CRII:SCH: Parent-2-Parent: Supporting Dyadic Caregiving Coordination in the Hospital

CRII:SC​​H：家长-2-家长：支持医院的二元护理协调

• 批准号: 1850273
• 负责人: Andrew Miller
• 金额: $ 17.48万
• 依托单位: Indiana University
• 依托单位国家: 美国
• 项目类别: Standard Grant
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-06-01 至 2022-05-31
• 项目状态: 已结题
• 来源: https://www.nsf.gov/awardsearch/showAward?AWD_ID=1850273&HistoricalAwards=false
• 关键词: CRII; SCH; Parent; Supporting; Dyadic

When a child is hospitalized, existing support networks spring into action. In this unanticipated, stressful situation, parents must quickly absorb complicated clinical information and take on new caregiving tasks, without abandoning other responsibilities. Furthermore, within-family communication and coping strategies of the parents, or dyad, are significant predictors of post-hospitalization health outcomes. Human-Computer Interaction and Computer-Supported Cooperative Work researchers are actively studying how technology can support coordination between children and their care team, and between parents and children. However, little research has focused on how technology can support and augment the parenting dyad during hospitalization. Current technologies are not optimized for these contexts, and may even compound family stress if not carefully designed and implemented.The long-term goal of this project is to establish fundamental design strategies for social computing that enable effective dyadic caregiving coordination in unanticipated, stressful situations, such as the hospitalization of one's child, and show how those technologies could support decision-making and information sharing amid high degrees of uncertainty. The specific objective of this proposal is to identify and demonstrate how social technologies can support and augment the ability of parenting dyads to effectively communicate and coordinate during hospitalization. Through a combination of rigorous qualitative investigations, parent-driven design sessions, and hospital-based pilot technology deployments, the investigator will address two specific aims: 1) Characterize current communication and coordination practices within parenting dyads, and 2) Envision, demonstrate, and verify dyadic caregiving support technologies. This work will be grounded in the case of pediatric cancer, the leading cause of disease-related deaths in youth. However, the proposed work has implications for dyadic caregiving in diverse healthcare contexts.This award reflects NSF's statutory mission and has been deemed worthy of support through evaluation using the Foundation's intellectual merit and broader impacts review criteria.

当儿童住院时，现有的支持网络逐渐采取行动。在这种意外，压力很大的情况下，父母必须迅速吸收复杂的临床信息并承担新的护理任务，而不会放弃其他责任。此外，父母或二元组的家庭内沟通和应对策略是院后健康结果的重要预测指标。人力计算机的互动和计算机支持的合作工作研究人员正在积极研究技术如何支持儿童与其护理团队以及父母和孩子之间的协调。但是，很少的研究重点是技术如何支持和增加住院期间的育儿二元。当前的技术不会针对这些环境进行优化，甚至可能不仔细设计和实施，甚至可能使家庭压力更加复杂。该项目的长期目标是建立基本的社会计算设计策略，以使有效的二元式护理协调在意外，压力很大的情况下协调，例如一个孩子的住院，并显示这些技术的医院，并且可以支持这些技术，并且可以支持较高的决策和信息。该提案的具体目标是识别并证明社会技术如何支持和增强育儿二元组有效交流和协调住院期间的能力。 通过严格的定性研究，母亲驱动的设计课程和基于医院的飞行员技术部署的结合，研究人员将解决两个具体的目标：1）表征父母养育二元组中当前的沟通和协调实践，以及2）设想，演示，证明并验证二元型乳腺照料支持技术。这项工作将基于儿科癌症，这是青年人与疾病有关的主要原因。但是，拟议的工作对各种医疗保健环境中的二元护理有影响。该奖项反映了NSF的法定任务，并被认为是值得通过基金会的知识分子优点和更广泛的影响评估标准通过评估来支持的。

项目成果

Designing for Families as Adaptive Systems: Collaborative Emotional Support and Resilience in the Children's Hospital

为家庭设计自适应系统：儿童医院的协作情感支持和复原力

• DOI: 10.1145/3491101.3519787
• 发表时间: 2022
• 期刊: CHI EA '22: Extended Abstracts of the 2022 CHI Conference on Human Factors in Computing
• 作者: Nikkhah, Sarah;Uday Rode, Akash;Kulkarni, Neha;Mittal, Priyanjali;Mueller, Emily;Miller, Andrew
• 通讯作者: Miller, Andrew

Sociotechnical Design Opportunities for Pervasive Family Sleep Technologies

普及家庭睡眠技术的社会技术设计机会

• DOI: 10.1145/3421937.3421979
• 发表时间: 2020
• 期刊: 14th EAI International Conference on Pervasive Computing Technologies for Healthcare (PervasiveHealth ’20
• 作者: Cherenshchykova, Anna;Miller, Andrew D.
• 通讯作者: Miller, Andrew D.