Effect of Covid-19 on Caregivers of Persons with Dementia

Covid-19 对痴呆症患者照顾者的影响

• 批准号: 10220410
• 负责人: Brent Peter Forester
• 金额: $ 44.63万
• 依托单位: JOHNS HOPKINS UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-09-01 至 2022-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10220410
• 关键词: Affect; Agitation; Alzheimer' s Disease; Alzheimer' s disease caregiver; Alzheimer' s disease patient; Assisted Living Facilities; Behavior; Behavioral; COVID-19; COVID-19 pandemic; Caregiver Burden; Caregivers; Caring; Communicable Diseases; Communities; Continuity of Patient Care; Death Rate; Decision Making; Dementia; Dronabinol; Elderly; Employment; Family; Family Caregiver; Family Relationship; Fibrinogen; Formal caregiver; Goals; Guidelines; Health; Healthcare; Healthcare Systems; Home; Infection Control; Institutes; Interview; Long-Term Care; Methods; Morbidity - disease rate; Nature; Nursing Homes; Outpatients; Patient Care; Patients; Personal Satisfaction; Persons; Procedures; Quarantine; Randomized Controlled Trials; Role; Severities; Shelter facility; Stress; Structure; Time; Vaccines; Work; behavior change; caregiving; experience; infection risk; informal caregiver; mortality; pandemic disease; risk mitigation; stressor

The US and its healthcare systems are experiencing an unprecedented crisis through the COVID-19 pandemic that is having a major impact on PWD, their family caregivers, and the front- line professional staff who support them. In many communities, death rates from COVID- 19 disproportionately involve older adults and PWD, especially those living in assisted living facilities and nursing homes. Health workers in these facilities, and caring for older adults at home, are also at risk of infection, morbidity and even mortality.Infection control guidelines and mandates have shut down institutional access to visitors and instituted quarantining procedures that further isolate PWD. Lack of structured activities, sheltering in place, caregiver stressors around employment, finances, and risk mitigation all have the potential to exacerbate behavioral issues in PWD. The nature of the pandemic also creates the need for urgent, real-time decision- making, in the face of an evolving infectious disease that is highly communicable, leads to unpredictable and precipitous declines and for which there is no cure or vaccine. Specific Aims: The goal of this study is to engage family and professional (CNAs,LPNs, RNs) caregivers of PWD across the care continuum (nursing homes, assisted living facilities, and in the community) to study the impact of COVID-19 on the health and well-being of PWD and their caregivers, the caregiving experience and the impact of COVID-19 on patient behaviors and work/family relationships. Through a mixed-methods study involving 600 formal and informal caregivers of PWD residing in the community, in assisted living facilities (ALF) and nursing homes, we will accomplish this goal through the following aims: Aim 1: Describe the caregiver lived experience during the COVID-19 pandemic Aim 2: Examine how COVID-19 related factors (including quarantining, isolation, etc.) have affected caregiver stress. Aim 3: Explore the role of COVD-19 related factors (i.e., PPE, caregiver stress) on behavior changes and severity in PWD. Aim 4: Assess the impact of COVID-19 on caregiver planning and health care decision-making

美国及其医疗保健系统正在遇到前所未有的危机 COVID-19对PWD，其家庭护理人员和The的大流行 支持他们的前线专业员工。在许多社区中，来自共同的死亡率 19不成比例地涉及老年人和PWD，尤其是那些生活在辅助生活中的人 设施和疗养院。这些设施中的卫生工作者，并照顾老年人 家庭，也有感染，发病率甚至死亡率的风险。感染控制指南和 授权已关闭机构访问访客并建立了隔离程序 进一步隔离PWD。缺乏结构化活动，庇护所，照料者压力源 围绕就业，财务和降低风险的危险都有可能加剧行为 PWD中的问题。大流行的性质还创造了需要紧急，实时决策的必要 面对一种高度传染性的传染病，使 不可预测且急剧下降，没有治疗或疫苗。 具体目的： 这项研究的目的是与家庭和专业人士（CNA，LPN，RNS，RNS）互动 PWD穿过护理连续性（疗养院，辅助生活设施以及社区） 研究Covid-19对PWD及其护理人员的健康和福祉的影响， 护理经验以及Covid-19对患者行为和工作/家庭的影响 关系。通过涉及600名正式和非正式护理人员的混合方法研究 PWD居住在社区，辅助生活设施（ALF）和疗养院中，我们将 通过以下目标实现此目标： AIM 1：描述Covid-19期间的护理人员生活经验 AIM 2：检查COVID-19如何相关因素（包括隔离，隔离等） 受影响的护理人员压力。 AIM 3：探索COVD-19相关因素（即PPE，护理人员压力）的作用 PWD的变化和严重程度。 目标4：评估Covid-19对护理人员计划和医疗保健决策的影响

项目成果

Cannabinoids for Agitation in Alzheimer's Disease.

• DOI: 10.1016/j.jagp.2021.01.015
• 发表时间: 2021-12
• 期刊: The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry
• 作者: Outen JD;Burhanullah MH;Vandrey R;Amjad H;Harper DG;Patrick RE;May RL;Agronin ME;Forester BP;Rosenberg PB
• 通讯作者: Rosenberg PB