Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE) in Alzheimer’s Disease and Related Dementias.

亚裔美国人和太平洋岛民在阿尔茨海默病和相关痴呆症方面的研究和教育 (CARE) 合作方法。

• 批准号: 10161698
• 负责人: Van My Ta Park
• 金额: $ 108.42万
• 依托单位: UNIVERSITY OF CALIFORNIA, SAN FRANCISCO
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-01 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10161698
• 关键词: Address; Age; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Alzheimer' s disease risk; American; Area; Asian Americans; Asian Indian; California; Caregivers; Cause of Death; Chinese People; Clinical Research; Clinical Trials; Communities; County; Data; Drama; Education; Effectiveness; English Language; Enrollment; Ensure; Evaluation; Filipino; Focus Groups; Funding; Future; Goals; Home; Institutes; Knowledge; Koreans; Language; Linguistics; Los Angeles; Marketing; Mental Depression; Methods; Minority; Modeling; Not Hispanic or Latino; Oranges; Pacific Island Americans; Participant; Persons; Population; Population Heterogeneity; Process; Provider; Race; Records; Registries; Research; Research Methodology; Research Personnel; Resources; Samoan; San Francisco; Science; Site; Source; Trust; Underserved Population; Universities; Variant; base; collaborative approach; community based participatory research; disparity reduction; education research; effectiveness evaluation; ethnic diversity; ethnic minority population; expectation; experience; experimental study; health disparity; improved; innovation; insight; interest; member; online registry; patient population; physical conditioning; preference; programs; racial and ethnic; recruit; research study; socioeconomics; stakeholder perspectives; study population; tool; underserved community

Project Abstract/Summary of CARE Alzheimer's disease is the fourth leading cause of death in California compared to sixth in the U.S., and the number of Americans living with Alzheimer's Disease and Related Dementias (ADRD) is expected to increase from 5.7 to 14 million by 2050. It is important to ensure that underserved communities, such as Asian Americans and Pacific Islanders (AAPI), are engaged and educated on ADRD as disparities exist in knowledge about ADRD among AAPI and Asian American caregivers experience disparities in depression, burden, and physical health compared to non-Hispanic White caregivers even though AAPI are the most rapidly growing racial group of older Americans at risk for ADRD. Research participation from AAPI are limited and the sparse research suggests that AAPI are interested in being engaged, but that various concerns (e.g. lack of cultural/linguistic information and mistrust) need to be addressed in order to improve participation in ADRD research, including clinical trials participation. To overcome these barriers to ADRD clinical research participation, we will implement culturally appropriate and innovative recruitment strategies from a collaborative team of trusted sources of information (e.g. community partners). The ultimate goal of the proposed project, Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE) in Alzheimer's Disease and Related Dementias, is to address the gap and reduce disparities in ADRD research participation among AAPI through the creation of a registry of AAPI who are interested in participating in various types of ADRD research. CARE will be conducted in five languages (English, Mandarin, Cantonese, Vietnamese, Korean) across four sites in California (San Francisco Bay Area, Sacramento County, Los Angeles County, and Orange County). CARE is critical to ensure that AAPI, an underserved population, are meaningfully included in ADRD research. CARE will accomplish the following: a) Develop a registry that will facilitate future ADRD research with AAPI; b) Serve as a recruitment model for other populations; c) Increase the capacity of AD Centers/Institutes at and develop a new collaborative team across five universities; and, d) Develop a robust approach and add to the science of recruiting and retaining minorities in research with the overall goal of reducing ADRD disparities. CARE addresses Goal F.3. of NIA's Strategic Directions for Research on Aging: "develop and implement strategies to increase inclusion of diverse populations in research."

项目摘要/护理摘要 阿尔茨海默氏病是加利福尼亚州第四大死亡原因，而第六名 美国以及患有阿尔茨海默氏病和相关痴呆症的美国人人数 （ADRD）预计到2050年将从5700万增加到1400万。 服务不足的社区，例如亚裔美国人和太平洋岛民（AAPI） 并受过ADRD的教育，因为在AAPI和亚洲的ADRD知识中存在差异 美国照顾者在抑郁，负担和身体健康方面经历差异 与非西班牙裔白人护理人员相比，即使AAPI是增长最快的 美国老年人的种族群体面临着ADRD的风险。 AAPI的研究参与有限 稀疏的研究表明，AAPI有兴趣参与，但是 需要按顺序解决问题（例如缺乏文化/语言信息和不信任） 为了改善ADRD研究的参与，包括临床试验参与。克服 这些ADRD临床研究参与的障碍，我们将在文化上实施适当的 以及由可信赖的信息来源的合作团队的创新招聘策略 （例如社区合作伙伴）。拟议项目的最终目标，协作方法 适用于亚裔美国人和太平洋岛民的研究与教育（护理） 阿尔茨海默氏病和相关痴呆症是为了解决差距并减少差异 通过创建AAPI中的AAPI的ADRD研究参与 有兴趣参加各种类型的ADRD研究。小心将在五个 语言（英语，普通话，广东话，越南语，韩文）在加利福尼亚的四个地点 （旧金山湾区，萨克拉曼多县，洛杉矶县和奥兰治县）。 护理对于确保AAPI（服务欠缺的人口）有意义地包括在 ADRD研究。护理将完成以下操作：a）开发一个将有助于 AAPI的未来ADRD研究； b）作为其他人群的招聘模型； c） 提高广告中心/机构的能力，并建立一个新的合作团队 五所大学； d）开发一种强大的方法，并增加了招聘科学和 保留少数民族的研究，其总体目标是减少ADRD差距。关心 解决目标F.3。 NIA关于衰老研究的战略方向：“发展和 实施策略以增加研究中不同人群的包含。”