Data Disparities Supplement to Johns Hopkins Institute for Clinical and Translational Research

约翰·霍普金斯临床和转化研究所的数据差异补充

• 批准号: 10158718
• 负责人: Daniel Ernest Ford
• 金额: $ 49.27万
• 依托单位: JOHNS HOPKINS UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-05-05 至 2021-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10158718
• 关键词: 2019-nCoV; Accounting; Address; Administrative Supplement; Adult Respiratory Distress Syndrome; African American; Attention; Behavior; COVID-19; COVID-19 pandemic; Caring; Cessation of life; China; Chronic; Clinical Research; Color; Communities; Computerized Medical Record; Contracts; Coronavirus; Coughing; Country; Data; Diabetes Mellitus; Disadvantaged; Disease; District of Columbia; Event; Face; Fever; Geographic Locations; Geography; Health; Health Insurance; Health Services; Health system; Hispanic Americans; Hypertension; Infection; Institutes; Lower Respiratory Tract Infection; Lung; Maryland; Native Americans; Neighborhoods; Patients; Persons; Pneumonia; Population; Race; Registries; Research; Research Personnel; Resources; Risk; Secure; Social Distance; Socioeconomic Status; Sore Throat; Structure; Symptoms; System; Testing; Time; Translational Research; United States; Virus; care outcomes; cohort; coronavirus disease; data access; data modeling; data resource; ethnic minority population; health care delivery; health disparity; medical specialties; minority communities; pandemic disease; population based; precision medicine; racial and ethnic; racial minority; racism; respiratory; social health determinants; socioeconomic disadvantage

The SARS-CoV-2 coronavirus, which causes a respiratory illness known as Coronavirus Disease 2019 (COVID-19), has caused a global pandemic of unprecedented proportion. As of April 28, 2020, there were over 3 million confirmed COVID-19 cases worldwide, including over 1 million cases within the United States. In addition, there has been over 213,000 COVID-19 related deaths globally, including 57,000 deaths in the United States. The COVID-19 pandemic is disproportionately impacting racial/ethnic minority communities, as well as those who face socioeconomic disadvantage. Reasons for this disproportionate impact among racial/ethnic minorities include a greater burden of the chronic health conditions that place persons at risk of severe disease and death from COVID-19, poorer access to primary and specialty care, an increased risk of contracting COVID-19 due to barriers to practicing social distancing behaviors, and shortages of testing resources in disadvantaged communities. This pandemic has presented unprecedented needs for timely access to health- related data. The State of Maryland and surrounding regions including the District of Columbia are fortunate to have a well-functioning health information exchange, CRISP. During the COVID-19 pandemic, CRISP data have the potential to serve an essential function in tracking and understanding the care and outcomes of COVID-19 infections. This resource would be unique among COVID registries in that it includes all health events and findings among the entire population of a geographic area, regardless where a health service was delivered. As such, it is ideally suited to address questions of health disparities. The Specific Aims of this administrative supplement are to (1) develop the CRISP data resource as a unique, population-based COVID- 19 registry on the highly secure Johns Hopkins Precision Medicine Analytics Platform, and (2) evaluate COVID-19 care and outcomes by race, neighborhood and socioeconomic status such that targeted strategies can be deployed to reduce emerging disparities.

SARS-COV-2冠状病毒导致呼吸道疾病，称为冠状病毒病2019 （Covid-19）引起了前所未有的比例的全球大流行。截至2020年4月28日，已经结束了 300万确认了全世界的Covid-19案件，其中包括美国境内超过100万个案件。在 此外，全球已有超过213,000 covid相关的死亡，其中包括57,000人死亡 国家。 19009年大流行对种族/族裔少数民族社区以及 那些面对社会经济劣势的人。种族/族裔之间这种不成比例影响的原因 少数民族包括慢性健康状况的负担，使人们面临严重疾病的风险 以及Covid-19的死亡，获得初级和专业护理的不良访问权限，收缩风险增加 COVID-19由于练习社会疏远行为的障碍以及测试资源短缺 处境不利的社区。这个大流行已经提出了及时获得健康的前所未有的需求 相关数据。马里兰州及其周边地区在内，包括哥伦比亚特区很幸运 具有功能齐全的健康信息交换，清脆。在COVID-19大流行期间，清晰的数据 有潜力在跟踪和了解的护理和结果方面发挥重要作用 Covid-19感染。该资源在Covid注册表中是独一无二的，因为它包括所有健康 地理区域的整个人口中的事件和发现，无论医疗服务在哪里 发表。因此，它非常适合解决健康差异问题。这个特定的目的 行政补充是（1）将CRIRP数据资源作为一种独特的，基于人群的Covid- 19在高度安全的约翰·霍普金斯精密医学分析平台上的注册表，以及（2）评估 Covid-19-19划分的护理和成果按种族，邻里和社会经济地位，以便针对性的策略 可以部署以减少新兴差异。