The Caregiver Resource Room: Enhancing Support for Caregivers of Alzheimer's Disease and Related Dementias (ADRD)

护理人员资源室：加强对阿尔茨海默病和相关痴呆症 (ADRD) 护理人员的支持

基本信息

批准号：
10669428
负责人：
Francesca Falzarano
金额：
$ 5.4万
依托单位：
WEILL MEDICAL COLL OF CORNELL UNIV
依托单位国家：
美国
项目类别：
财政年份：
2021
资助国家：
美国
起止时间：
2021-09-01 至 2023-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10669428
关键词：
Acceleration Address Aging Algorithms Alzheimer&apos s disease patient Alzheimer&apos s disease related dementia Anxiety Area Assessment tool Attention Awareness Behavior Therapy Caregiver Burden Caregiver support Caregiver well-being Caregivers Categories Collaborations Communities Complement Data Dementia Dementia caregivers Development Diagnosis E-learning Effectiveness Employment Exposure to Face Feedback Feeling Focus Groups Fostering Fright Funding Geography Goals Grant Grief reaction Guilt Health Health Promotion Healthcare Systems Immersion Institutionalization Internet Intervention Interview Knowledge Lead Leadership Learning Link Literature Loneliness Machine Learning Measurement Measures Mental Depression Mental Health Mentorship Methods Modeling Needs Assessment Online Systems Outcome Output Personal Satisfaction Persons Phase Play Psychologist Psychometrics Quality of life Randomized Randomized, Controlled Trials Recommendation Reporting Research Research Personnel Resources Role Scientist Self Assessment Self Care Self Efficacy Services Severities Shame Social isolation Source Statistical Methods Stress Structure Support Groups Supportive care Technology Testing Training United States United States National Institutes of Health Update Validation Vertebral column Work Writing acceptability and feasibility adverse outcome anxiety symptoms apprenticeship behavior test care systems career development caregiver interventions caregiving computer human interaction cost dementia care dementia caregiving depressive symptoms design digital evidence base experience handbook help-seeking behavior improved innovation machine learning algorithm machine learning model neglect novel strategies online care pilot test premature primary outcome programs research and development respite care satisfaction secondary outcome skills social stigma software development stakeholder perspectives stressor support tools task analysis tool treatment as usual usability user centered design web site web-based tool willingness

项目摘要

PROJECT SUMMARY/ABSTRACT With an estimated 6.5 million cases of Alzheimer’s disease and related dementias (ADRD) diagnosed in the United States in 2022, the health and well-being of ADRD caregivers is of critical importance. Promoting the health and well-being of ADRD caregivers is an effective way to support these unpaid staples of ADRD care. Although interventions targeting ADRD caregivers continues to accelerate, little attention has been paid to caregivers’ use of supportive services, which remains strikingly low. The objective of this K99/R00 application is to enable Dr. Falzarano to develop the necessary expertise to design, implement, and evaluate studies focused on leveraging technology to support and address ADRD caregivers’ multifarious needs. In the K99 phase, Dr. Falzarano will work toward achieving five training objectives that will prepare her to transition to become an independent investigator who designs and evaluates evidence-based technologies to enhance tailored caregiver support. First, she will extend her knowledge in substantive areas including dementia caregiving and front-end and back-end software development. Second, she will learn how to develop, implement, and test behavioral interventions with an emphasis on collaboration with community partners. Third, she will receive training in statistical methods to examine feasibility, acceptability, and preliminary effectiveness in randomized controlled trials (RCTs). Fourth, she will learn about measurement development and psychometric validation of assessments for ADRD caregivers. Fifth, Dr. Falzarano will pursue professional development activities, particularly in the areas of grant writing, leadership, and integration of research and web development teams. The four proposed research aims were chosen to complement the areas identified for career development. Aim 1a will provide the requisite training and experiences to provide Dr. Falzarano with the critical skills needed to conduct the proposed study. Aim 1b will include interviews with ADRD caregivers to identify needs, awareness of, barriers to, and willingness to use services. Aim 1c will leverage key stakeholder (dementia-care experts) input to identify existing services corresponding to areas of need identified in Aim 1b. Aim 2 will leverage data collected from caregivers and stakeholders to inform the iterative development and design of the Caregiver Resource Room (CRR) website, which will include a digital self-assessment tool using machine learning models to identify and categorize needs and provide an output of targeted service recommendations. Aim 3 will include an analysis of the tool’s content, design, features, and services output, which will be iteratively refined based on ADRD caregiver feedback. A randomized controlled trial will be conducted in Aim 4 to determine the feasibility, acceptability, and preliminary efficacy of the CRR as a tool to enhance awareness of and access to relevant services to address unmet needs and improve mental health. The proposed research is well-aligned with the NIA’s strategic initiative to foster the development of research scientists in aging and to develop and test promising interventions to improve ADRD caregiver outcomes.

项目概要/摘要据估计，2017 年诊断出 650 万例阿尔茨海默病和相关痴呆症 (ADRD) 到 2022 年，美国 ADRD 护理人员的健康和福祉至关重要。 ADRD 护理人员的健康和福祉是支持这些无偿 ADRD 护理主要内容的有效方式。尽管针对 ADRD 护理人员的干预措施不断加速，但很少有人关注护理人员对支持服务的使用率仍然极低本 K99/R00 应用程序的目标。是为了使法尔扎拉诺博士能够发展必要的专业知识来设计、实施和评估研究专注于利用技术支持和解决 ADRD 护理人员的多种需求。阶段，Falzarano 博士将努力实现五个培训目标，帮助她做好过渡到成为一名独立调查员，设计和评估基于证据的技术，以增强首先，她将扩展她在包括痴呆症在内的实质性领域的知识。其次，她将学习如何开发、实施和测试行为干预措施，重点是与社区合作伙伴的合作。第三，她将接受统计方法方面的培训，以检查可行性、可接受性和初步结果。第四，她将了解测量的开发。第五，Falzarano 博士将追求专业。发展活动，特别是在拨款写作、领导力以及研究与整合等领域网络开发团队选择了四个拟议的研究目标来补充已确定的领域。目标 1a 将为 Falzarano 博士提供必要的培训和经验。进行拟议研究所需的关键技能将包括与 ADRD 护理人员进行访谈，以了解这些技能。目标 1c 确定使用服务的需求、意识、障碍和意愿。（痴呆症护理专家）提供意见，以确定与目标 1b 中确定的需求领域相对应的现有服务。目标 2 将利用从护理人员和利益相关者收集的数据来为迭代开发和护理人员资源室 (CRR) 网站的设计，其中将包括一个数字自我评估工具，使用机器学习模型来识别和分类需求并提供有针对性的服务输出目标 3 将包括对该工具的内容、设计、功能和服务输出的分析，将根据 ADRD 护理人员的反馈进行迭代完善。在目标 4 中进行，以确定 CRR 作为工具的可行性、可接受性和初步有效性提高对相关服务的认识和获取机会，以解决未满足的需求并改善心理健康。拟议的研究与 NIA 促进研究发展的战略举措非常一致科学家们致力于开发和测试有前景的干预措施，以改善 ADRD 护理人员的治疗结果。