Effect of Covid-19 on Caregivers of Persons with Dementia

Covid-19 对痴呆症患者照顾者的影响

• 批准号: 10220410
• 负责人: Brent Peter Forester
• 金额: $ 44.63万
• 依托单位: JOHNS HOPKINS UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-09-01 至 2022-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10220410
• 关键词: Affect; Agitation; Alzheimer' s Disease; Alzheimer' s disease caregiver; Alzheimer' s disease patient; Assisted Living Facilities; Behavior; Behavioral; COVID-19; COVID-19 pandemic; Caregiver Burden; Caregivers; Caring; Communicable Diseases; Communities; Continuity of Patient Care; Death Rate; Decision Making; Dementia; Dronabinol; Elderly; Employment; Family; Family Caregiver; Family Relationship; Fibrinogen; Formal caregiver; Goals; Guidelines; Health; Healthcare; Healthcare Systems; Home; Infection Control; Institutes; Interview; Long-Term Care; Methods; Morbidity - disease rate; Nature; Nursing Homes; Outpatients; Patient Care; Patients; Personal Satisfaction; Persons; Procedures; Quarantine; Randomized Controlled Trials; Role; Severities; Shelter facility; Stress; Structure; Time; Vaccines; Work; behavior change; caregiving; experience; infection risk; informal caregiver; mortality; pandemic disease; risk mitigation; stressor

The US and its healthcare systems are experiencing an unprecedented crisis through the COVID-19 pandemic that is having a major impact on PWD, their family caregivers, and the front- line professional staff who support them. In many communities, death rates from COVID- 19 disproportionately involve older adults and PWD, especially those living in assisted living facilities and nursing homes. Health workers in these facilities, and caring for older adults at home, are also at risk of infection, morbidity and even mortality.Infection control guidelines and mandates have shut down institutional access to visitors and instituted quarantining procedures that further isolate PWD. Lack of structured activities, sheltering in place, caregiver stressors around employment, finances, and risk mitigation all have the potential to exacerbate behavioral issues in PWD. The nature of the pandemic also creates the need for urgent, real-time decision- making, in the face of an evolving infectious disease that is highly communicable, leads to unpredictable and precipitous declines and for which there is no cure or vaccine. Specific Aims: The goal of this study is to engage family and professional (CNAs,LPNs, RNs) caregivers of PWD across the care continuum (nursing homes, assisted living facilities, and in the community) to study the impact of COVID-19 on the health and well-being of PWD and their caregivers, the caregiving experience and the impact of COVID-19 on patient behaviors and work/family relationships. Through a mixed-methods study involving 600 formal and informal caregivers of PWD residing in the community, in assisted living facilities (ALF) and nursing homes, we will accomplish this goal through the following aims: Aim 1: Describe the caregiver lived experience during the COVID-19 pandemic Aim 2: Examine how COVID-19 related factors (including quarantining, isolation, etc.) have affected caregiver stress. Aim 3: Explore the role of COVD-19 related factors (i.e., PPE, caregiver stress) on behavior changes and severity in PWD. Aim 4: Assess the impact of COVID-19 on caregiver planning and health care decision-making

美国及其医疗保健系统正在经历一场前所未有的危机 COVID-19 大流行对残疾人及其家庭护理人员和社区产生了重大影响 支持他们的一线专业人员。在许多社区，新冠肺炎导致的死亡率 19 不成比例地涉及老年人和残疾人，特别是那些生活在辅助生活中的人 设施和疗养院。这些设施中的卫生工作者以及在这些设施中照顾老年人的人员 在家中，也面临感染、发病甚至死亡的风险。感染控制指南和 任务规定关闭了机构对访客的准入并制定了隔离程序 进一步隔离残疾人。缺乏结构化活动、就地庇护、护理人员压力 围绕就业、财务和风险缓解的所有方面都有可能加剧行为 PWD 中的问题。大流行的性质也需要做出紧急、实时的决策—— 面对一种高度传染性的不断演变的传染病，导致 不可预测的急剧下降，并且没有治愈方法或疫苗。 具体目标： 本研究的目标是让家庭和专业（CNA、LPN、RN）护理人员参与 整个护理过程中的残疾人（疗养院、辅助生活设施和社区） 为了研究 COVID-19 对残疾人及其护理人员的健康和福祉的影响， 护理经验以及 COVID-19 对患者行为和工作/家庭的影响 关系。通过一项涉及 600 名正式和非正式护理人员的混合方法研究 居住在社区、辅助生活设施 (ALF) 和疗养院的残疾人，我们将 通过以下目标实现这一目标： 目标 1：描述 COVID-19 大流行期间看护者的生活经历 目标 2：检查 COVID-19 相关因素（包括隔离、隔离等）如何影响 影响照顾者的压力。 目标 3：探索 COVD-19 相关因素（即 PPE、护理人员压力）对行为的作用 PWD 的变化和严重程度。 目标 4：评估 COVID-19 对护理人员规划和医疗保健决策的影响

项目成果

Cannabinoids for Agitation in Alzheimer's Disease.

• DOI: 10.1016/j.jagp.2021.01.015
• 发表时间: 2021-12
• 期刊: The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry
• 作者: Outen JD;Burhanullah MH;Vandrey R;Amjad H;Harper DG;Patrick RE;May RL;Agronin ME;Forester BP;Rosenberg PB
• 通讯作者: Rosenberg PB