Inpatient Rehabilitation for Women with Traumatic Brain Injury and Their Families

脑外伤女性及其家人的住院康复

• 批准号: 9101813
• 负责人: Tolu O. Oyesanya
• 金额: $ 0.39万
• 依托单位: UNIVERSITY OF WISCONSIN-MADISON
• 依托单位国家: 美国
• 财政年份: 2015
• 资助国家: 美国
• 起止时间: 2015-07-01 至 2016-08-12
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9101813
• 关键词: Aftercare; Area; Brain; Caregivers; Caring; Categories; Child Rearing; Chronic; Cognitive; Communities; Decision Making; Development; Dizziness; Education; Emotional; Face; Family; Family member; Feeling; Foundations; Future; Goals; Head; Headache; Health; High Prevalence; Home environment; Hospitals; Individual; Injury; Inpatients; Intervention; Interview; Knowledge; Left; Life; Meta-Analysis; Methodology; Modeling; National Institute of Nursing Research; Outcome; Outcome Study; Patients; Penetrating Head Injuries; Perception; Persons; Phase; Play; Preparation; Prevalence; Problem Sets; Process; Public Health; Recovery; Rehabilitation Outcome; Rehabilitation therapy; Reporting; Research; Research Personnel; Role; Sampling; Schools; Self Management; Speech; Strategic Planning; Supervision; Testing; Traumatic Brain Injury; Woman; Work; base; disability; evidence base; expectation; experience; family management; improved; loved ones; meetings; men; primary caregiver; public health relevance; sex; social; social model; theories

 DESCRIPTION (provided by applicant): Annually in the U.S., more than 1.7 million people sustain a traumatic brain injury (TBI), and approximately $76.5 billion is spent on TBI treatment and rehabilitation. Over the last 10 years, the prevalence of women with TBI has risen by 49%. Research shows that women with TBI have worse outcomes than men, including reporting more headaches and dizziness, as well as loss of confidence, perceived need for supervision, and problems setting realistic goals. Pre-injury, women generally have different social roles and expectations than men in their personal and work lives. After TBI, women struggle to return to pre-injury roles, evidenced by fewer women returning to work and school and having more challenges with parenting than men. However, due to limited research on women with TBI, knowledge on how to meet women's needs and maximize opportunities for successful outcomes after TBI is unavailable. Family members play an essential role in supporting women with TBI during the inpatient rehabilitation process, including involvement in decision- making and goal-planning for post-rehabilitation discharge to home. To prepare family members to best support women with TBI following discharge, it is essential to understand how family members are prepared during the inpatient rehabilitation phase. Yet, after discharge, family members report unmet needs, including insufficient education and feeling unprepared to support the person with TBI and manage their care after discharge. To date, no study has focused on the immediate needs of women with TBI and their families during inpatient rehabilitation, limiting knowledge on their experiences and whether and how current interventions could best meet their post-rehabilitation needs. Congruent with the strategic plan of the National Institute of Nursing Research, which seeks to conduct research on the health of individuals and families to improve self- and family-management of care after injury, this study aims to fill a knowledge gap concerning the inpatient rehabilitation phase. The purpose of this study is to investigate the perspectives and expectations of women with TBI's and their families during inpatient rehabilitation regarding preparation to return home from the hospital. This study will use grounded theory, a qualitative methodology, which will allow the researcher to develop a conceptual model explaining the inpatient rehabilitation process, including the development of expectations for discharge. The sample will be composed of 15 to 20 women with TBI and 15 to 20 of their family members. The long-term goal of this study is to inform future research that will develop and test interventions to improve inpatient rehabilitation for women with TBI.

 描述（由申请人提供）：在美国，每年有超过 170 万人遭受创伤性脑损伤 (TBI)，大约 765 亿美元用于 TBI 治疗和康复。在过去 10 年中，女性 TBI 患病率很高。研究表明，患有 TBI 的女性的结果比男性更差，包括报告更多的头痛和头晕，以及丧失信心、认为需要监督和问题。受伤前，女性在个人和工作生活中通常具有与男性不同的社会角色和期望，创伤性脑损伤后，女性很难恢复到受伤前的角色，这一点可以从重返工作和学校的女性数量减少以及拥有更多的女性中得到证明。然而，由于对患有 TBI 的女性的研究有限，因此无法了解如何满足女性的需求并最大限度地提高 TBI 后获得成功结果的机会，家庭成员在支持 TBI 女性住院康复期间发挥着重要作用。过程，包括参与康复后出院回家的决策和目标规划 为了使家庭成员能够在出院后为患有 TBI 的妇女提供最好的支持，必须了解家庭成员在住院康复阶段如何做好准备。成员们报告了未得到满足的需求，包括教育不足以及感觉没有准备好支持 TBI 患者并管理出院后的护理。 迄今为止，还没有研究关注 TBI 妇女及其家人在康复期间的迫切需求，限制了对她们的了解。经验以及是否以及如何目前的干预措施可以最好地满足他们的康复后需求，这与国家护理研究所的战略计划一致，该研究所旨在对个人和家庭的健康进行研究，以改善受伤后的自我和家庭护理管理。研究旨在填补有关住院康复阶段的知识空白 本研究的目的是调查患有 TBI 的妇女及其家人在住院康复期间对出院回家准备的看法和期望。 ，一种定性方法，它将允许研究人员开发一个概念模型来解释住院康复过程，包括制定出院期望。样本将由 15 至 20 名患有 TBI 的女性及其 15 至 20 名家庭成员组成。研究的目的是为未来的研究提供信息 制定并测试干预措施，以改善患有 TBI 的女性的住院康复。