Center for Integrating Ethics & Genetic Research

整合道德中心

• 批准号: 7112436
• 负责人: Mildred K. Cho
• 金额: $ 80.78万
• 依托单位: STANFORD UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-09-01 至 2009-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7112436
• 关键词: Internet; behavioral /social science research tag; behavioral genetics; biomedical resource; clinical research; educational resource design /development; ethics; focus groups; genetic polymorphism; genetics; health care policy; health related legal; health surveys; human subject; interview; neurogenetics; science education; social change; training

DESCRIPTION (provided by applicant): Modern genetic research gives us unprecedented ability to understand and manipulate fundamental biological processes. Our growing potential to understand and shape the world in genetic terms also seriously challenges basic beliefs and ethical norms. At the same time, values and norms affect the way genetic research is designed and conducted. Despite the significant ethical and societal implications of emerging genetic research, there are few venues for geneticists to participate in interdisciplinary research and to discuss these issues. The overall goal of this proposal is to create a Center for Integrating Ethics and Genetic Research (CIEGR) to develop and test new models of deliberative, interactive processes that integrate ethical, legal and social considerations into the design and conduct of current and emerging genetic research. CIEGR will achieve these goals through a number of innovative programs and products: 1) The Program for Integrated ELSI Research (PIER), which will identify and conduct research on ethical, legal and social issues, focusing on two areas of genetic research (human genetic variation and neuro- and behavioral genetics), and develop educational materials and policy guidance; 2) a Benchside Consultation Program BCP) for genetic researchers seeking real-time consultation to anticipate and develop policy guidance to address ethical, legal or social issues that could arise from current or future research and that are not addressed by other institutional mechanisms; 3) a Training and Education Program that will train four postdoctoral scholars in both genetic and ELSI research, and use the ethical issues identified by PIER and BCP as the basis for producing educational materials for genetic and ELSI researchers. These will include two documentary training films on research ethics, issue briefs, policy guidance, and webcasts of a series of Interactive Dialogs. The new models will be widely adoptable and will enable unprecedented consideration of genetic research ethics issues among the research community and the public.

描述（由申请人提供）：现代遗传学研究使我们赋予了理解和操纵基本生物过程的前所未有的能力。我们以遗传术语理解和塑造世界的潜力也严重挑战了基本信念和道德规范。同时，价值和规范会影响遗传研究的设计和进行方式。尽管新兴的遗传研究具有重大的道德和社会意义，但遗传学家几乎没有参与跨学科研究并讨论这些问题的场所。该提案的总体目标是建立一个集成道德和遗传研究（CIEGR）的中心，以开发和测试新的审议，互动过程的新模型，将道德，法律和社会考虑因素整合到当前和新兴遗传研究的设计和行为中。 CIEGR将通过许多创新的计划和产品实现这些目标：1）综合ELSI研究计划（PIER），该计划将识别和进行有关伦理，法律和社会问题的研究，重点关注遗传研究的两个领域（人类遗传变异以及神经和行为遗传学），并制定教育材料和政策指导； 2）BCP的基础咨询计划BCP）供遗传学研究人员寻求实时咨询，以预测和制定政策指导，以解决当前或将来的研究可能引起的道德，法律或社会问题，而其他机构机制并未解决； 3）一项培训和教育计划，将在遗传和ELSI研究中培训四个博士后学者，并使用Pier和BCP确定的道德问题作为为遗传和ELSI研究人员生产教育材料的基础。这些将包括两部有关研究伦理，发行简介，政策指导和网络广播的纪录片培训电影，内容是一系列互动对话。新模型将被广泛采用，并将在研究界和公众中对遗传研究伦理问题进行前所未有的考虑。