A Brief Family Intervention to Promote Adaptation to the Stress of Parental BMT

促进适应父母 BMT 压力的简短家庭干预

• 批准号: 7963101
• 负责人: BETSY Louise FIFE
• 金额: $ 23.1万
• 依托单位: INDIANA UNIV-PURDUE UNIV AT INDIANAPOLIS
• 依托单位国家: 美国
• 财政年份: 2010
• 资助国家: 美国
• 起止时间: 2010-07-01 至 2012-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7963101
• 关键词: 18 year old; Adult; Affect; Age; Autologous; Autologous Bone Marrow Transplantation; Behavior; Bone Marrow Transplantation; Caregivers; Caring; Cause of Death; Characteristics; Child; Child Behavior; Clinical Trials; Communication; Complex; Conflict (Psychology); Consent; Control Groups; Data; Development; Distress; Effectiveness; Effectiveness of Interventions; Emotional; Evaluation; Family; Family Caregiver; Family member; Feasibility Studies; Fright; Hematologic Neoplasms; Home environment; Hospitalization; Individual; Intervention; Intervention Studies; Life; Literature; Malignant Neoplasms; Measures; Mental Health; Morbidity - disease rate; Nature; North America; Outcome; Parents; Participant; Persons; Phase; Prevention; Procedures; Questionnaires; Recovery; Relative (related person); Research; Resistance; Role; Security; Source; Spouses; Stem cell transplant; Stem cells; Stress; Survival Rate; System; Theoretical model; Transplantation; Uncertainty; Well in self; aggressive therapy; base; cancer therapy; cohesion; coping; cost; design; emotional distress; experience; group intervention; high risk; nature therapy; post intervention; psychologic; public health relevance; satisfaction; social; statistics; treatment as usual

DESCRIPTION (provided by applicant): The use of bone marrow transplantation/hematopoetic stem cell transplantation (BMT) for the treatment of cancer is increasing world-wide. It is a high risk and challenging procedure that disrupts the life of the family as well as that of the recipient. Research indicates that family caregivers, most often partners/spouses, experience higher levels of distress and greater dissatisfaction within the dyadic relationship than is characteristic of recipients. In the literature, there is little empirical data relative to the children of these recipients, however, a recently completed dissertation from this research team indicates they too are affected by the disturbance and stress that occurs within the family as a consequence of BMT. This developmental feasibility study will examine the effectiveness of a brief family-focused intervention in minimizing the negative impact of BMT on individual family members and interaction within the family system. It will include three didactic/discussion sessions for the parent dyad and a two part family DVD to be viewed by parents and children together. The design of the proposed study will incorporate data available from an exploratory study as the usual care group. PUBLIC HEALTH RELEVANCE: This study will develop and evaluate the effectiveness of a brief family-focused intervention to facilitate positive adaptation of the BMT recipient and family members to the stress of this challenging high-risk procedure. It is focused on the prevention of serious secondary psychological and social morbidity from occurring as a consequence of BMT, and it will be designed for delivery as a part of usual care.

描述（由申请人提供）：世界范围内越来越多地使用骨髓移植/造血干细胞移植（BMT）来治疗癌症。这是一个高风险且具有挑战性的过程，会扰乱家庭以及接受者的生活。研究表明，家庭照顾者（通常是伴侣/配偶）在二元关系中比接受者经历更高程度的痛苦和更大的不满。在文献中，与这些接受者的孩子相关的经验数据很少，然而，该研究小组最近完成的一篇论文表明，他们也受到 BMT 导致的家庭内发生的干扰和压力的影响。这项发展可行性研究将检验以家庭为中心的简短干预措施的有效性，以最大限度地减少 BMT 对个别家庭成员和家庭系统内互动的负面影响。它将包括针对家长的三场教学/讨论会议以及供家长和孩子一起观看的两部分家庭 DVD。拟议研究的设计将纳入作为常规护理组的探索性研究的可用数据。 公共卫生相关性：本研究将制定并评估以家庭为中心的简短干预措施的有效性，以促进 BMT 接受者和家庭成员积极适应这一具有挑战性的高风险手术的压力。它的重点是预防因 BMT 导致的严重继发性心理和社会疾病，并将作为常规护理的一部分进行设计。