Outreach, Recruitment, and Engagement

外展、招聘和参与

• 批准号: 10407983
• 负责人: GUERRY Marie PEAVY
• 金额: $ 21.07万
• 依托单位: UNIVERSITY OF CALIFORNIA, SAN DIEGO
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-05-01 至 2024-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10407983
• 关键词: Address; Alzheimer' s Disease; Alzheimer' s disease related dementia; Appearance; Assessment tool; Attitude; Awareness; California; Caregivers; Clinical; Clinical Research; Clinical Trials; Communities; Community Services; County; Dementia; Diagnostic; Disease; Elderly; Enrollment; Ensure; Ethnic group; Extended Family; Family; Family Caregiver; Family member; Goals; Health Care Research; Health Personnel; Health Professional; Healthcare Systems; Individual; Institution; Knowledge; Latino; Latino Population; Learning; Longitudinal Studies; Longitudinal cohort; Memory; Mission; Neighborhoods; Newsletter; Nongovernmental Organizations; Nurses; Outcome; Outcome Measure; Paper; Participant; Patients; Persons; Physicians; Population Heterogeneity; Positioning Attribute; Process; Program Evaluation; Publishing; Quality of life; Radio; Registries; Research; Research Personnel; Research Project Grants; Resources; Social Workers; Social support; Specific qualifier value; Surveys; Target Populations; Targeted Research; United States Department of Veterans Affairs; Universities; Work; base; cognitive testing; cohort; community setting; design; experience; improved; innovation; interest; literacy; member; outreach; outreach program; programs; ranpirnase; recruit; research study; screening; skills; social media; success; volunteer; web site

ORE CORE - PROJECT SUMMARY/ABSTRACT By coordinating all ADRC outreach, recruitment, and engagement, the ORE Core of the Shiley-Marcos Alzheimer's Disease Research Center (ADRC) addresses a broad mission that includes recruitment of subjects for the ADRC longitudinal cohort and for affiliated research studies, and support mechanisms targeting numerous sectors of the community through programs of outreach and engagement. Outreach programs focus primarily on 1) older adults, family members, and caregivers, 2) the lay public, 3) community partners, 4) Center staff and volunteers, 5) healthcare professionals, and 6) the research community. Engagement programs, primarily targeting older adults, their families and caregivers, include providing information about Alzheimer's disease and related disorders (ADRD) and increasing awareness of available support resources. Support programs are designed for individuals who are experiencing the challenges of living with dementia, including caregivers, with a goal of enhancing quality of life. The ORE Core also addresses the needs of those individuals (stakeholders) who are in a position to lessen the burden, such as extended family members and healthcare providers. There is significant overlap among the three ORE Core mandates in efforts to recruit and retain research participants and provide support and learning opportunities for subjects, family, and caregivers, as well as residents of the extended community. The latter includes a large Latino population in neighborhoods in San Diego County that provides numerous opportunities to increase diversity in our cohort. Recruitment benefits from two of our most successful efforts, 1) free memory screening offered to diverse populations of older adults in the community and 2) the large ADRC Registry populated by the ORE, Clinical, and Latino Cores to identify and track older adults who have agreed to be contacted for referral to ADRD studies. Decisions for registry inclusion are based on existing and proposed research studies at UCSD and affiliated institutions (e.g., co-local universities, San Diego VA, other Alzheimer's Disease Centers, national initiatives). We develop strategies (e.g., Currents newsletter) for the important goal of retaining research volunteers for ongoing participation. In order to maximize success in reaching, engaging, and recruiting all sectors of the community, we assess Outcomes that identify the value of each ORE Core initiative. We use the findings to improve these programs and, importantly, share their descriptions and outcomes with interested Alzheimer's Disease Centers, research professionals, and healthcare personnel.

矿石核心 - 项目摘要/摘要 通过协调所有ADRC外展，招聘和参与，这是Shiley-Marcos的矿石核心 阿尔茨海默氏病研究中心（ADRC）解决了一个广泛的使命，其中包括招募 ADRC纵向队列和附属研究的受试者，并支持机制 通过宣传和参与计划针对社区的众多部门。外展 计划的重点是1）老年人，家庭成员和照顾者，2）外行公众，3）社区 合作伙伴，4）中心工作人员和志愿者，5）医疗保健专业人员，以及6）研究社区。 参与计划主要针对老年人，他们的家庭和照料者，包括提供 有关阿尔茨海默氏病和相关疾病（ADRD）的信息，并提高了对现有疾病的认识 支持资源。支持计划专为经历挑战的个人而设计 与痴呆症（包括护理人员）一起生活，目的是提高生活质量。矿芯也 满足那些有能力减轻负担的个人（利益相关者）的需求，例如 大家庭成员和医疗保健提供者。三个矿石核心之间存在显着重叠 要求招募和保留研究参与者并提供支持和学习机会的努力 对于受试者，家庭和照料者以及扩展社区的居民。后者包括 圣地亚哥县社区的大量拉丁裔人口提供了许多机会 增加我们队列的多样性。招聘受益于我们最成功的两项努力，1）免费 为社区中各种老年人提供的记忆筛查和2）大型ADRC 由矿石，临床和拉丁裔核心填充的注册表，以识别和跟踪拥有的老年人 同意联系参考ADRD研究。注册表的决策基于现有 并在UCSD和附属机构进行了研究（例如，弗吉尼亚州圣地亚哥的联合大学， 其他阿尔茨海默氏病中心，国家倡议）。我们制定策略（例如，电流通讯） 为了保留研究志愿者进行持续参与的重要目标。为了最大化 在社区的所有领域达到，参与和招募所有领域的成功，我们评估了成果 确定每个矿石核心计划的价值。我们使用这些发现来改进这些程序，并 重要的是，与感兴趣的阿尔茨海默氏病中心分享他们的描述和结果 专业人士和医疗保健人员。