VIDEO INTERVENTION/PREVENTION ASSESSMENT-TRANSITIONS

视频干预/预防评估-过渡

• 批准号: 6363362
• 负责人: MICHAEL OGDEN RICH
• 金额: $ 14.58万
• 依托单位: BOSTON CHILDREN'S HOSPITAL
• 依托单位国家: 美国
• 财政年份: 2000
• 资助国家: 美国
• 起止时间: 2000-03-01 至 2005-02-28
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6363362
• 关键词: adolescence (12-20); adult human (21+); behavioral /social science research tag; chronic disease /disorder; clinical research; curriculum; developmental psychology; experience; functional ability; health care model; health care service; health services research tag; human subject; interview; mental disorder prevention; neural plate /tube; outcomes research; patient care management; pediatrics; quality of life; sickle cell anemia; social psychology; spina bifida; spinal cord disorders; videotape /videodisc

Michael Rich, MD, MPJ, is an Adolescent Medicine physician with special clinical expertise and research interest in chronic diseases. He is particularly interested in investigating the patient's illness experience in order to develop health care delivery that is effective and sensitive to patient needs. In 1998 , he was awarded the 1998 New Investigator Award of the Society for Adolescent Medicine for his innovative patient- centered research method, Video Intervention/Prevention Assessment (VIA). Derived from established social science research methods, VIA is a qualitative technique which analyzes "video diaries" created by patients of their "real life" experiences with illness and health care to teach clinicians about disease and disability as it exists in the contexts of their lives, environments, and psychosocial features of asthma which had previously been inaccessible to traditional investigative techniques. A K23 award would allow Dr. Rich to advance this research career and further develop the VIA methodology through formal course work in the underlying research methods and analytical techniques, by integrating quantitative measures of clinical effectiveness under the sponsoring mentorship of Donald Goldmann, MD, and by working under the guidance of co-mentors who are leading experts in the research fields which inform VIA, including visual anthropology, qualitative research methods, and quantitative and qualitative health services research. The Research Plan applies VIA to the examination of the transition from pediatric to adult health care systems by young people with chronic, function-limiting conditions and special health care needs. Focusing on patients with myelodysplasia/spina bifida and sickle cell disease, the VIA Transitions study will use clinical, qualitative, and quantitative means to investigate: 1) What is the patient's health-related quality of life (HRQL) before, during, and after transition from pediatric to adult care? 2) What are the patient's needs at each stage of transition and how well are they being met? 3) What is the experience of transitioning care for a patient with complex needs and a function-limiting condition? Study participants will be assessed with clinical interviews and standardized HRQL instruments before making visual narratives of their illness experience at three points: 1) while they are under the care of the pediatric medical system, 2) when they leave pediatrics and initiate care in the adult health care system, and 3) after they have established their adult care for approximately one year. The visual narratives will be coded and triangulated with the data derived from clinical interviews and HRQL instruments for areas of congruence and dissonance. The finding swill be applied to the design of more patient-sensitive transition programs and management strategies. Applying VIA to a new clinical problem and analyzing the data from the original asthma pilot and the Transitions study. Dr. Rich will refine and modify this investigative methodology so that it is flexible enough to be applied to a broad range of clinical questions while retaining the richness of the data derived.

医学博士Michael Rich，MPJ是一名青春期医学医生，对慢性疾病具有特殊的临床专业知识和研究兴趣。他特别有兴趣调查患者的疾病经历，以发展有效且敏感的患者需求的医疗保健。 1998年，他因其创新的患者研究方法，视频干预/预防评估（VIA）而获得1998年新的青少年医学研究员奖。通过既定的社会科学研究方法得出，Via是一种定性技术，它分析了其“现实生活”患者在疾病和医疗保健方面创建的“视频日记”，以教导临床医生有关疾病和残疾的知识，因为它在其生活，环境，环境和心理特征的背景下存在于传统调查技术中，这是在其生活，环境和心理特征中存在的。 K23奖将使Rich博士能够通过在基础研究方法和分析技术中的正式课程工作来进一步发展这项研究职业，并通过整合MD Donald Goldmann的赞助指导下的临床有效性的定量衡量标准，并通过在Quornops and Quartitive Contrictiated Indulops和Quartitive contuctiative the Motion Computitiations的指导下进行临床有效性，这些方法是Quornops and Quornops and Quornops and totuty Ansoop的指导，该领域的视觉量和视觉效果是一项质量的研究。定性卫生服务研究。该研究计划适用于检查具有慢性，功能限制条件和特殊医疗保健需求的年轻人从小儿到成人医疗保健系统的过渡。专注于骨髓增生/脊柱裂和镰状细胞疾病的患者，Via Transitions研究将使用临床，定性和定量手段进行调查：1）从儿科到成人护理到成人护理之前，期间和之后，患者的健康相关生活质量（HRQL）是什么？ 2）在过渡的每个阶段，患者的需求是什么？满足他们的满足程度？ 3）对于具有复杂需求和功能限制状况的患者过渡护理的经验是什么？研究参与者将通过临床访谈和标准化的HRQL仪器进行评估，然后再在三个方面对其疾病经历进行视觉叙述：1）当他们在儿科医疗系统的照顾下，2）当他们离开儿科并在成人保健系统中启动护理时，以及3）在成人建立成人医疗大约一年后。视觉叙述将通过临床访谈和HRQL工具得出的数据进行编码和三角，以使其具有一致性和不和谐的领域。该发现的燕子应用于更具患者敏感的过渡计划和管理策略的设计。通过新的临床问题申请并分析原始哮喘试点和过渡研究中的数据。 Rich博士将完善并修改这种调查方法，以便它足够灵活，可以应用于广泛的临床问题，同时保留了得出的数据的丰富性。