Training for Providers of an Evidence-Based AD Family Caregiver Intervention

为循证 AD 家庭护理人员干预提供者提供培训

基本信息

批准号：
7999007
负责人：
John V Hobday
金额：
$ 35.5万
依托单位：
HEALTHCARE INTERACTIVE, INC.
依托单位国家：
美国
项目类别：
财政年份：
2010
资助国家：
美国
起止时间：
2010-09-01 至 2011-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/7999007
关键词：
Alzheimer&apos s Disease Archives Authorization documentation Award Caregivers Caring Case Study Child Chronic Disease Client Clinical Clinical Research Comb animal structure Communities Consultations Continuing Education Control Groups Cost Savings Counseling Data Analyses Dementia Development Dictionary Disease Education Educational Intervention Evidence based intervention Family Family Caregiver Family Nursing Family member Future Goals Hair Health Benefit Healthcare Systems Home environment Hour Household Human Resources Husband Intake International Internet Intervention Interview Lead Learning Life London Marketing Mental Depression Methods Minnesota Modeling Multimedia National Institute of Mental Health Nature Neighborhoods New York Nursing Homes Outcome Persons Phase Population Pre-Post Tests Principal Investigator Protocols documentation Provider Public Health Randomized Controlled Trials Relative (related person)Research Personnel Resources Rest Risk Rural Social Work Societies Spouse Caregiver Stress Technology Telephone Testing Text Time Training Training Programs Training and Education Unemployment United States National Institutes of Health Universities Vision Visual Work base cost eighth grade evidence base experience forgetting improved innovation loved ones member patient home care physical conditioning pregnant programs prototype psychologic psychosocial public health relevance tool

项目摘要

DESCRIPTION (provided by applicant): Alzheimer's disease and related disorders (ADRD) constitute urgent challenges to U.S. Healthcare systems as well as enormous burdens on society as a whole. Nearly 75% of the care for persons with ADRD is delivered at home, and family caregivers need ongoing support to manage the daunting physical and psychological effects of care demands. As ADRD progresses, family caregivers are increasingly vulnerable to stress and depression, which may lead them to reluctantly place their relatives in nursing homes. PI Mittelman and colleagues, in a 20+ year randomized controlled trial, tested a psychosocial intervention for spouse caregivers, called the NYU Caregiver Intervention (NYUCI) and demonstrated long-term positive outcomes for people with ADRD and their family members. Most notably, the RCT 1) substantiated reduced depression and improved physical health for caregivers and 2) significantly extended the time persons with ADRD were able to remain at home-an average of 1.5 years longer than control group members (Mittelman et al., AG14634, formerly MH42216; See www.nrepp.samhsa.gov/programfulldetails.asp?PROGRAM_ID=122). This Phase I effort, "Training for Providers of an Evidence-Based AD Family Caregiver Intervention," proposes to create, develop, and test feasibility of a prototype of 4 of an eventual 12 modules of an innovative Internet-Based Multimedia Education (IBME) training program targeted to providers in community agencies seeking to learn how to implement the (NYUCI) model. Requests for NYUCI implementation training have become too numerous to satisfy in person, which led project investigators to conceive of this Phase I IBME. They hypothesize the proposed effort has the power to provide effective training with the aid of the Internet so that fidelity to the NYUCI content, protocols, and outcomes can be achieved efficiently. Moreover, in this form, it can be modified and kept up-to-date with new information and experiences of those implementing the intervention in different communities. Because the NYUCI assures support to family caregivers for the life of loved ones with ADRD, this proposed IBME has the potential to transform not only ADRD home care but also U.S. healthcare systems as it disseminates access to the 20+ years of clinical research validating the NYUCI model to many more agencies than would be possible without an IBME format. The project's innovation derives from a unique vision, multilevel intervention, and creative combination of the NYUCI itself, the professional experience of PI Hobday, PI Mittelman, and other key project personnel in the fields of family care, ADRD, and IBME development. In addition to its strong present commercial potential, this IBME may be also useful as a template for future training to support family caregivers of persons with chronic diseases other than ADRD. PUBLIC HEALTH RELEVANCE: This Phase I effort creates and develops an Internet-based training for social service providers implementing the evidence-based New York University Caregiver Intervention (NYUCI) model, a psychosocial intervention for families of those with Alzheimer's disease (AD). This effort is highly relevant to U.S. public health because the NYUCI has been shown to reduce depression in caregivers and delay nursing home placement by, on average, 1.5 years. Wider implementation of NYUCI model, to be facilitated by the proposed training intervention, could support the 9.8 million family caregivers delivering nearly 75% of the home care for those with AD (Alzheimer's Association, p. 15) as well as potentially saving the health care system hundreds of millions of dollars.

