Improving Dementia Care at Home and Reducing Burden for Family Caregivers

改善痴呆症家庭护理并减轻家庭护理人员的负担

基本信息

批准号：
7611817
负责人：
John V Hobday
金额：
$ 34.48万
依托单位：
HEALTHCARE INTERACTIVE, INC.
依托单位国家：
美国
项目类别：
财政年份：
2009
资助国家：
美国
起止时间：
2009-05-01 至 2011-04-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/7611817
关键词：
Affect Age Agreement Alzheimer&apos s Disease American Americas Businesses Caregiver Burden Caregivers Caring Clinical Collaborations Community Health Education Country Data Analyses Dementia Disease Education Educational Curriculum Educational Intervention Elderly Evaluation Evaluation Research Family Family Caregiver Feasibility Studies Feedback Film General Population Grant Grief reaction Health Professional Healthcare Hearing Home environment Internet Intervention Interview Knowledge Legal Length Letters Marketing Medical Methods Minnesota Movement Needs Assessment Nursing Homes Nursing Staff Participant Patient Education Patients Persons Phase Pre-Post Tests Preparation Primary Care Physician Process Production Professional counselor Protocols documentation Psychosocial Assessment and Care Questionnaires Randomized Controlled Trials Reaction Reporting Research Research Personnel Resources Role School Nursing Small Business Innovation Research Grant Small Business Technology Transfer Research Specialist Staging Stream Stress Testing Time TimeLine United States Dept. of Health and Human Services United States National Institutes of Health Universities Visual Workplace aging population animation base caregiver education caregiving cost design follow-up improved innovation intervention program loved ones meetings patient home care programs prototype psychoeducational psychoeducational intervention psychologic public health relevance response satisfaction skills symposium usability

项目摘要

DESCRIPTION (provided by applicant): Alzheimer's Disease and related disorders (ADRD) combine to form one of the most urgent healthcare challenges facing the aging population of 21st Century America. As of 2008, an estimated 5.2 million Americans of all ages have Alzheimer's disease. Nearly 75% of the care for persons with ADRD is delivered at home. Caregivers of persons with dementia express a need for ongoing, comprehensive, accessible educational support to help manage the physical and psychological effects of an intricate web of caregiving hardships. Unfortunately for these caregivers, primary care physicians and other health professionals, whom family caregivers typically call upon for access to patient education or care support, often lack either the preparation or the time to adequately respond to caregivers' ADRD-related needs. Objective: to achieve a reduction in caregiver burden and prolonged satisfaction with the caregiving role by using an innovative, Internet-based, interactive psychoeducational program that exceeds existing methods of caregiver education alone. Methods: develop and test an engaging informative curriculum taking full advantage of the media capabilities of the Internet (streaming video, audio, animation, photo, graphics, and movement) as well as its ability to process and respond to input by the user. Family caregivers gain convenient, 24/7, private access to a whole team of ADRD "intervention consultants" shown fulfilling the role of a successful dementia caregiver, ADRD knowledge experts, psychosocial support specialists, grief and loss counselors, personal coaches, and friendly advisors. Research and Evaluation: The Phase I effort seeks to evaluate the usability of the program, validate the content material of the program, and determine feasibility for a Phase II effort. The design of will incorporate an iterative process involving feedback from an expert consultant team and family caregivers. Family caregiver participants will complete a pre- and post-test of knowledge; a qualitative, open-ended questionnaire regarding technical difficulties and reaction to the prototype; and a quantitative, 5-point Likert-scale evaluation to help determine feasibility. The educational need of this large number of family caregivers results in a strong commercial potential. In addition, the proposed intervention product may also benefit the general public in terms of community-education, medical-office, healthcare-agency, and workplace settings. PUBLIC HEALTH RELEVANCE: An estimated 5.2 million Americans of all ages have Alzheimer's Disease and Related Disorders (ADRD) in 2008, and the number of people age 65 and over is estimated to reach 7.7 million by 2030. Alzheimer's Association experts estimated the 2005 U.S. cost of formal ADRD care at more than $148 billion annually. Because psychoeducational interventions have been found to mitigate the burden and stress of being a caregiver and delay nursing home placement, it is anticipated that this effort will result in an improvement of family ADRD caregiver skills, a reduction in caregiver burden, and prolonged satisfaction with the caregiving role so that caregivers are better able and more willing to continue home care of those with ADRD.

描述（由申请人提供）：阿尔茨海默病及相关疾病 (ADRD) 共同构成了 21 世纪美国人口老龄化面临的最紧迫的医疗保健挑战之一。截至 2008 年，估计有 520 万各个年龄段的美国人患有阿尔茨海默病。近 75% 的 ADRD 患者护理是在家中进行的。痴呆症患者的护理人员表示需要持续、全面、方便的教育支持，以帮助管理错综复杂的护理困难网络所带来的身心影响。不幸的是，对于这些护理人员、家庭护理人员通常要求他们获得患者教育或护理支持的初级保健医生和其他卫生专业人员来说，他们往往缺乏准备或时间来充分应对护理人员的 ADRD 相关需求。目标：通过使用创新的、基于互联网的交互式心理教育计划，超越现有的单独的看护者教育方法，减轻看护者的负担并延长对看护角色的满意度。方法：充分利用互联网的媒体功能（流视频、音频、动画、照片、图形和运动）及其处理和响应用户输入的能力，开发和测试引人入胜的信息课程。家庭护理人员可以方便地、24/7、私人地接触整个 ADRD“干预顾问”团队，他们扮演着成功的痴呆症护理人员、ADRD 知识专家、社会心理支持专家、悲伤和失落顾问、私人教练和友好顾问的角色。研究和评估：第一阶段的工作旨在评估该程序的可用性，验证该程序的内容，并确定第二阶段工作的可行性。设计将包含一个迭代过程，涉及专家顾问团队和家庭护理人员的反馈。家庭照顾者参与者将完成事前和事后知识测试；关于技术困难和对原型的反应的定性、开放式调查问卷；以及定量的 5 点李克特量表评估，以帮助确定可行性。大量家庭护理人员的教育需求带来了强大的商业潜力。此外，拟议的干预产品还可能在社区教育、医疗办公室、医疗保健机构和工作场所环境方面使公众受益。公共健康相关性：2008 年，估计有 520 万各个年龄段的美国人患有阿尔茨海默病及相关疾病 (ADRD)，到 2030 年，65 岁及以上的人数估计将达到 770 万。阿尔茨海默病协会专家估计了 2005 年美国的成本每年的正式 ADRD 护理费用超过 1,480 亿美元。由于心理教育干预措施已被发现可以减轻作为护理人员的负担和压力，并延迟安置疗养院，因此预计这一努力将提高家庭 ADRD 护理人员的技能，减轻护理人员的负担，并延长对护理机构的满意度。护理人员的角色，以便护理人员能够更好、更愿意继续对 ADRD 患者进行家庭护理。