Core A: Administrative Core
核心A:行政核心
基本信息
- 批准号:10085551
- 负责人:
- 金额:$ 21.27万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2020
- 资助国家:美国
- 起止时间:2020-08-06 至 2025-05-31
- 项目状态:未结题
- 来源:
- 关键词:Academic Medical CentersAdvisory CommitteesAffectAreaAwarenessBasic ScienceBehavioralBindingCaregiversClinical ResearchCollaborationsCommunicationCommunication MethodsCommunitiesConsultDiagnosisDiseaseDown SyndromeEducationEnsureEnvironmentEventFacultyFaculty RecruitmentFamilyFundingGluesGoalsGovernmentGrantIndividualInformation DisseminationInfrastructureInstitutionIntellectual and Developmental Disabilities Research CentersIntellectual functioning disabilityInterdisciplinary StudyInterventionIntervention StudiesLeadershipLearningMethodsMissionModelingNational Institute of Child Health and Human DevelopmentNeurosciencesPoliciesPreventionProcessProductivityResearchResearch InstituteResearch PersonnelResearch Project GrantsResearch SupportResearch TrainingResourcesScienceScientistSeriesServicesStructureSurveysTestingThinkingTranslational ResearchTranslationsTravelUniversitiesVisionWorkautism spectrum disordercollegecost effectivedisabilityeducational atmosphereimplementation scienceimprovedindividualized medicineinnovationlecturesmeetingsmultidisciplinarynext generationoperationpersonalized carepublic health relevancerecruitresearch and developmentsatisfactiontargeted treatmenttherapy developmenttranslational research programuptake
项目摘要
Core A provides scientific leadership that meets the EKS NICHD’s overarching mission for the IDDRCs to
advance the diagnosis, prevention, treatment, and amelioration of intellectual and developmental disabilities
(IDD). Vanderbilt Kennedy Center (VKC) IDDRC has a well-established operational structure and function that
includes continuously evaluating its leadership and oversight to meet the needs of the changing landscape of
IDD research. As such, Core A’s services have proactively evolved in a manner that has progressed with
technological advances over the 50 years of the VKC’s IDDRC. Because of this, the IDDRC has become a
successful model of integrated research, training, and service that results in a truly translational research
environment. For the next 5 years, the IDDRC’s overarching goal is to develop precision care for IDD by
providing infrastructure and scientific leadership to enable rapid translation of basic discoveries into
high-impact interventions and treatment for people with IDD. To realize this goal, the leadership of the
VKC IDDRC recognize that effective administrative oversight through Core A is critical. To this end, the
primary aims of Core A are to: (1) provide scientific leadership and administrative/financial oversight of the
IDDRC’s Signature Research Project and research cores in order to effectively meet the needs of the 50
IDDRC investigators and 70 funded research projects; (2) facilitate multidisciplinary research, recruit new
researchers to IDDRC, and maintain an educational environment to engage IDDRC investigators, trainees, and
community stakeholders; and (3) communicate and disseminate IDDRC activities targeted to
diverse stakeholder audiences. These three Aims allow Core A to provide overall scientific direction and
integration for an IDD translational research program that builds on the VKC IDDRC’s strengths in
educational, behavioral, neuroscience and approaches. More specifically, Core A helps to facilitate
interdisciplinary research by: (1) recruiting new researchers to our IDDRC from existing faculty
and via faculty recruits; (2) proactively managing fiscal and other resources, including support for
innovative IDD pilot research through the IDDRC Hobbs Discovery and Director’s Strategic Priorities Grants
and managing IDDRC space and facilities; and (3) communicating and disseminating IDD-related findings
to the broad IDD stakeholder community. Effective communications to local researchers and other
professionals combined with outstanding lay-friendly communication with the public and disability community is
a hallmark of the VKC IDDRC. Over the next 5 years, we build upon the existing excellent IDDRC
communication services to maximize targeted audience uptake by engaging stakeholders throughout the
process and incorporating dissemination and implementation science methods.
administrative glue for the IDDRC that allows for setting priorities for and overseeing
Overall, Core A is the
all of the scientific work of
the VKC IDDRC in order to meet our overall mission of improving the lives of people IDD.
