In-Touch: Implementation of a person-centered palliative care iNtervention To imprOve comfort, QUality of Life and social engagement of people with advanced dementia in Care Homes

In-Touch：实施以人为本的姑息治疗干预措施，以提高护理院中晚期痴呆症患者的舒适度、生活质量和社会参与度

• 批准号: 10108568
• 金额: $ 81.06万
• 依托单位: LANCASTER UNIVERSITY
• 依托单位国家: 英国
• 项目类别: EU-Funded
• 财政年份: 2024
• 资助国家: 英国
• 起止时间: 2024 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=10108568
• 关键词: Touch; Implementation; person; centered; palliative

Challenge. Caring for the increasing numbers of people across Europe with advanced dementia and palliative care needs who live in care homes is difficult and demanding. People with advanced dementia can be immobile, non-verbal and unable to take part in day-to day activities. They can be unsettled or agitated, with low quality-of-life and elevated levels of discomfort. Family members can find it difficult to connect meaningfully with their relative and are anxious about the future. Care staff can struggle to provide care other than for basic needs such as feeding, toileting and skin care. Solution. An ethically sound solution which advances beyond the science, providing both care ‘in-the moment’ (using Namaste Care) and planning for future care needs (using the Family Carer Decision Support ‘Comfort Care’ approach). We call this the In-Touch intervention. Plan. To deliver a cross-country cluster randomised controlled trial of the In Touch intervention in 56 nursing care homes across 7 countries to determine its effect on comfort, social engagement and quality of life. This is supported by 9 work packages ensuring that: the intervention is robustly planned and contextualised for different country settings; there is understanding of how it is delivered, and what people experience and ethically value about the intervention; the cost-effectiveness is understood; we have effective plans to transfer knowledge about this intervention if it is successful. Impact. This intervention could herald a major change in the way that care for people with advanced dementia, in the palliative phase of their illness, is provided across Europe. People with advanced dementia should have better quality of life as they approach death, improved engagement and reduced social isolation. Care staff will have an ethically sound and evidence-based intervention that is cost-effective to implement, with family members more involved in, and knowledgeable about, comfort care and future care plans.

挑战：照顾欧洲各地越来越多的住在疗养院的患有晚期痴呆症和姑息治疗的人是困难和艰巨的。患有晚期痴呆症的人可能会不动、不说话并且无法参加日常活动。他们可能会感到不安或烦躁，生活质量低下，不适程度升高。家庭成员可能会发现很难与亲属进行有意义的联系，并且对未来感到焦虑，护理人员可能很难提供除基本服务之外的护理。需要，例如喂养、厕所和皮肤护理解决方案。一种超越科学的道德解决方案，提供“即时”护理（使用 Namaste Care）并规划未来的护理需求（使用家庭护理者决策支持“舒适护理”方法）。我们支持在 7 个国家的 56 个疗养院开展一项跨国集群随机对照试验，以确定其对舒适度、社会参与度和生活质量的影响。由 9 个工作包组成确保：针对不同国家的情况对干预措施进行了强有力的规划和具体化；了解人们对干预措施的体验和道德价值；我们有有效的计划来传播相关知识；如果这项干预措施成功，则可能预示着整个欧洲为晚期痴呆症患者提供的护理方式将发生重大变化。当他们接近死亡时，参与度提高，社交减少护理人员将采取符合道德、基于证据的干预措施，实施起来具有成本效益，让家庭成员更多地参与并了解舒适护理和未来护理计划。