Hearing Loss and Quality of Life of Children and Youth

儿童和青少年的听力损失和生活质量

• 批准号: 7371873
• 负责人: Donald Lee Patrick
• 金额: $ 42.27万
• 依托单位: UNIVERSITY OF WASHINGTON
• 依托单位国家: 美国
• 财政年份: 2007
• 资助国家: 美国
• 起止时间: 2007-03-06 至 2010-01-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7371873
• 关键词: Activities of Daily Living; Adolescence; Affect; Age; Anxiety; Arizona; Child; Childhood; Clinical; Clinical Trials; Cognitive; Colorado; Communication; Communities; Condition; Consultations; Counseling; Cues; Cultural Backgrounds; Data; Depth; Development; Device or Instrument Development; Educational Status; Elements; Environment; Ethnic Origin; Evaluation; Focus Groups; Goals; Grant; Healthy People 2010; Hearing; Hearing Impaired Persons; Human Development; Individual; Intervention; Interview; Language; Life; Literature; Measurement; Measures; Mental Depression; Methods; Modeling; Needs Assessment; New Mexico; Parents; Perceived quality of life; Personal Satisfaction; Persons; Placement; Program Evaluation; Property; Psychometrics; Publishing; Qualitative Research; Quality of life; Questionnaires; Randomized; Range; Readability; Reading; Recreation; Recruitment Activity; Reporting; Research; Research Personnel; Resources; Review Literature; Sample Size; Sampling; Schools; Site; Social Development; Speech Development; Surgeon; Testing; Treatment/Psychosocial Effects; United States Dept. of Health and Human Services; Update; Validation; Vision; Washington; Well in self; Work; Youth; base; cost; critical developmental period; day; design; experience; hearing impairment; innovation; instrument; novel; programs; response; skills; theories; tool; young adult

DESCRIPTION (provided by applicant): Goal: We will develop and test hearing-loss specific quality-of-life (QoL) modules designed to be sensitive to environmental and psychosocial effects of hearing loss with the goal of developing a novel, multidimensional tool for use in evaluating interventions. Aims: 1. identify key QoL issues and develop QoL items specific to children and youth with hearing loss by conducting in-depth interviews and focus groups with youth ages 11-18 years and with parents of children ages 5-10 years ; 2. validate the cross-sectional measurement properties of hearing-loss specific QoL modules using classical and item-response theory methods; 3. explore association of degree of D/HH with QoL and known or expected correlates, using a clustered sample design and 4. revise the draft youth- and parent-report D/HH Modules using validation results and to disseminate the new D/HH Modules Significance: Hearing loss in early life carries broadly recognized implications for the development of speech, language, and communication skills. Consequently, interpersonal relationships and social development are affected, influencing a child's sense of well-being. Measures that reflect this fundamental construct are needed for use in needs assessment, research, program design and program evaluation. Innovation: We intend to build a theoretically-driven QoL measure using a needs-based approach that actively involves parents and youth who represent a range of hearing losses and cultural backgrounds. Methods and Analysis: Study 1: In-depth interviews to the point of redundancy with a minimum of 30 deaf youth ages 11-18 years and a minimum of 30 parents of children ages 5-10 years with range of hearing loss and ethnicity. Focus groups with parents and young adults will augment in-depth interviews. Cognitive debriefing, adaptation of items into video form, and readability analyses will be conducted to produce test modules. Study 2: Validation sample of 500 youth who are in D/HH programs in day schools and their parents\guardians, 90 youth and their parent\guardians who are in D/HH residential schools will be recruited to complete test instrument(s) and other questionnaires taking a maximum of 45 minutes. Classical and item-response theory methods will be used for scale development. Instrument reliability and construct validity will be tested. Initial dissemination will occur in school districts and treatment facilities participating in the project in Washington, Colorado, and Arizona. Instruments will be available on DVD at minimum cost. Investigators: An interdisciplinary team of experienced instrument developers, clinicians familiar with options for management of hearing loss, and investigators actively involved in programs to enrich community resources for those with hearing loss will collaborate to recruit, study, present and publish results and disseminate resulting instruments.

描述（由申请人提供）：目标：我们将开发和测试特定的听力生活质量质量（QOL）模块，旨在对听力损失的环境和社会心理影响敏感，以开发出一种新颖的，多维工具，以评估干预措施。目的：1。确定关键的QoL问题并开发针对儿童和青少年的QOL项目，通过进行深入的访谈和焦点小组为11-18岁，并与5-10岁儿童的父母一起进行听力损失； 2。使用经典和项目响应理论方法验证听力损失特异性QOL模块的横截面测量特性； 3。使用聚集样品设计和4。探索D/HH程度与QOL以及已知或预期相关的关联。4。使用验证结果修改青年和父母报告D/HH模块草案D/HH模块，并使新的D/HH模块具有重要意义：早期生活中的听力损失具有广泛的认可对语音，语言，语言和语言，语言和语言，语言和语言和语言和语言和语言和沟通能力的认识。因此，人际关系和社会发展受到影响，影响了孩子的幸福感。需要在需求评估，研究，计划设计和计划评估中使用这种基本结构的措施。创新：我们打算使用基于需求的方法来建立一个理论上驱动的QOL措施，该方法积极涉及代表一系列听力损失和文化背景的父母和青年。方法和分析：研究1：深入的访谈，至少30岁的聋哑青年11-18岁，至少有30名5-10岁儿童的父母，听力损失和种族范围。与父母和年轻人的焦点小组将增加深入的访谈。认知汇报，将项目适应视频形式以及可读性分析将进行生成测试模块。研究2：验证样本的验证样本，他们在日间学校及其父母\监护人，90名青年及其父母\在D/hh居住学校中的监护人的验证样本将被招募以完成测试工具，并最多45分钟。经典和项目响应理论方法将用于规模开发。仪器的可靠性和构造有效性将进行测试。最初的传播将在参与华盛顿，科罗拉多州和亚利桑那州项目的学区和治疗机构中发生。仪器将以DVD的最低成本提供。调查人员：由经验丰富的仪器开发人员，熟悉管理听力损失的选项的临床医生组成的跨学科团队，以及积极参与有听力损失者社区资源的计划的调查人员，将合作以招募，研究，研究和出版结果并发布结果并传播结果。