Facebook Intervention for Young Onset Melanoma Patients and Families

Facebook 对年轻发病黑色素瘤患者和家庭的干预

• 批准号: 10406239
• 负责人: Sharon L Manne
• 金额: $ 52.81万
• 依托单位: RBHS -CANCER INSTITUTE OF NEW JERSEY
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-06-01 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10406239
• 关键词: Academy; Adult; Age; Age-Years; American; American Cancer Society; Attention; Behavior; Behavior Therapy; Behavioral; Cutaneous; Dermatology; Detection; Diagnosis; Effectiveness of Interventions; Exposure to; Facebook; Family; Family member; First Degree Relative; Foundations; Frequencies; Goals; Habits; Health; Health Personnel; Hour; Intervention; Intervention Studies; Lesion; Malignant Neoplasms; Mediating; Modeling; Morbidity - disease rate; National Cancer Institute; Outcome; Participant; Patients; Persons; Population; Prevention; Prevention program; Preventive; Primary Prevention; Professional Organizations; Prognosis; Protective Clothing; Provider; Public Health; Randomized; Relative Risks; Reporting; Risk; Risk Factors; Screening for Skin Cancer; Second Primary Neoplasms; Self Efficacy; Self-Examination; Skin; Skin Cancer; Social Behavior; Solar Energy; Subgroup; Sun Exposure; Sunscreening Agents; Surgeon; Surveys; Survivors; Targeted Research; Testing; The Sun; Thick; Time; Treatment Efficacy; Ultraviolet Rays; United States; Work; aged; base; behavioral outcome; effectiveness evaluation; efficacy evaluation; family support; follow-up; healthy lifestyle; improved; innovation; melanoma; patient engagement; peer; peer support; post intervention; primary outcome; secondary outcome; skin cancer prevention; social; sun protection; theories; two-arm study; uptake; young adult

Abstract The proposed study focuses on improving sun protection and skin surveillance practices among young onset melanoma survivors and their first degree relatives (FDRs). As a group, young onset survivors have been identified by the National Cancer Institute as a unique and growing population. Survivors are at higher relative risk for a second malignancy than adults diagnosed with cancer over 39 years of age. FDRs of young melanoma patients are at increased risk for melanoma. Melanoma survivors and their FDRs should engage in regular total cutaneous exams, comprehensive skin self-examinations, and sun protection. Despite their increased risk and the fact that this population is growing, FDRs pay relatively little attention to sun protection and skin surveillance behaviors. Although the vast majority of young onset melanoma survivors engage in regular total cutaneous exams, many do not engage in regular skin self-exams or sun protection. There is no intervention research targeting the unique and growing population of young onset survivors and their FDRs. The proposed study expands an effective behavioral intervention to improve total cutaneous exams, skin self- exams, and sun protection behaviors among FDRs of survivors of all ages to young onset patients and their FDRs. We will deliver the intervention via secret groups on Facebook comprised of FDRs and young onset patients from multiple families. Our pilot work demonstrates we can engage families in a Facebook group. We will randomize 577 FDRs and 583 young onset survivors to one of two study arms: a 12-week Young Melanoma Family Facebook intervention or a 12-week Healthy Lifestyle Facebook intervention. Participants will complete a baseline, post-intervention, and a 6-month post-intervention survey. The study has one primary and two secondary aims. The primary aim (FDRs) is to examine the efficacy of the Young Melanoma Family Facebook intervention versus the Healthy Lifestyle Facebook intervention on total cutaneous exam (primary outcome), skin self-exam frequency and comprehensiveness, and sun protection practices (secondary outcomes) of FDRs of young melanoma survivors. A secondary aim (survivors) is to examine the efficacy of the Young Melanoma Family Facebook intervention on patients' skin self-exam frequency and comprehensiveness and sun protection habits. Another secondary aim is to examine the mechanisms of intervention efficacy.

抽象的 拟议的研究重点是改善年轻发作的防晒和皮肤监测习惯 黑色素瘤幸存者及其一级亲戚（FDRS）。作为一个小组，年轻的发作幸存者已经 由国家癌症研究所确定为一个独特的人口。幸存者处于较高的亲戚 第二次恶性肿瘤的风险比诊断出39岁以上癌症的成年人的风险。年轻人 黑色素瘤患者的黑色素瘤风险增加。黑色素瘤幸存者及其FDR应该参与 定期全面的皮肤检查，全面的皮肤自我检查和防晒。尽管他们 风险增加以及该人口正在增长，FDR对防晒的关注相对较少的关注 和皮肤监测行为。尽管绝大多数年轻的黑色素瘤幸存者参与 定期的全皮肤检查，许多人不进行常规的皮肤自我检查或防晒。没有 干预研究针对年轻的幸存者及其FDR的独特和不断增长的人群。 拟议的研究扩大了有效的行为干预措施，以改善全皮肤检查，皮肤自我 考试以及各个年龄段的年轻患者幸存者的FDR之间的防晒行为及其 FDR。我们将在Facebook上通过秘密团体进行干预，包括FDR和年轻的发作 来自多个家庭的患者。我们的飞行员工作表明，我们可以与家庭与Facebook小组的联系。我们 将将577个FDR和583个年轻的幸存者随机分配给两个研究臂之一：一个12周的年轻人 黑色素瘤家族Facebook干预或为期12周的健康生活方式Facebook干预。参与者 将完成一项基线，干预后和6个月的干预后调查。该研究有一个主要 和两个次要目标。主要目的（FDR）是检查年轻黑色素瘤家族的功效 Facebook干预与健康生活方式的Facebook干预全部皮肤考试（主要 结局），皮肤自我检查频率和全面性以及防晒实践（次要 年轻黑色素瘤幸存者FDR的结果。次要目的（幸存者）是检查 年轻的黑色素瘤家庭Facebook干预患者皮肤自我检查的频率和 全面性和防晒习惯。另一个次要目的是检查 干预功效。

项目成果

Family Attitudes and Communication about Sun Protection and Sun Protection Practices among Young Adult Melanoma Survivors and Their Family Members.

• DOI: 10.1080/10810730.2021.2008552
• 发表时间: 2021-11-02
• 期刊: JOURNAL OF HEALTH COMMUNICATION
• 影响因子: 4.4
• 作者: Manne, Sharon;Kashy, Deborah A.;Pagoto, Sherry;Peterson, Susan K.;Heckman, Carolyn J.;Gallo, Joseph;Berger, Adam;Buller, David B.;Kulik, Alexandria;Frederick, Sara;Pesanelli, Morgan
• 通讯作者: Pesanelli, Morgan