Center for End-of-Life Transition Research (CEoLTR)

临终过渡研究中心 (CEoLTR)

• 批准号: 7814437
• 负责人: DIANA J WILKIE
• 金额: $ 39.98万
• 依托单位: UNIVERSITY OF ILLINOIS AT CHICAGO
• 依托单位国家: 美国
• 财政年份: 2009
• 资助国家: 美国
• 起止时间: 2009-09-18 至 2011-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7814437
• 关键词: Address; Adult; Advance Care Planning; Affect; Age; Application procedure; Area; Award; Awareness; Behavioral; Behavioral Mechanisms; Bereavement; Biological; Caring; Cessation of life; Child; Clinical; Clinical Nurse Specialists; Collaborations; Communities; Complex; Computers; Consultations; Continuing Education; Critiques; Data; Data Analyses; Data Collection; Data Set; Databases; Development; Discipline of Nursing; Elderly; Electronic Mail; Engineering; Environmental Risk Factor; Ethical Issues; Ethics; Ethnic group; Faculty; Family; Funding Mechanisms; General Population; Generations; Health; Health Services Research; Healthcare; Human Resources; Imagery; Individual; Informatics; Internet; Intervention; Investigation; Libraries; Link; Longevity; Manuscripts; Measures; Mentors; Methodology; Methods; Mining; Monitor; Multimedia; Nurses; Nursing Research; Online Systems; Outcome; Palliative Care; Participant; Patients; Persons; Phase; Physiological; Process; Publications; Quality of life; Recruitment Activity; Research; Research Design; Research Ethics Committees; Research Methodology; Research Personnel; Research Support; Research Training; Resource Informatics; Resources; Science; Services; Solutions; Symptoms; System; Technology; Testing; Training; Translations; Vulnerable Populations; Work; Writing; base; biobehavior; biobehavioral measurement; college; computer program; computer science; computerized; computerized data processing; computerized tools; data collection evaluation; data management; data mining; design; editorial; end of life; end of life care; experience; functional status; health disparity; health related quality of life; hospice environment; innovation; innovative technologies; instrument; meetings; multidisciplinary; novel; patient oriented; programs; public education; research and development; research to practice; statistics; symposium; web site

DESCRIPTION (provided by applicant): The overall purpose of the Center for End-of-Life Transition Research is to advance the science of care for people facing the end-of-life transition across the life span (e.g., babies born dying, children, adults, and older adults). We will emphasize patient-centered, family-focused respectful death with planning for end-of-life care that is consistent with the patients' and families' values and priorities (e.g., awareness about ways people die and advance care planning) and expected death experiences (e.g., palliative care, approaching dying, and bereavement). The specific alms of this Center application are to: (1) advance nursing science related to the end-of-life transition; (2) strengthen the ethical use of qualitative and quantitative (mixed methods) methodologies by Center investigators/affiliates and train novices regarding the ethical Issues in end of life research and mixed methods measurement of biobehavioral (biological, behavioral, and experiential) variables, management of data, and analysis of data; (3) expand the capacity to conduct end-of-life research with Informatics solutions that contribute to high integrity processes and efficient, valid, and reliable outcomes In Institutional and community-based settings; and (4) facilitate the dissemination of end-of-life research findings to the scientific and clinical communities and to the general public. Studies supported by the Center will be designed to: (a) elucidate underlying physiological, experiential, and behavioral mechanisms that prognosticate or influence approaching death or bereavement; and (b) test culturally relevant interventions for death awareness and respectful death. The research supported by the Center will have a biobehavioral orientation and will Include end-of life-care concepts that are measured physiologically (biologic function), experientially (symptoms, perceived health, quality of life), and behaviorally (functional status). The revision application adds to the Nursing and Healthcare Informatics Core by adding capacity for multimedia data analysis and visualization and data mining with substantial added expertise from faculty from the College of Engineering.

描述（由申请人提供）：过渡终结研究中心的总体目的是推进对整个寿命终止过渡的人的护理科学（例如，婴儿生于生命，成人和老年人）。我们将强调以患者为中心的，以家庭为中心的尊重死亡，并计划与患者和家庭的价值观和优先事项相一致的临终护理（例如，对人们死亡方式和预先护理计划的认识）和预期死亡的意识经验（例如，姑息治疗，接近垂死和丧亲）。该中心申请的特定施舍是：（1）与临终关系相关的护理科学； （2）加强中心研究人员/分支机构对定性和定量（混合方法）方法的道德使用，并培训新手有关生命终结研究和混合方法的伦理问题的培训，并测量了生物行为（生物学，行为和经验性）变量，管理变量，管理，管理数据和数据分析； （3）通过信息解决方案扩大了进行临终研究的能力，这些解决方案有助于高度完整性流程以及在机构和社区环境中的高效，有效和可靠的结果； （4）促进向科学和临床社区以及公众传播临终研究结果。该中心支持的研究将设计为：（a）预言或影响接近死亡或丧亲的潜在生理，经验和行为机制； （b）测试与死亡意识和尊重死亡的文化相关干预措施。该中心支持的研究将具有生物行为取向，并将包括生理终止保健概念，这些概念是通过生理（生物学功能），实验性（症状，感知的健康，生活质量）和行为（功能状态）（功能状态）进行的。修订申请增加了护理和医疗保健 信息核心通过增加多媒体数据分析，可视化和数据挖掘的能力，并从工程学院的教职员工提供大量的专业知识。