DEVELOPMENT OF CHILDREN WITH AUTISM AND THEIR FAMILIES

自闭症儿童及其家庭的发展

• 批准号: 7560761
• 负责人: Alice S. Carter
• 金额: $ 17.65万
• 依托单位: BOSTON UNIVERSITY MEDICAL CAMPUS
• 依托单位国家: 美国
• 财政年份: 2007
• 资助国家: 美国
• 起止时间: 2007-05-01 至 2008-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7560761
• 关键词: 6 year old; Age; Autistic Disorder; Behavior; Characteristics; Child; Child Development; Climate; Clinical; Complex; Consensus; Critiques; Data; Development; Diagnosis; Diagnostic Procedure; Drops; Early Diagnosis; Early Intervention; Eligibility Determination; End Point; Family; Family Process; Fathers; Grant; Individual; Intervention; Knowledge; Lead; Letters; Link; Longitudinal Studies; Massachusetts; Measurement; Measures; Mediating; Modeling; Mood Disorders; Mothers; Numbers; Outcome; Parents; Participant; Personal Satisfaction; Phenotype; Population; Problem behavior; Procedures; Process; Provider; Psychometrics; Readability; Recruitment Activity; Research; Resources; Sampling; Services; Severities; Symptoms; Temperament; Testing; Time; Well in self; Work; autism spectrum disorder; base; design; early childhood; interest; medical specialties; novel; programs; psychologic; response; satisfaction; service intervention; social communication impairment; theories; tool

The revised aims of this project are (1) To investigate the early course of development in children with autism, examining the influence of specific child, family, and intervention factors on stability and change in the core symptoms of autism (i.e., social impairment, communication, and repetitive behaviors/interests); and (2) To investigate the psychological well-being of mothers and fathers of children with autism during early childhood, examining relations between child, family, and intervention factors on stability and change in both positive and negative well-being. This work is based in a developmental contextual framework, in which child level processes are best understood within a complex context that includes parent and family processes and the interventions available to the child and family. We hypothesize that (1) The severity of core symptoms of autism are influenced directly by the presence of co-occurring problem behaviors, competencies and the intensity of intervention services, and indirectly by the child's predisposing temperament and parental well being. (2) Parental well-being is influenced directly by parental resources, family climate, severity of the broader autism phenotype, and the child's symptoms and problem behaviors. These variables also mediate the effects of other child factors and the parents' satisfaction with the intervention services received by their child. To test these hypotheses, we plan to recruit through early intervention specialty service programs 300 18-33 month-old children diagnosed with autism and to conduct a five-year, accelerated cross-sequential longitudinal study of their development and the changes that take place in the family and in the parents' well-being. We believe that the knowledge gained will inform developmental theory and will lead to the development of more effective and responsive child and parent support interventions.

该项目的修订目的是（1）调查自闭症儿童的早期发展过程，研究特定儿童，家庭和干预因素对自闭症核心症状（即社会障碍，沟通和重复行为/兴趣/利益）的稳定性和变化的影响； （2）调查幼儿期在自闭症儿童的母亲和父亲的心理健康，检查儿童，家庭和干预因素以及正面和负面福祉的稳定和变化的干预因素。这项工作基于一个发展上下文框架，在该框架中，最好在复杂的环境中最好地理解儿童级别的过程，该过程包括父母和家庭流程以及 儿童和家庭可用的干预措施。我们假设（1）自闭症核心症状的严重程度直接受到共同存在的问题行为，能力和干预服务强度的影响，并受到孩子的易感性和父母的健康的间接影响。 （2）父母的福祉直接受父母资源，家庭气候，更广泛的自闭症表型的严重程度以及孩子的症状和问题行为的影响。这些变量还介导其他儿童因素的影响以及父母对孩子接受的干预服务的满意。为了检验这些假设，我们计划通过早期干预专业服务计划招募300 18-33个月大的儿童被诊断出患有自闭症，并对他们的发展及其发展的纵向进行了五年，加速的跨序列纵向研究及其家庭和父母的幸福感发生的变化。我们认为，所获得的知识将为发展理论提供信息，并将导致发展更有效，反应迅速的孩子和父母支持干预措施。