PROFESSIONAL EDUCATION IN SICKLE CELL DISEASE

镰状细胞病专业教育

• 批准号: 5213648
• 负责人: KWAKU OHENE-FREMPONG
• 金额: --
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/5213648
• 关键词: continuing education; curriculum; education evaluation /planning; genetic counseling; health care personnel education; medical education; nurses; patient care management; physicians; sociologist

While a great many patients with sickle cell disease (SCD) receive care through Comprehensive Sickle Cell Centers and other specialized care teams, many are cared for in settings that do not have an intensive focus on SCD. Currently, there is no program of education offered regularly that provides health care professionals in various disciplines with the basic information needed for the care of such patients. In addition, new professionals working in Sickle Cell Centers have no systematic, standardized method of developing the knowledge and skills needed for advanced clinical practice in SCD. We plan to develop and implement an education program on SCD that will serve the needs of physicians, nurses, social workers, genetic counsellors, and other professionals throughout the United States. This program will be offered on two levels: basic instruction and advanced clinical practice. The long-term goal of this project is to promote optimal care and outcome for patients with SCD through improved knowledge and competence among their caretakers. Each component will be carefully evaluated. Specific Aims are as follows: (1) Identification of appropriate health care professionals and assessment of their needs. Health care professionals of various disciplines will be surveyed to determine their perceived educational needs, interest in continuing education on SCD, preferences for topics related to SCD, and preferred educational formats. (2) Presentation and evaluation of multidisciplinary courses on SCD. Based on needs assessment, curricula will be developed that is discipline-specific. Separate curricula will be prepared according to the prior knowledge and experience of the learner in each discipline. Regional courses will then be presented at sites selected according to degree of need and interest as determined by response to needs assessment questionnaires and demographics. Certification will be awarded to those who successfully complete the course. (3) Providing health professionals with the knowledge, skills, and materials to teach patients, families, and other health care providers about SCD. We have already developed and evaluated teaching tools that can be adapted by a variety of programs. However, instruction in their use is necessary for optimal results. In order to qualify for this component of the curriculum, the learner must have already achieved a designated level of knowledge and experience. The goal of this program is to "train the trainers," so that they will have the skills and materials necessary for establishing educational programs within their own settings. (4) Development of professional SCD networks. The Sickle Cell Nursing Network will be expanded and additional networks based on this model will be developed for physicians, psychosocial, professionals, and others.

虽然很多患有镰状细胞病（SCD）的患者接受护理 通过全面的镰状细胞中心和其他专业护理 团队，许多团队都在不集中注意力的设置中受到照顾 在SCD上。 目前，没有定期提供教育计划 这为各个学科的医疗保健专业人员提供了 护理此类患者所需的基本信息。 此外，新的 在镰状细胞中心工作的专业人员没有系统的 发展所需的知识和技能的标准化方法 SCD的高级临床实践。 我们计划开发和实施 SCD的教育计划将满足医生，护士的需求 社会工作者，遗传顾问和其他专业人员 美国。 该程序将在两个层面上提供：基本 指导和先进的临床实践。 这个长期目标 项目是为了促进SCD患者的最佳护理和结果 通过改善其看护人的知识和能力。 每个 组件将仔细评估。 具体目的如下：（1）确定适当的健康 护理专业人员和评估他们的需求。 卫生保健 将对各种学科的专业人员进行调查，以确定他们的 感知到的教育需求，对SCD继续教育的兴趣， 与SCD和首选教育格式有关的主题的偏好。 （2）SCD上的多学科课程的演示和评估。 根据需求评估，将开发课程 特定于学科。 根据 每个学科中学习者的先验知识和经验。 然后，将在选择的站点上介绍区域课程 通过对需求评估的响应确定的需求和利益程度和利益 问卷和人口统计。 认证将被授予 谁成功完成课程。 （3）提供卫生专业人员 借助教学患者，家庭的知识，技能和材料， 以及其他有关SCD的医疗保健提供者。 我们已经开发了， 可以评估可以通过各种程序来调整的教学工具。 但是，对于最佳结果来说，使用指导是必要的。 在 为了获得课程的该组成部分的资格，学习者必须 已经达到了指定的知识和经验水平。 该计划的目标是“培训培训师”，以便他们将 具有建立教育所需的技能和材料 在他们自己的设置中的程序。 （4）专业SCD的发展 网络。 镰状细胞护理网络将扩大，并且 将为医生开发基于此模型的其他网络， 社会心理，专业人士和其他人。