核心 A 提供科学领导力,满足 EKS NICHD 对 IDDRC 的总体使命:
推进智力和发育障碍的诊断、预防、治疗和改善
(IDD) 范德比尔特肯尼迪中心 (VKC) IDDRC 拥有完善的运营结构和职能,
包括不断评估其领导力和监督能力,以满足不断变化的环境的需求
因此,Core A 的服务以与时俱进的方式积极发展。
VKC IDDRC 50 年来的技术进步 因此,IDDRC 已成为一个
综合研究、培训和服务的成功模式,带来真正的转化研究
未来 5 年,IDDRC 的首要目标是通过以下方式为 IDD 提供精准护理。
提供基础设施和科学领导力,使基本发现能够快速转化为
为了实现这一目标,领导层需要对 IDD 患者进行高影响力的干预和治疗。
VKC IDDRC 认识到通过核心 A 进行有效的行政监督至关重要。
核心 A 的主要目标是:(1) 提供科学领导和行政/财务监督
IDDRC的标志性研究项目和研究核心,以有效满足50个国家的需求
IDDRC 研究人员和 70 个资助的研究项目;(2) 促进多学科研究,招募新人
IDDRC 的研究人员,并维持一个教育环境以吸引 IDDRC 调查员、受训者和
社区利益相关者;(3) 沟通和传播 IDDRC 活动的目标
这三个目标使核心 A 能够提供总体科学方向和
IDD 转化研究计划的整合建立在 VKC IDDRC 的优势之上
更具体地说,核心 A 有助于促进教育、行为、神经科学和方法。
跨学科研究:(1) 从现有教员中招募新研究人员到我们的 IDDRC
并通过教师招聘;(2)积极管理财政和其他资源,包括支持
通过 IDDRC Hobbs Discovery 和主任战略重点资助开展创新 IDD 试点研究
管理和 IDDRC 空间和设施;以及 (3) 沟通和传播 IDD 相关调查结果
与广泛的 IDD 利益相关者群体进行有效的沟通。
专业人员与与公众和残疾人群体的杰出的非专业人士友好的沟通相结合
VKC IDDRC 的标志 在接下来的 5 年里,我们将在现有优秀的 IDDRC 的基础上继续发展。
传播服务,通过让整个行业的利益相关者参与进来,最大限度地提高目标受众的吸收率
过程并结合传播和实施科学方法。
IDDRC 的行政粘合剂,允许设定优先级并进行监督
总体而言,核心 A 是
所有的科学工作
VKC IDDRC 旨在实现我们改善 IDD 人民生活的总体使命。
项目成果
期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
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Jeffrey L Neul其他文献
Gastrointestinal manifestations in pediatric and adult patients with Rett syndrome: an analysis of US claims and physician survey data
雷特综合征儿童和成人患者的胃肠道表现:美国索赔和医生调查数据的分析
- DOI:
- 发表时间:
2023 - 期刊:
- 影响因子:2.1
- 作者:
Damian M May;Jeffrey L Neul;J. Pina;Kalé Kponee;Ambika Satija;M. Mahendran;Nathaniel Downes;Kristy Sheng;Neema Lema;Andra Boca;Patrick Lefebvre;Victor Abler;James M. Youakim;Wendy Y Cheng - 通讯作者:
Wendy Y Cheng
Real-world clinical management of individuals with Rett syndrome: a physician survey
雷特综合征患者的真实临床管理:医生调查
- DOI:
- 发表时间:
2023 - 期刊:
- 影响因子:2.4
- 作者:
Damian M May;Jeffrey L Neul;Ambika Satija;Wendy Y Cheng;Neema Lema;Andra Boca;Patrick Lefebvre;J. Pina - 通讯作者:
J. Pina
Jeffrey L Neul的其他文献
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{{ truncateString('Jeffrey L Neul', 18)}}的其他基金
Development of a reliable, valid, and sensitive outcome measure in Rett syndrome
开发可靠、有效且敏感的雷特综合征结果测量方法
- 批准号:
10046248 - 财政年份:2020
- 资助金额:
$ 21.27万 - 项目类别:
Development of a reliable, valid, and sensitive outcome measure in Rett syndrome
开发可靠、有效且敏感的雷特综合征结果测量方法
- 批准号:
10249176 - 财政年份:2020
- 资助金额:
$ 21.27万 - 项目类别:
Overall: Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Center at Vanderbilt
总体而言:范德堡大学尤尼斯·肯尼迪·施赖弗智力与发育障碍研究中心
- 批准号:
10415081 - 财政年份:2020
- 资助金额:
$ 21.27万 - 项目类别:
Overall: Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Center at Vanderbilt
总体而言:范德堡大学尤尼斯·肯尼迪·施赖弗智力与发育障碍研究中心
- 批准号:
10685984 - 财政年份:2020
- 资助金额:
$ 21.27万 - 项目类别:
Overall: Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Center at Vanderbilt
总体而言:范德堡大学尤尼斯·肯尼迪·施赖弗智力与发育障碍研究中心
- 批准号:
10085550 - 财政年份:2020
- 资助金额:
$ 21.27万 - 项目类别:
Overall: Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Center at Vanderbilt
总体而言:范德堡大学尤尼斯·肯尼迪·施赖弗智力与发育障碍研究中心
- 批准号:
10229591 - 财政年份:2020
- 资助金额:
$ 21.27万 - 项目类别:
Neurobehavioral and biochemical outcome measures in Rett syndrome rodent models
雷特综合征啮齿动物模型的神经行为和生化结果测量
- 批准号:
9339445 - 财政年份:2016
- 资助金额:
$ 21.27万 - 项目类别:
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