Rare Dis Clin Res Consortia (RDCRC) for Rare Dis Clin Res Network (U54)

罕见疾病临床研究联盟 (RDCRC) 的罕见疾病临床研究网络 (U54)

• 批准号: 9145799
• 负责人: MICHIO HIRANO
• 金额: $ 16.27万
• 依托单位: COLUMBIA UNIVERSITY HEALTH SCIENCES
• 依托单位国家: 美国
• 财政年份: 2014
• 资助国家: 美国
• 起止时间: 2014-09-01 至 2019-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9145799
• 关键词: Accident and Emergency department; Clinic; Clinical; Clinical Research; Clinical Trials; Clinical Trials Design; Colorado; Complex; Databases; Development; Diagnosis; Diagnostic; Educational process of instructing; Exposure to; Faculty; Fellowship; Fellowship Program; Florida; Generations; Heterogeneity; Institution; Instruction; K-Series Research Career Programs; Medical; Medicine; Metabolic Diseases; Mitochondria; Mitochondrial Diseases; Molecular; Patients; Research; Research Personnel; Research Training; Scientist; Site; Specialist; Telemedicine; Training; Training Programs; Universities; Visit; Writing; body system; data sharing; design; experience; interest; novel; professor; programs; symposium; training opportunity; translational medicine

The NAMDC Fellowship Program offers a unique training opportunity to senior postdoctoral clinical fellows who we anticipate will move on to the attending/assistant professor level in an academic setting as well-trained clinician scientists. The focus remains on translational medicine, teaching of diagnostic expertise and the development of clinical trials expertise. We aim to train the first of a new generation of clinician scientists who will be well equipped to move the promising new treatments for mitochondrial disease into the clinical arena. We plan to expand the program from seven training sites to nine. Our current sites include; Columbia, San Diego, Seattle, Cleveland, Hamilton, CHOP, and University of Florida. In this proposal we wish to add Baylor and University of Colorado at Denver. All are leading institutions in the new field of mitochondrial medicine. Each site brings a novel set of training experiences. World renowned faculty are to be found at each site. The initial exposure to mitochondrial patients, diagnosis and treatment will be provided during 3 to 6 months at UCSD in the Mitochondrial and Metabolic Disease Center. In this period an intensive clinical trials training program is required through the CREST program. Fellows will then choose to visit two or more consortium sites for periods from 1 to 3 months where a rich and varied training experience will be provided. The program will continue to be held together by regular telemedicine WebEx conferences involving all consortium sites. Data sharing is underway at all sites through the NAMDC database which the fellows will be actively involved with both at the patient entry level and analytically. At the end of their training the fellows will be encouraged to write a K award application.

NAMDC 奖学金计划为高级博士后临床研究员提供独特的培训机会 我们预计谁将在训练有素的学术环境中晋升为主讲/助理教授级别 临床科学家。重点仍然是转化医学、诊断专业知识的教学 以及临床试验专业知识的发展。我们的目标是培养第一批新一代临床医生 科学家们将有能力将有前途的线粒体疾病新疗法转移到 临床领域。我们计划将该计划从七个培训地点扩大到九个。我们当前的网站 包括;哥伦比亚大学、圣地亚哥大学、西雅图大学、克利夫兰大学、汉密尔顿大学、CHOP 大学和佛罗里达大学。在这个 我们希望添加贝勒大学和科罗拉多大学丹佛分校的提案。都是新领域的领先机构 线粒体医学领域。每个站点都会带来一套新颖的培训体验。世界知名师资队伍 可以在每个站点找到。线粒体患者的初次接触、诊断和治疗将是 在 UCSD 线粒体和代谢疾病中心提供 3 至 6 个月的时间。这一时期 CREST 计划需要强化临床试验培训计划。届时同学们将 选择访问两个或多个联盟站点，为期 1 至 3 个月，提供丰富多样的培训 将提供经验。该计划将继续通过定期远程医疗 WebEx 一起举办 涉及所有联盟站点的会议。所有站点均通过 NAMDC 进行数据共享 研究员将在患者入门级别和分析方面积极参与该数据库。在 培训结束后，将鼓励学员撰写 K 奖申请表。