Inclusive Digital Content for People with Aphasia (INCA)

失语症患者包容性数字内容 (INCA)

• 批准号: EP/P025587/1
• 负责人: Stephanie Wilson
• 金额: $ 63.24万
• 依托单位: City, University of London
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2017
• 资助国家: 英国
• 起止时间: 2017 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=EP%2FP025587%2F1
• 关键词: Inclusive; Digital; Content; People; Aphasia

Digital content is transforming our cultural, social, academic and business lives. Yet not everyone can readily access digital content. The 2.2 million people in the UK who live with a communication impairment face specific challenges. This includes people with aphasia, a language disorder most commonly caused by a stroke. Aphasia can affect people's ability to speak, to understand speech, to read and to write. In severe cases, people may be able to speak only a few words or may have very limited ability to read and write.The Stroke Association estimates that 350,000 people in the UK are living with the devastating consequences of aphasia. However this community lacks visibility. A strong digital presence could enhance visibility, but people with aphasia do not have a strong digital presence. They are not evident as digital content creators and curators. They struggle with digital content, especially textual content, and with the accessibility of current tools for content creation and consumption. Engaging with digital content involves the creation, dissemination and refashioning of rich digital resources for consumption by others over extended periods of time. No previous work has investigated customised digital tools to enable people with aphasia to participate in content creation and curation in this sense of creating digital artefacts for consumption by others. This is the problem driver for the INCA project.The overall objective of INCA is to investigate, co-design and trial digital content tools for people with aphasia. The research will focus on two broad groups of users: people who have significant language impairments as a consequence of their aphasia and people who have milder aphasia and therefore less severe language deficits. The research will explore a blended approach to digital content, intertwining the digital and physical worlds. Project partners, the Stroke Association and Dyscover, will host community projects in which the prototype tools are used to create and curate digital content with support from a visual artist; this work will be showcased at the end of the project.The research approach will emphasise co-creation. Users will participate through co-design workshops. As many co-design techniques are themselves not accessible to people with language impairments, INCA will also deliver co-design techniques for this community. Finally, the research will provide interaction and content design guidelines for "language-light" digital experiences; these will address the specific challenges of content creation.

数字内容正在改变我们的文化、社会、学术和商业生活。然而，并不是每个人都能轻松访问数字内容。英国有 220 万有沟通障碍的人面临着特殊的挑战。这包括失语症患者，失语症是一种最常见由中风引起的语言障碍。失语症会影响人们说话、理解言语、阅读和写作的能力。在严重的情况下，人们可能只能说几个词，或者读写能力非常有限。中风协会估计，英国有 350,000 人患有失语症的毁灭性后果。然而这个社区缺乏知名度。强大的数字存在可以提高可见性，但失语症患者没有强大的数字存在。他们作为数字内容创作者和策展人并不明显。他们在数字内容（尤其是文本内容）以及当前内容创建和消费工具的可访问性方面遇到困难。参与数字内容涉及创建、传播和重塑丰富的数字资源，供他人长期消费。之前的研究还没有研究过定制的数字工具，使失语症患者能够参与内容创作和管理，即创造供他人消费的数字制品。这是 INCA 项目的问题驱动因素。INCA 的总体目标是为失语症患者调查、共同设计和试用数字内容工具。该研究将重点关注两大用户群体：因失语症而出现严重语言障碍的人，以及失语症较轻、因此语言障碍较轻的人。该研究将探索数字内容的混合方法，将数字世界和物理世界交织在一起。项目合作伙伴中风协会和 Dyscover 将主办社区项目，在视觉艺术家的支持下，使用原型工具创建和管理数字内容；这项工作将在项目结束时展示。研究方法将强调共同创造。用户将通过联合设计研讨会参与。由于许多协同设计技术本身对于有语言障碍的人来说是无法使用的，INCA 还将为该社区提供协同设计技术。最后，该研究将为“轻语言”数字体验提供交互和内容设计指南；这些将解决内容创作的具体挑战。

项目成果

CreaTable Content and Tangible Interaction in Aphasia

创建表内容和失语症的有形互动

• DOI: http://dx.10.1145/3313831.3376490
• 发表时间: 2020
• 作者: Neate T

Empowering Expression for Users with Aphasia through Constrained Creativity

通过有限的创造力增强失语症用户的表达能力

• DOI: http://dx.10.1145/3290605.3300615
• 发表时间: 2019
• 作者: Neate T

Using creative digital technologies in aphasia rehabilitation

创造性数字技术在失语症康复中的应用

• DOI: http://dx.10.1145/3560232.3560234
• 发表时间: 2022
• 期刊: ACM SIGACCESS Accessibility and Computing
• 作者: Marshall J

Co-Created Personas: Engaging and Empowering Users with Diverse Needs Within the Design Process

共同创建的角色：在设计过程中吸引和增强具有不同需求的用户

• 发表时间: 2019
• 作者: Neate T

Giving a voice through design

通过设计发出声音

• DOI: http://dx.10.1145/3210604.3210648
• 发表时间: 2018
• 作者: McNaney R