Reducing Symptom Barriers Among American Indians

减少美洲印第安人的症状障碍

• 批准号: 7122091
• 负责人: FELICIA S HODGE
• 金额: $ 50.76万
• 依托单位: UNIVERSITY OF CALIFORNIA LOS ANGELES
• 依托单位国家: 美国
• 财政年份: 2005
• 资助国家: 美国
• 起止时间: 2005-09-13 至 2010-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7122091
• 关键词: Native Americans; behavioral /social science research tag; cancer complication; clinical research; culture; decision making; educational resource design /development; health behavior; health care service utilization; health services research tag; human subject; neoplasm /cancer education; patient care management; patient care personnel relations; patient oriented research; psychological aspect of cancer

DESCRIPTION (provided by applicant): The long-range goal of this project is to reduce or overcome barriers to cancer-related symptom management among American Indians (AIs). Little is known about the phenomena of cancer-related symptoms, their management, and barriers to care, or about the barriers faced by AI patients needing and/or seeking symptom management. Such cancer-related symptoms as fatigue, depression, and pain experienced by this population require clearer understandings-in terms of definitions, cultural constructs of symptoms, decision-making strategies, barriers to care, provider referrals, and treatment for symptom management care. This is an innovative, interdisciplinary study to (a) clarify/define the cultural constructs of cancer-related symptoms, and (b) to develop and test a reproducible clinic-based, innovative, and culturally appropriate program to overcome barriers to care for AI symptom management. 1. To ascertain, through qualitative means, barriers to treatment and management that derive from AI cultural perspective. More specifically, this aims seeks: To gain an understanding of culturally-embedded meaning of cancer-related symptoms (pain, fatigue, depression), their conceptualization, cultural construct(s), patterns and strategies of their disclosure by AIs. To identify the pathways and mechanisms of communication and treatment-seeking that AIs use for management of cancer-related pain and symptoms. To identify symptom management decision-making strategies/barriers among AI cancer patients/providers. 2. To design culturally sensitive materials to be used in the intervention phase of the study. These tools will include educational and resource materials and culturally appropriate instruments for measuring symptoms intended to improve AI knowledge of and access to cancer symptom management services. 3. To develop and test a reproducible, clinic-based, culturally appropriate intervention designed to overcome barriers to the delivery of symptom management for AIs. This intervention will be cast in a Talking Circles format, a culturally meaningful vehicle that has proven effective in past studies.

描述（由申请人提供）：该项目的远程目标是减少或克服美国印第安人（AIS）中与癌症相关症状管理的障碍。关于与癌症相关症状的现象，其管理和护理障碍，或需要和/或寻求症状管理的AI患者所面临的障碍，知之甚少。诸如疲劳，抑郁和疼痛等与癌症相关的症状需要对定义，症状的文化结构，决策策略，护理障碍，提供者转诊和症状管理护理治疗的理解更清晰地理解。这是一项创新的，跨学科的研究，旨在（a）澄清/定义与癌症相关症状的文化结构，（b）开发和测试可再现的基于诊所，创新性和文化上适合文化的计划，以克服对AI症状管理的护理障碍。 1。通过定性手段来确定从AI文化的角度获得的治疗和管理障碍。更具体地说，这是为了寻求： 为了了解与癌症相关症状（疼痛，疲劳，抑郁症）的文化意义，其概念化，文化结构，AIS披露的模式和策略。 确定AIS用于治疗癌症相关疼痛和症状的通信和治疗方法的途径和机制。 确定AI癌症患者/提供者中的症状管理决策策略/障碍。 2。设计在研究的干预阶段使用的文化敏感材料。这些工具将包括教育和资源材料以及适合文化的仪器，用于测量旨在提高AI知识和获得癌症症状管理服务的症状。 3。开发和测试可再现的，基于诊所的，具有文化适当的干预措施，旨在克服AIS症状管理的障碍。这种干预将以说话的圈子形式进行，这是一种具有文化意义的工具，在过去的研究中被证明有效。