Hearing Loss and Quality of Life of Children and Youth

儿童和青少年的听力损失和生活质量

• 批准号: 7564573
• 负责人: Donald Lee Patrick
• 金额: $ 7.44万
• 依托单位: UNIVERSITY OF WASHINGTON
• 依托单位国家: 美国
• 财政年份: 2007
• 资助国家: 美国
• 起止时间: 2007-03-06 至 2010-01-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7564573
• 关键词: Activities of Daily Living; Adolescence; Affect; Age; Anxiety; Arizona; Child; Childhood; Clinical; Clinical Trials; Cognitive; Colorado; Communication; Communities; Condition; Consultations; Counseling; Cues; Cultural Backgrounds; Data; Depth; Development; Device or Instrument Development; Educational Status; Elements; Environment; Ethnic Origin; Evaluation; Focus Groups; Goals; Grant; Healthy People 2010; Hearing; Hearing Impaired Persons; Human Development; Individual; Intervention; Interview; Language; Life; Literature; Measurement; Measures; Mental Depression; Methods; Modeling; Needs Assessment; New Mexico; Parents; Perceived quality of life; Personal Satisfaction; Persons; Placement; Program Evaluation; Property; Psychometrics; Publishing; Qualitative Research; Quality of life; Questionnaires; Randomized; Range; Readability; Reading; Recreation; Recruitment Activity; Reporting; Research; Research Personnel; Resources; Review Literature; Sample Size; Sampling; Schools; Site; Social Development; Speech Development; Surgeon; Testing; Treatment/Psychosocial Effects; United States Dept. of Health and Human Services; Update; Validation; Vision; Washington; Well in self; Work; Youth; base; cost; critical developmental period; day; design; experience; hearing impairment; innovation; instrument; novel; programs; response; skills; theories; tool; young adult

Goal: We will develop and test hearing-loss specific quality-of-life (QoL) modules designed to be sensitive to environmental and psychosocial effects of hearing loss with the goal of developing a novel, multidimensional tool for use in evaluating interventions. Aims: 1. identify key QoL issues and develop QoL items specific to children and youth with hearing loss by conducting in-depth interviews and focus groups with youth ages 11-18 years and with parents of children ages 5-10 years ; 2. validate the cross-sectional measurement properties of hearing-loss specific QoL modules using classical and item-response theory methods; 3. explore association of degree of D/HH with QoL and known or expected correlates, using a clustered sample design and 4. revise the draft youth- and parent-report D/HH Modules using validation results and to disseminate the new D/HH Modules Significance: Hearing loss in early life carries broadly recognized implications for the development of speech, language, and communication skills. Consequently, interpersonal relationships and social development are affected, influencing a child's sense of well-being. Measures that reflect this fundamental construct are needed for use in needs assessment, research, program design and program evaluation. Innovation: We intend to build a theoretically-driven QoL measure using a needs-based approach that actively involves parents and youth who represent a range of hearing losses and cultural backgrounds. Methods and Analysis: Study 1: In-depth interviews to the point of redundancy with a minimum of 30 deaf youth ages 11-18 years and a minimum of 30 parents of children ages 5-10 years with range of hearing loss and ethnicity. Focus groups with parents and young adults will augment in-depth interviews. Cognitive debriefing, adaptation of items into video form, and readability analyses will be conducted to produce test modules. Study 2: Validation sample of 500 youth who are in D/HH programs in day schools and their parents\guardians, 90 youth and their parent\guardians who are in D/HH residential schools will be recruited to complete test instrument(s) and other questionnaires taking a maximum of 45 minutes. Classical and item-response theory methods will be used for scale development. Instrument reliability and construct validity will be tested. Initial dissemination will occur in school districts and treatment facilities participating in the project in Washington, Colorado, and Arizona. Instruments will be available on DVD at minimum cost. Investigators: An interdisciplinary team of experienced instrument developers, clinicians familiar with options for management of hearing loss, and investigators actively involved in programs to enrich community resources for those with hearing loss will collaborate to recruit, study, present and publish results and disseminate resulting instruments.

目标：我们将开发和测试旨在敏感的模块的特定听力的生活质量（QOL）模块 听力丧失的环境和社会心理影响，以发展小说的目的 用于评估干预措施的多维工具。 目的：1。确定关键的QOL问题并开发针对儿童和儿童和儿童的QOL项目，并具有听力损失 与11-18岁的青年一起进行深入的访谈和焦点小组以及孩子的父母 5-10岁； 2。验证听力损失特异性QOL的横截面测量特性 使用经典和项目响应理论方法的模块； 3。探索D/HH学位的关联 QOL和已知或预期的相关性，使用聚集样品设计和4。修改青年和草案 父母报告D/HH模块使用验证结果并传播新的D/HH模块 意义：早期的听力损失对发展具有广泛认可的意义 语音，语言和沟通技巧。因此，人际关系和社会关系 发展受到影响，影响孩子的幸福感。反映这一基本的措施 需要在需求评估，研究，计划设计和程序评估中使用结构。 创新：我们打算使用基于需求的方法来构建理论上驱动的QOL测量 积极参与代表听力损失和文化背景的父母和青年。 方法和分析：研究1：深入访谈，至少30次聋哑 年龄在11-18岁的青年，至少有30岁的5-10岁儿童父母，听力损失范围 和种族。与父母和年轻人的焦点小组将增加深入的访谈。认知的 将进行汇报，将项目改编为视频形式以及可读性分析以进行测试 模块。研究2：验证样本的500名年轻人在日间学校及其中的D/hh计划及其验证样本 父母\守护者，90名青年及其父母\在D/HH居住学校的监护人将被招募 要完成测试仪器和其他问卷，最多需要45分钟。古典和 项目响应理论方法将用于规模开发。仪器可靠性和构造有效性 将进行测试。最初的传播将发生在学区和治疗设施中 在华盛顿，科罗拉多州和亚利桑那州的项目。仪器将以DVD的最低成本提供。 调查人员：熟悉的临床医生由经验丰富的仪器开发人员组成的跨学科团队 听力损失管理的选项，调查人员积极参与计划丰富社区的计划 听力损失的人的资源将合作招募，学习，介绍和发布结果， 传播产生的乐器。