Evaluation of Pediatric Patient Portals

儿科患者门户的评估

• 批准号: 6994212
• 负责人: MARIA T BRITTO
• 金额: $ 11.93万
• 依托单位: CINCINNATI CHILDRENS HOSP MED CTR
• 依托单位国家: 美国
• 财政年份: 2005
• 资助国家: 美国
• 起止时间: 2005-09-15 至 2007-09-14
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6994212
• 关键词: automated medical record system; bioinformatics; biomedical automation; clinical research; communication; computer assisted patient care; computer human interaction; computer system design /evaluation; cystic fibrosis; diabetes mellitus; health education; human subject; interview; juvenile rheumatoid arthritis; patient /disease registry; pediatrics; videotape /videodisc

Web-based medical records, self-management, and social support benefit adults with HIV, diabetes, arthritis, and other conditions, but less data exist for pediatric patients. The aims of this project are: A) to evaluate, by means of laboratory-based qualitative and quantitative methods, the usability of an electronic patient portal interface; B) to evaluate the feasibility, in specialty pediatrics practice, of patient portals as measured by: 1) the proportion of eligible population who enroll in the portals; 2) retention of users over 3- and 6-month periods; 3) characteristics of patients/families who enroll in and use the portals vs. those who do not; and 4) parent and health care provider reports of the acceptability, accuracy, and usefulness of the portal; C) to generate preliminary data, hypotheses, and methods for a future R01 to determine the effects of patient portals on 1) communication between parents and providers; 2) the ability of parents to manage their child's illness at home; and 3) hassles associated with communicating with health care providers and obtaining needed information. Portals will be implemented in three pediatric clinics: diabetes, cystic fibrosis, and juvenile arthritis. Usability will be tested with 15 subjects in a computer usability laboratory, and the interfaces will be improved based on that testing. Portal usage logs and chronic disease registries will be used to determine the number and characterizes of patients who enroll and use the portals at 3 and 6 months post-enrollment. Telephone interviews with 140 users and web-based surveys with 70 health care providers will determine acceptability and perceived usefulness of the portals. Qualitative analysis of interviews with 30 portals users will explain the range of use of the portals and how parents use portals to manage their child's illness.

基于网络的医疗记录、自我管理和社会支持使患有艾滋病毒、糖尿病、关节炎和其他疾病的成年人受益，但针对儿科患者的数据较少。该项目的目标是： A) 通过基于实验室的定性和定量方法评估电子患者门户界面的可用性； B) 评估专科儿科实践中患者门户的可行性，衡量标准为： 1) 合格的比例 在门户网站注册的人口； 2) 3个月和6个月的用户留存率； 3) 注册和使用门户网站的患者/家庭与未注册和使用门户网站的患者/家庭的特征； 4) 家长和医疗保健提供者关于门户网站可接受性、准确性和有用性的报告； C) 为未来的 R01 生成初步数据、假设和方法，以确定患者门户对 1) 家长和提供者之间沟通的影响； 2） 父母在家控制孩子疾病的能力； 3) 与医疗保健提供者沟通和获取所需信息相关的麻烦。门户网站将在三个儿科诊所实施：糖尿病、囊性纤维化和幼年关节炎。将在计算机可用性实验室对 15 名受试者进行可用性测试，并根据该测试改进界面。门户网站使用日志和慢性病登记将用于 确定注册后 3 个月和 6 个月注册和使用门户的患者的数量和特征。 对 140 名用户的电话采访以及对 70 名医疗保健提供者的网络调查将确定门户网站的可接受性和感知有用性。对 30 个门户用户的访谈进行定性分析，将解释门户的使用范围以及家长如何使用门户来管理孩子的疾病。