Internet Peer Support for Breast Cancer

乳腺癌的互联网同伴支持

• 批准号: 6880155
• 负责人: Mark S. Salzer
• 金额: $ 14.27万
• 依托单位: UNIVERSITY OF PENNSYLVANIA
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-04-01 至 2007-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6880155
• 关键词: Internet; breast neoplasms; clinical research; computer assisted patient care; computer human interaction; computer system design /evaluation; education evaluation /planning; educational resource design /development; emotional adjustment; female; functional ability; human subject; neoplasm /cancer education; patient oriented research; peer group; psychological aspect of cancer; social support network; women' s health

DESCRIPTION (provided by applicant): Peer support is consistently and unambiguously recognized as benefiting women with breast cancer in their emotional adjustment and functional status. In the face of these findings it is disconcerting that face-to-face peer support interventions remain underutilized as recent surveys indicate that only 12 percent of breast cancer patients have participated in such groups. Travel distance, time investment, fatigue, among other factors can limit the extent to which women with breast cancer obtain face-to-face psychosocial support. The Internet has emerged as an exciting and potentially valuable tool in delivering psychosocial and educational interventions to persons with cancer, including being used as a conduit for peer support. Internet peer support is accessible from ones own home 24 hours a day, seven days a week, features that plausibly increase the accessibility and utilization of peer support for those who do not attend face-to-face support. This R21 application responds to PA 02-001 from the National Cancer Institute that invites research grant applications to conduct exploratory behavioral research in cancer control, specifically around issues related to improving quality of life. The primary aim of this study is to obtain preliminary data on impact of Internet peer support on the well-being, adjustment, and functioning of women recently diagnosed with breast cancer. The proposed randomized study will provide data on the potential effectiveness of Internet peer support that if promising, will serve as the basis for a future R01 proposal. Internet peer support will be offered as an adjunct to Internet education provided through ONCOLINK, an Internet site devoted to cancer education and outreach that is administratively operated and controlled by the University of Pennsylvania Cancer Center. The control group will consist of those who receive Internet education alone. A secondary aim of this pilot study is to assess the feasibility of various methods for understanding the Internet peer support process. The proposed process study will examine a number of key issues, including: 1) Level of participation in the online peer support intervention; 2) analysis of the online peer support communications; and 3) assessment of participant perceptions of the online support process. The products from this effort will serve as a basis for planning future behavioral and cancer control intervention research project grant applications (R01) based on the information.

描述（由申请人提供）：同伴支持一直被明确地认为有利于乳腺癌女性的情绪调整和功能状态。面对这些发现，令人不安的是，面对面的同伴支持干预措施仍未得到充分利用，因为最近的调查表明，只有 12% 的乳腺癌患者参加了此类团体。旅行距离、时间投入、疲劳等因素可能会限制乳腺癌女性获得面对面心理社会支持的程度。互联网已成为向癌症患者提供社会心理和教育干预的令人兴奋且具有潜在价值的工具，包括用作同伴支持的渠道。每周 7 天、每天 24 小时都可以在家中获得互联网同伴支持，这些功能似乎可以增加那些不参加面对面支持的人获得同伴支持的机会和利用率。此 R21 申请响应美国国家癌症研究所的 PA 02-001，邀请研究资助申请在癌症控制方面进行探索性行为研究，特别是围绕与提高生活质量相关的问题。本研究的主要目的是获得关于互联网同伴支持对最近被诊断患有乳腺癌的女性的福祉、适应和功能影响的初步数据。拟议的随机研究将提供有关互联网同行支持的潜在有效性的数据，如果有希望，将作为未来 R01 提案的基础。互联网同伴支持将作为通过 ONCOLINK 提供的互联网教育的辅助手段提供，ONCOLINK 是一个致力于癌症教育和推广的互联网网站，由宾夕法尼亚大学癌症中心管理和控制。对照组将由那些单独接受互联网教育的人组成。这项试点研究的第二个目的是评估理解互联网同伴支持过程的各种方法的可行性。拟议的过程研究将审查一些关键问题，包括： 1）在线同伴支持干预的参与程度； 2) 在线同行支持通信分析； 3) 评估参与者对在线支持流程的看法。这项工作的产品将作为基于这些信息规划未来行为和癌症控制干预研究项目拨款申请（R01）的基础。