Person-Centered Mobile App for AD/ADRD Family Caregivers

面向 AD/ADRD 家庭护理人员的以人为本的移动应用程序

• 批准号: 10019464
• 负责人: Joseph Chung
• 金额: $ 79.14万
• 依托单位: KINTO
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-08-15 至 2022-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10019464
• 关键词: Address; Adoption; Alzheimer' s Disease; Alzheimer' s disease related dementia; Arts; Belief; Caregiver Burden; Caregivers; Caring; Communication; Communities; Data; Development; Disease; Ecosystem; Emotional; Emotional Stress; Family; Family Caregiver; Family member; Feedback; Feeling; Focus Groups; Fostering; Funding; Goals; Home environment; Hour; Hypersensitivity; Individual; Medical; Medical History; Personal Satisfaction; Persons; Pharmaceutical Preparations; Phase; Play; Positioning Attribute; Privacy; Protocols documentation; Recommendation; Recording of previous events; Reporting; Residencies; Role; Security; Stress; Stretching; Talents; Technology; Vision; Visit; base; care preference; care recipients; caregiving; dementia care; design; family caregiving; family support; innovation; loved ones; member; mobile application; mobile computing; person centered; phase 1 testing; prototype; rapid growth; tool; treatment duration; usability

PROJECT SUMMARY More than 5 million people in the US suffer from AD/ADRD, and the Alzheimer's Association predicts that the number of sufferers will increase to as many as 14 million by 2050. New recommendations for the care of dementia place a strong focus on Person-Centered care. Family caregivers can play a vital role in supporting this approach, but they are already stretched. The Alzheimer's Association estimates that 15.9 million people in the US contribute 18.2 billion hours of unpaid care in support of people suffering from AD/ADRD (averaging >21.9 hours per week). Half of all caregivers for AD/ADRD sufferers report feeling emotional stress, resulting from the practical, financial, and emotional strains of this role. Family caregivers need more help, and a significant majority want technology to support them in their caregiving activities; however, technology solutions are limited, adoption rates are low, and existing solutions are failing to keep pace with the rapid growth of mobile technology. Kinto has begun to address this gap by developing a mobile application designed to promote and support person-centered care. The proposed application will allow caregivers to create a detailed profile of the care recipient called the Person-Centered Care Profile. This information is then used to generate Kinto's Care Reports, summaries that are personalized to the care recipient, and tailored to the information needs of specific members of the circle of care (including doctors, caregivers and family members). Users will also receive expert recommendations tailored to their needs and caregiving situation, in addition to the support of Kinto's caregiving community. Phase II aims are to: 1. Expand the breadth and depth of data capture to create a Person-Centered Care Profile: a detailed profile of the care recipient organized by care topics that include care preferences and goals, doctors, conditions, medications, allergies, medical history, personal history, likes, dislikes, values, and beliefs 2. Enhance communication within the circle of care through the introduction of new Kinto Care Reports: detailed summaries that are personalized to the care recipient, and specifically tailored to the information needs of doctors, family members, and paid caregivers 3. Implement new privacy and security protocols to support deeper connections with the medical ecosystem The goals of the application will be to promote person-centered care, increase family engagement in AD/ADRD caregiving activities, reduce individual caregiver burdens and overall stress, prolong in-home residency, and to provide family caregivers access to best-in-class support and guidance relating to AD/ADRD caregiving.

项目概要 美国有超过 500 万人患有 AD/ADRD，阿尔茨海默病协会预测， 到 2050 年，患者人数将增加到 1400 万之多。关于护理的新建议 痴呆症高度重视以人为本的护理，家庭护理人员可以在支持方面发挥至关重要的作用。 但据阿尔茨海默病协会估计，有 1590 万人已经捉襟见肘。 在美国，为支持 AD/ADRD 患者提供了 182 亿小时的无偿护理（平均 每周超过 21.9 小时）。AD/ADRD 患者的所有护理人员中有一半表示感到情绪压力，从而导致这种压力。 来自这个角色的实际、财务和情感压力。 家庭护理人员需要更多帮助，而且绝大多数人希望技术能够支持他们的生活 护理活动；然而，技术解决方案有限，采用率低，并且现有解决方案 无法跟上移动技术的快速发展。 Kinto 已开始通过开发旨在促进和支持的移动应用程序来解决这一差距 以人为本的护理将允许护理人员创建详细的护理档案。 接收者称为以人为本的护理档案，然后使用该信息生成 Kinto 的护理。 针对护理接受者的个性化报告、摘要，并根据其信息需求量身定制 护理圈的特定成员（包括医生、护理人员和家庭成员）也会。 除了获得以下方面的支持外，还可以获得针对其需求和护理状况的专家建议 Kinto 的护理社区。 第二阶段的目标是： 1. 扩展数据采集的广度和深度，创建以人为本的护理档案：详细的档案 按护理主题组织的护理接受者的信息，包括护理偏好和目标、医生、条件、 药物、过敏、病史、个人史、喜好、厌恶、价值观和信仰 2. 通过引入新的 Kinto Care 报告，加强护理圈内的沟通： 针对护理接受者个性化的详细摘要，并专门针对信息量身定制 医生、家庭成员和付费护理人员的需求 3.实施新的隐私和安全协议，支持与医疗生态系统更深层次的联系 该应用程序的目标是促进以人为本的护理，提高家庭对 AD/ADRD 的参与度 护理活动，减轻个人护理人员的负担和整体压力，延长家庭居住时间，并 为家庭护理人员提供有关 AD/ADRD 护理的一流支持和指导。