参与。将建立大学社区CBPR合作伙伴关系。成员将共同努力确定研究问题，设计并测试该人群的体育活动计划。该项目将加深有关使用CBPR促进ASD中的体育锻炼和健康结果的科学知识基础。具体目的是：1）正式化一个对其成员平等，尊重和互惠互利的大学社区社区合作伙伴关系； 2）利用CBPR方法为6-18岁的ASD儿童制定基于社区的体育活动计划； 3）测试在社区中实施该计划并收集有效和可靠数据的可行性； 4）评估CBPR方法的生存能力和有效性，以此作为与ASD及其父母的儿童和青少年社区有关的一种手段，以制定和驾驶基于社区的计划。特定目标1和2将在第1年完成；目标第2年的目标3和4。焦点小组，调查，主要线人访谈和观察将包括在第1年的形成性评估。在第1年底之前的体育活动计划的制定将依赖大学和社区合作伙伴的完全合作。将定义计划优先级，其最重要的目标是在社会社区背景下在一系列促进健康的体育活动中的儿童（和家庭）参与。该计划将在第2年进行小规模，探索性调查，包括20名儿童和青少年样本。 CBPR专家和外部评估者将对CBPR过程的严格内部和外部评估（AIM 4）进行。公共卫生相关性美国卫生和公共服务部强调了体育活动对促进健康的重要性。一组儿童，自闭症谱系障碍（ASD）的儿童代表了一个独特的人群，他们的社会，认知和运动限制可能与身体活动较低有关。为患有ASD的儿童制定健康促进计划需要深入了解他们的需求，尤其是在可以访问和可持续的体育锻炼机会的情况下。基于社区的参与性研究（CBPR）非常适合这样一项努力，尤其是在其促进ASD儿童家庭的方式中。