Family Empowerment: Adapting Successful Disclosure Strategies for HIV+ Parents

家庭赋权：为艾滋病毒父母采取成功的披露策略

• 批准号: 7119424
• 负责人: TOODY MAHER
• 金额: $ 16.39万
• 依托单位: SCIENCE2MARKET, LLC
• 依托单位国家: 美国
• 财政年份: 2006
• 资助国家: 美国
• 起止时间: 2006-08-01 至 2007-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7119424
• 关键词: AIDS education /prevention; HIV infections; audiotape; behavior therapy; behavioral /social science research tag; clinical research; coping; family structure /dynamics; focus groups; human subject; human therapy evaluation; interview; self care; self help organization; therapy design /development

DESCRIPTION (provided by applicant): One (1) million adults in the US and 42 million families globally must decide if, to whom, when, and how to disclose their HIV+ serostatus. Often, disclosure of serostatus has a long-term negative impact on children and extended family members of HIV+ parents; this team has developed a coping-skills intervention that can positively impact the adjustment over 6 years of HIV+ parents, their children, and grandchildren. The intervention has been delivered in a small group setting over multiple sessions. However, most treatment settings do not serve enough HIV+ parents to form ongoing groups; attendance at sessions is a major barrier for a small group delivery format; and tailoring the delivery to ethnic and gender subgroups is difficult in a small group setting. The goal of this STTR project is to adapt an evidence-based intervention for HIV+ parents on disclosure of serostatus that can be delivered in a stand alone self-help format, not a small group and will allow for broad dissemination of the intervention in multiple settings and through multiple vehicles (agencies, direct mail, physicians, pharmacies and HIV+ parents). In Phase I, we will examine the feasibility of a new format for our existing evidence-based disclosure intervention, Project TALK, by: (a) adapting existing scripts and session activities to be delivered in a different format (from small group to stand alone self-help packet); (b) pilot testing the acceptability and the market potential of a sample session with donor agencies, community organizations, physicians, pharmacists, HIV testing sites and HIV+ parents; and (c) finalizing plans to produce a prototype and evaluate the intervention's effect on disclosure and positive adjustment of parent's living with HIV and their children in a field trial in Phase II. To conduct this work, Science2Market [S2M], a for-profit company, has joined with UCLA researchers to utilize the expertise of a university-based research team with experts in community care and dissemination. If the sample session is highly acceptable to the potential market and the price/unit is feasible for dissemination we will proceed to Phase II application to examine the efficacy of the new intervention.

描述（由申请人提供）：美国一 (1) 百万成年人和全球 4200 万个家庭必须决定是否、向谁、何时以及如何披露其 HIV+ 血清状况。通常，血清状况的披露会对艾滋病毒阳性父母的儿童和大家庭成员产生长期的负面影响；该团队开发了一种应对技能干预措施，可以对艾滋病病毒感染者父母及其子女和孙子女 6 年来的适应产生积极影响。干预措施是在小组环境中通过多次会议进行的。然而，大多数治疗机构并没有为足够多的艾滋病病毒感染者父母提供服务，无法形成持续的团体；参加会议是小组授课形式的一个主要障碍；在小群体环境中，针对种族和性别亚群体定制交付是很困难的。该 STTR 项目的目标是针对艾滋病病毒感染者父母的血清状态披露采取基于证据的干预措施，该干预措施可以以独立的自助形式而不是小团体的形式提供，并将允许在多种环境下广泛传播干预措施并通过多种途径（机构、直邮、医生、药房和艾滋病病毒感染者父母）。在第一阶段，我们将通过以下方式研究现有基于证据的披露干预措施 Project TALK 的新格式的可行性：(a) 调整现有脚本和会议活动，以不同的格式（从小组到独立）进行交付自助包）； (b) 与捐助机构、社区组织、医生、药剂师、艾滋病毒检测点和艾滋病毒+父母一起试点测试样本会议的可接受性和市场潜力； (c) 最终确定计划，制作原型，并在第二阶段的现场试验中评估干预措施对披露和积极调整感染艾滋病毒的父母及其子女的影响。为了开展这项工作，营利性公司 Science2Market [S2M] 与加州大学洛杉矶分校的研究人员合作，利用由社区关怀和传播专家组成的大学研究团队的专业知识。如果潜在市场高度接受样本会话并且单位价格可以传播，我们将进入第二阶段应用以检查新干预措施的有效性。