描述（由申请人提供）：阿尔茨海默病及相关疾病（ADRD）对美国医疗保健系统构成紧迫挑战，并给整个社会带来巨大负担。 ADRD 患者近 75% 的护理是在家中进行的，家庭护理人员需要持续的支持来应对护理需求带来的令人畏惧的身体和心理影响。随着 ADRD 的进展，家庭护理人员越来越容易受到压力和抑郁的影响，这可能导致他们不情愿地将亲戚安置在疗养院。 PI Mittelman 及其同事在一项为期 20 多年的随机对照试验中，测试了针对配偶照顾者的心理社会干预措施，称为纽约大学照顾者干预 (NYUCI)，并证明了 ADRD 患者及其家人的长期积极成果。最值得注意的是，RCT 1) 证实减少了抑郁症并改善了护理人员的身体健康，2) 显着延长了 ADRD 患者能够留在家中的时间，平均比对照组成员长 1.5 年（Mittelman 等人，AG14634），以前称为 MH42216；请参阅 www.nrepp.samhsa.gov/programfulldetails.asp?PROGRAM_ID=122）。第一阶段的工作“基于证据的 AD 家庭护理干预提供者培训”提议创建、开发和测试基于互联网的创新多媒体教育 (IBME) 最终 12 个模块中的 4 个模块的原型的可行性培训计划针对寻求学习如何实施 (NYUCI) 模式的社区机构提供者。对 NYUCI 实施培训的请求太多而无法亲自满足，这导致项目研究人员构想了第一阶段 IBME。他们假设拟议的工作有能力借助互联网提供有效的培训，从而有效地实现对 NYUCI 内容、协议和结果的忠实。此外，以这种形式，它可以根据在不同社区实施干预措施的人员的新信息和经验进行修改并保持最新。由于 NYUCI 确保为患有 ADRD 的亲人的生活提供支持，因此拟议的 IBME 不仅有可能改变 ADRD 家庭护理，而且还有可能改变美国的医疗保健系统，因为它传播了 20 多年来验证 NYUCI 的临床研究的可及性与没有 IBME 格式相比，可以为更多的机构提供模型。该项目的创新源于NYUCI自身的独特视野、多层次介入以及创造性地结合PI Hobday、PI Mittelman等项目关键人员在家庭护理、ADRD、IBME开发领域的专业经验。除了目前强大的商业潜力之外，该 IBME 还可以作为未来培训的模板，以支持 ADRD 以外的慢性病患者的家庭护理人员。公共卫生相关性：第一阶段的工作为社会服务提供者创建和开发基于互联网的培训，实施基于证据的纽约大学护理人员干预 (NYUCI) 模型，这是一种针对阿尔茨海默病 (AD) 患者家庭的心理社会干预措施。这项工作与美国公共卫生高度相关，因为 NYUCI 已被证明可以减少护理人员的抑郁症，并将入住疗养院的时间平均推迟 1.5 年。在拟议的培训干预措施的推动下，NYUCI 模式的更广泛实施可以支持 980 万家庭护理人员，为 AD 患者提供近 75% 的家庭护理（阿尔茨海默病协会，第 15 页），并有可能节省医疗保健费用系统价值数亿美元。