Administrative Core

行政核心

• 批准号: 10450693
• 负责人: Michael Byrne Robinson
• 金额: $ 23.56万
• 依托单位: CHILDREN'S HOSP OF PHILADELPHIA
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-07-15 至 2026-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10450693
• 关键词: Adult; Advisory Committees; Advocacy; Advocate; Affective; Applied Research; Area; Award; Basic Science; Behavioral; Biometry; Budgets; Cardiology; Chalk; Child; Clinical; Cognitive; Collaborations; Communication; Communities; Computing Methodologies; Data; Data Science Core; Development; Disease; Education; Educational workshop; Electroencephalography; Electronic Health Record; Ensure; Environment; Etiology; Faculty; Family; Fostering; Functional disorder; Funding; Genetic; Genetic Risk; Genomics; Goals; Government; Grant; Growth; Human; Individual; Infant; Innovative Therapy; Intellectual and Developmental Disabilities Research Centers; Intellectual functioning disability; Interdisciplinary Study; Intervention; Journals; Language; Lead; Leadership; Magnetic Resonance Imaging; Magnetoencephalography; Measures; Mentors; Mission; Modernization; Monitor; Motor; National Institute of Child Health and Human Development; National Institute of Neurological Disorders and Stroke; Neurodevelopmental Disability; Neurosciences; Oncology; Parents; Pathogenesis; Patients; Pediatric Hospitals; Pennsylvania; Perinatology; Phenotype; Philadelphia; Physicians; Positioning Attribute; Pre-Clinical Model; Program Development; Publications; Reporter; Reproducibility of Results; Research; Research Institute; Research Project Grants; Research Support; Research Training; Resources; Risk; Scientist; Series; Surveys; System; Technology; Training; Training Activity; Training Programs; Translational Research; Universities; Utilization Review; Vision; Work; auditory processing; base; career development; cognitive ability; community organizations; cost effectiveness; data integration; educational atmosphere; gene therapy; genetic variant; genomic data; induced pluripotent stem cell; innovation; meetings; member; mouse model; multidisciplinary; neural circuit; neuroimaging; next generation; novel therapeutics; patient advocacy group; post-doctoral training; processing speed; professor; programs; recruit; satisfaction; skills; social; success; support network; systematic review; translational goal; web site

(CORE A: ADMINISTRATIVE CORE) PROJECT SUMMARY This Administrative Core will provide oversight and management of the Intellectual and Developmental Disabilities Research Center at the Children’s Hospital of Philadelphia (CHOP) and the University of Pennsylvania (Penn). The center has three specific aims. First, we will lead an innovative, translational research agenda by supporting cores that continually evolve to provide cutting-edge technologies and meet the needs of center members. The center also supports a new research project that uses most of these cores to determine if magnetoencephalography (MEG) can be used to predict general cognitive ability and language-specific ability in children with a genetic risk for intellectual disability. Second, we will lead a career development initiative that supports multidisciplinary training. Third, we will promote interactions and collaboration, advocate for IDD research and its growth at CHOP/Penn and beyond, and we will ensure that advances in IDD research are rapidly disseminated to a wide variety of scientific and lay audiences with a focus on families of children with IDDs. The Administrative Core oversees management, strategy and vision for the IDDRC. It will: (1) Provide oversight of the cores including review and approval of new users, review of utilization, and survey user satisfaction; (2) Provide oversight of the research project, including regular progress meetings; (3) Provide oversight of core budget and monitoring their of cost-effectiveness; (4) Manage all training related activities, including organizing seminar series; (5) Maintain websites for the IDDRC and our training programs; (6) Coordinate meetings with internal, external, and patient advisory groups; (7) Manage all communication with NICHD; (8) Foster collaborations with other IDDRCs across the network; (9) Lead institutional, regional, and national advocacy; (10) Disseminate research findings to academic and community/family organizations and stakeholders; and (11) Organize activities that encourage networking and collaboration between cores, among center members, and with other centers and resources at CHOP/Penn. The center has three guiding principles. First, we seek to foster community, to encourage collaborative, inter- disciplinary research and to attract the next generation of scientists to the field. Second, solicit advice from our advisory committees to help the center continually evolve so that we meet the needs of our users and our community of constituents. Finally, we emphasize support of innovative, translational research that will define the etiology/pathophysiology of IDDs and lead to new interventions for children and adults with neurodevelopmental disabilities. Collectively, our activities are sharply focused on supporting research that has the potential to greatly impact the lives of those with an IDD.

（核心A：行政核心） 项目摘要 这种行政核心将提供对智力和发展残疾的监督和管理 费城儿童医院（CHOP）和宾夕法尼亚大学（Penn）的研究中心。 该中心有三个特定的目标。首先，我们将通过支持来领导创新的，翻译的研究议程 不断发展以提供最先进技术并满足中心成员需求的核心。 中心还支持一个新的研究项目，该项目使用大多数核心来确定是否是否 磁脑摄影（MEG）可用于预测一般认知能力和语言特定能力 智障遗传风险的儿童。第二，我们将领导一项职业发展计划 支持多学科培训。第三，我们将促进互动和协作，倡导IDD 研究及其在Chop/Penn及其他地区的增长，我们将确保IDD研究的进步迅速 传播到各种科学和室外观众，重点关注IDD的儿童家庭。 行政核心监督IDDRC的管理，策略和愿景。它将：（1）提供监督 核心的核心，包括新用户的审查和批准，利用率审查以及调查用户满意度； （2） 提供对研究项目的监督，包括定期进度会议； （3）提供核心的监督 预算并监视其成本效益； （4）管理所有与培训有关的活动，包括组织 研讨会系列； （5）维护IDDRC和我们的培训计划的网站； （6）与 内部，外部和患者咨询小组； （7）管理与NICHD的所有交流； （8）福斯特 与整个网络的其他IDDRC合作； （9）领导机构，地区和国家倡导； （10） 向学术和社区/家庭组织和利益相关者传播研究结果； （11） 组织活动，鼓励核心，中心成员之间的网络和协作以及 在Chop/Penn的其他中心和资源。 该中心有三个指导原则。首先，我们寻求培养社区，以鼓励协作，间 纪律研究并吸引下一代科学家进入该领域。第二，请我们索取建议 咨询委员会不断帮助该中心，以便我们满足用户和我们的用户需求 构成社区。最后，我们强调对创新，翻译的研究的支持，以定义 IDD的病因/病理生理学，并为儿童和成人提供新的干预措施 神经发育障碍。总的来说，我们的活动专注于支持研究的研究 极大地影响IDD的人的生活的潜力。